@OPENDiabetesEU

@OPENDiabetesEU

Discover and read the best of Twitter Threads about #HCP

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🧵How can #HCP assist people who chose to use #DYIAID?

The @OPENDiabetesEU ⤵️
▶️ Katarina Braune is a co-founder
▶️ Patient-led
▶️ 2/3 of the international team live w/#T1D
▶️ #OpenSource #AID data

#ISPAD2022 #dedoc°voices #wearenotwaiting @dedocORG @ispad_org 1/n

@dedocORG

How can #HCP assist people who chose to use #DYIAID?

#wearenotwaiting movement ⤵️
Because DIY #ClosedLoop systems have been so life-changing for them and their kids, they decided to make it available for all.

#ISPAD2022 #dedoc°voices #payitforward @dedocORG @ispad_org 2/n

@TheLancetEndo

How can #HCP assist people who chose to use #DYIAID?

International consensus statement on #OpenSource automated insulin delivery ⤵️
✅ Published in @TheLancetEndo on Nov 13 2021
▶️ thelancet.com/journals/landi…

#ISPAD2022 #dedoc°voices #payitforward @dedocORG @ispad_org 3/n

Read 22 tweets

Nat’s Pancreas 404 🐝 #COVIDisAirborne

@1derfultype

@lifeforachild

@lifeforachild /@ispad_org survey - shifting responsibility:
'I am an advocate because I believe that evidence should be made accessible to every stakeholder.'
-Emma Klatman ❤️

#ISPAD #ISPAD2022 #dedoc°voices #NothingAboutUsWithoutUs #payitforward @dedocORG 1/n

@lifeforachild

@lifeforachild /@ispad_org survey - shifting responsibility:
'Task-shifting & task-sharing: moving a task on from one #HCP to another & where staff from different discipline split the tasks. We are very interested in task-shifting in #T1D'
-Emma Klatman ❤️

ISPAD2022 #dedoc° 2/n

@lifeforachild

@lifeforachild /@ispad_org survey - shifting responsibility:
'We want to document the level of task-shifting and understand who from the clinical team is doing what. We established en survey in 2021 in many languages.'
-Emma Klatman ❤️

#ISPAD #ISPAD2022 #dedoc° @dedocORG 3/n

Read 8 tweets

Nat’s Pancreas 404 🐝 #COVIDisAirborne

@1derfultype

@dedocORG

🧵#ISPAD #dedoc° symposium:

Dedoc° started 10y ago on Twitter:
✅ Peer support
✅ Meetings outside of scientific conferences cause #PwD were not allowed in

#ISPAD2022 #dedoc°voices #NothingAboutUsWithoutUs #diabetesadvocacy #patientvoice #payitforward @dedocORG @ispad_org 1/n

@tadorna

#ISPAD #dedoc° symposium:

ISPAD was the 1st scientific conference that organised a Dedoc° symposium in 2021 🙏
-@tadorna

#ISPAD2022 #dedoc°voices #NothingAboutUsWithoutUs #diabetesadvocacy #patientvoice #payitforward @dedocORG @ispad_org 2/n

@tadorna

#ISPAD #dedoc° symposium:

Dedoc° is a platform for others to stand on - to have the #PwD voices heard 🔊
-@tadorna

#ISPAD2022 #dedoc°voices #NothingAboutUsWithoutUs #diabetesadvocacy #patientvoice #payitforward @dedocORG @ispad_org 3/n

Read 16 tweets

Nat’s Pancreas 404 🐝 #COVIDisAirborne

@1derfultype

@EASDnews

Are we becoming robots? #AID systems for everyone with #T1D:

'#CGM is the Archimedean point of #diabetes technology. This is when the idea of closing the loop really emerged.'
-Moshe Phillip

#EASD2022 #dedoc°voices #nothingaboutuswithoutus @EASDnews @dedocORG 1/n

@dedocORG

Are we becoming robots? #AID systems for everyone with #T1D:

'#CGM opened our eyes to the fact that the data we used to get was very different from the reality #PwD live.'
-Moshe Phillip

So true. Connecting the red dots' never been our reality.

