Discover and read the best of Twitter Threads about #IatrogenicSystemicFibrosis
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@Wagner_Nephro @sennasthunder @lambertdebb My observation: Hard strings extruded through scars to create long Strands like Hairs, some like ceramic knives. If I pluck a shard from left thumb tip, I feel a tug in my neck, shoulder. Once the hard pieces come out, completely healed.
I thought with all my tugging and unconscious biting of my fingers and several old scars that they would be Red, Inflamed, Bleeding, Infected. They are not.I thought if I had OCD that my fingers would never heal.They are healing once the chunks are out. Sunlight, salt, charcoal.
Just realized I stop telling my Doctors.
They just give me a roll of the eyes 👀 and maybe a little internal chuckle 🤭 as they Observe Old Nurse Mary looking fine as ever. Never showing pain so bad it causes nausea. Yup, that’s part of our problem, pwMS 🤦♀️ @GavinGiovannoni
They just give me a roll of the eyes 👀 and maybe a little internal chuckle 🤭 as they Observe Old Nurse Mary looking fine as ever. Never showing pain so bad it causes nausea. Yup, that’s part of our problem, pwMS 🤦♀️ @GavinGiovannoni
