Discover and read the best of Twitter Threads about #GETstories
Most recents (1)
If you or someone else has been harmed by GET please share on here. This is from someone on FB.
"My daughter had GET and her health deteriorated. She needed to use a wheelchair. Didn’t manage school and was unable to complete her education."
#GETstories
#GETharms
#MECFS
"My daughter had GET and her health deteriorated. She needed to use a wheelchair. Didn’t manage school and was unable to complete her education."
#GETstories
#GETharms
#MECFS
Story above continues: "just also like to add that the physiotherapist stopped GET when she saw my daughter deteriorating and the paediatrician agreed with her decision.
#GETstories
#GETharms
#MECFS
#GETstories
#GETharms
#MECFS
We kept activity charts when doing GET and the physiotherapist could see from the charts the harmful impact exercise was having on my daughter. The charts showed a clear pattern which was much easier to visualise than if we had just talked about it"
#GETstories
#GETharms
#MECFS
#GETstories
#GETharms
#MECFS