#EASD2022 #dedoc° @dedocORG 2/n

@EASDnews

Are we becoming robots? #AID systems for everyone with #T1D:

'I'd like to convince you they are efficient. Automated Insulin Delivery is safe and efficient.'
-Moshe Phillip

#EASD2022 #dedoc°voices #nothingaboutuswithoutus @EASDnews @dedocORG 2/n

Read 6 tweets

Lucy Watts MBE MUniv FRSA

@LucyAlexandria

Throughout December I'm doing a #PalliativeCareAdvent; every day I am going to challenge #misconceptions about #PalliativeCare, #EndOfLife and living with a #LifeLimitingIllness. Some personal, some factual. Do join me!
#Hospice #EOLC #PallMedEd #HPM

lucy-watts.co.uk/palliative-car…

Day 1
"#PalliativeCare is only for those who are imminently dying".
❌
Palliative care can help people throughout their illness, from point of diagnosis. It can help people live well, live longer and focus treatment/care around their wishes.
#PalliativeCareAdvent #Misconceptions

Day 2
"#PalliativeCare can only occur in the absence of life-prolonging interventions"
❌
It can be given during life-prolonging treatment or in the absence of it. It's about quality of life, symptom control, the person's wishes and preparing for the future. #PalliativeCareAdvent

Read 27 tweets

Nat’s Pancreas 404 #Masks4All

@1derfultype

@tadorna

For @tadorna, #Covid19 made him feel like a #patient - again. We should not ever let #diabetes define us. It made him feel vulnerable because of this whole lot of uncertainties. Lack of #insulin and supplies was a worry.

#dedoc° #dedocvoices #EASD2020 #NothingAboutUsWithoutUs

@EASDnews

For Bastian, #PeerSupport was key during this #pandemic. #telehealth for him is uploading his data and having a Zoom call with his endo. We #PwD want digital AND personal interaction with our #HCP.

#dedoc° #dedocvoices #EASD2020 #EASD @EASDnews #NothingAboutUsWithoutUs @tadorna

The Impact of the #COVID-19 Pandemic on Diabetes Nurses in Europe: A pan-European Survey showed that there's been a significant increase in #anxiety for people living with #diabetes during the pandemic - Rita Forde

#dedoc° #dedocvoices #EASD2020 #EASD #NothingAboutUsWithoutUs

Read 3 tweets

Elizabeth Johansen

@elizjohansen

@dtm_tweets

We have #PPE shortages even in the wealthiest country in the world. On the bright side, the incredible, global maker community has created an explosion of different #faceshield designs for #covid19. Why choose the @dtm_tweets DtM-v3 #faceshield?

@NIH

It is the first #faceshield to be recommended by the U.S National Institutes of Health @NIH #3dprint exchange.
3dprint.nih.gov/discover/3dpx-…

@dtm_tweets

Spark Health Design partnered with @dtm_tweets to apply our experience designing medical devices for low-resource settings to a reusable #faceshield for #covid19. It is the work of over 80 volunteers including experts from @Boeing, @Microsoft, @Harborviewmc, @uwdfab, and more.

Read 18 tweets

Dr Musa Mohd Nordin

@drmusanordin

@POTUS

Back to basics public health measures IF only @POTUS would listen !

Rule 1: Listen to your scientists! Public Health experts should do daily briefings NOT @realDonaldTrump or @VP Politicians must step aside and let scientists lead the war against #COVID19 @DrDzul @ProfAdeeba

https://twitter.com/malaysiakini/status/1244767502195781632

Rule 2: Enforce extreme NOT slow and/or incremental #SocialDistancing like Italy!

eg Clear Florida’s beaches.

China lockdown the #COVID19 epicenter #Wuhan and sent 40,000 HealthCare Providers #HCP to assist

Rule 3: Like Malaysia lockdown dangerous #HotSpots.

#MCO enforces #StayHome orders.

Provide and ensure food, medicines etc delivery to quarantined, old, poor, infirmed and their families

Go into #freeze mode or risk overwhelmed and overburdened hospitals like Italy, Spain

Read 23 tweets

Dr Rajath Athreya

@FoolzWizdom

@MoHFW_INDIA

#COVID19India intensifies #HCP
@MoHFW_INDIA @DHFWKA @AnantBhan

1. HCP across sectors need adequate PPE, less exposure, access to healthcare
2. I fear that the adulation we saw yesterday will turn into #COVID19stigma: people will not want doctors and nurses living next to them

@epigiri

@epigiri @HuffPostIndia @the_hindu @DeccanHerald massive funding to protect #HCP and measures to destigmatise is needed.

The morale amongst #HCP especially nursing cadre is low and panic is setting in. Leadership in each organisation and across the whole healthcare set up needs to take this in to cognisance

Read 4 tweets

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