Discover and read the best of Twitter Threads about #INSAR2019

Most recents (7)

At the #INSAR2019 business meeting @johnrobison pointed out that sadly, many autistic scientists don't feel they can disclose their diagnosis.

It's a personal choice, but as an autistic person working in the field & in a fortunate position, here are a few points. ⬇️
1. Autistic people have a diverse and nuanced set of views and attitudes, and so do I. Yet people tend to make assumptions about my own views.

2. I don't want to impose my own views and attitudes anyway. I want to do my job and ensure we listen to everyone and serve everyone.
3. I get that I am different from other autistic people - particularly those with "complex needs". Yet some people feel the need to specifically explain that to me in a room full of people. I have been living and working with autistic people for 20+ years.
Read 7 tweets
WHO definition of sexuality: it is a central aspect of humanity, and everyone has choices as long as they respect the boundaries and autonomy of others.

Sexuality is a holistic concept. It’s not just about risk reduction. It’s also about living good lives. #INSAR2019
Sexuality is for everyone, not just those who have relationships with partners.

Read 29 tweets
Hanging out daydreaming (lolz) in the sleep and circadian panel session at #INSAR2019 #circadianrhythms #sleepwakecycle #timeisasocialconstruct #exceptwhenitsbiobasedandinyourbody #sleepdependent
Sleep in those with Tuberous sclerosis have changed in the mTOR pathway that can make or brake translation of protein synthesis. Turns out that causes wonky circadian rhythms. AND changing BMAL1 ("a core clock driver") levels got sleep cycles back in order.
Now Olivia Veatch on genetics of sleep in #autism. #genesgenesgenes or as @amandaseales would say #denimondenimondenim #ha
Read 26 tweets
Now: Where Do We Go from Here? Learning How to Prevent Suicide in Partnership with Autistic People and Their Allies, led by @Sarah_NottsUni, who has been doing this for four years now. #INSAR2019…
@Sarah_NottsUni More than 10K stakeholders worldwide have identified the top 10 priorities, with equal representation of #autistic people. #suicidality #INSAR2019
@Sarah_NottsUni Now: @soundcube, #actuallyAutistic on why lived experience is key.

“I don’t live with autism. I live with my wife and two cats. I *do* live with PTSD."

#suicidality #INSAR2019
Read 26 tweets
Now: “#Autism and Related Disorders in the Context of Humanitarian Emergencies” #INSAR2019
First up: Doctors without Borders developmental pediatrician, who worked in conflict zones. Can we use remote consultations to increase support disparities?
We will be hearing from group of professionals with experience with children with developmental disabilities and humanitarian emergencies. Trauma during conflict means diagnoses/traits can be muddies. #INSAR2019
Read 42 tweets
Now at #INSAR2019 Press conference. @sbaroncohen is talking about what INSAR is: The International Society for Autism Research, the conference is in its 18th year, it’s the largest org to bring together and foster autism research. “We keep autism research healthy and growing."
@sbaroncohen SBC: 4 major challenges to autism research:

1) Going from basic to applied research
2) Hetereogeneity (also innate vs. co-occurring conditions)
3) Balancing biological vs. non-biological research
4) Making research relevant to & communicating w/autistic ppl/families.
@sbaroncohen Now: Joseph Buxbaum, INSAR scientic program co-chair, also from the Icahn School of Medicine.

Says #INSAR2019 will have more oral presentations than before, allowing more biogical, medical, and neurological sessions. Now with more biomarkers! & Stem cells!
Read 33 tweets
Joining in on the #INSAR2018 reflections thread (also my first thread, so bear with me!)... 1/n
1. International conferences are such a good way to catch up with collaborators. Being in the same room as someone is so much better than video conferencing! 2/n
2. You will never get to see everyone/everything you want to... but twitter is fantastic for catching up on the sessions you miss 3/n
Read 12 tweets

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