Discover and read the best of Twitter Threads about #LCKschoolpack
Most recents (6)
🇬🇧NEW
1) The voices of chronically sick children & young people have been ignored throughout the pandemic.
It is crucial to the development of effective research, innovations, and services that lived experience is
#longcovidkids
#LISTENtotheKIDS
researchsquare.com/article/rs-798…
1) The voices of chronically sick children & young people have been ignored throughout the pandemic.
It is crucial to the development of effective research, innovations, and services that lived experience is
#longcovidkids
#LISTENtotheKIDS
researchsquare.com/article/rs-798…
2) represented. The findings of this study evidence that prevention MUST be our focus as kids go #BackToSchool
Download our #LCKschoolpack to learn more about #longcovid and how to reduce risk.
⬇️⬇️⬇️
longcovidkids.org @grahamja51
Download our #LCKschoolpack to learn more about #longcovid and how to reduce risk.
⬇️⬇️⬇️
longcovidkids.org @grahamja51
3) LCK represents families around the world who are living with #kids who are chronically and significantly affected from #COVID19 wave 1/2/3. Many of whom are not recovering, this needs your attention.
We can only conclude that anyone who continues to minimise #longcovid in
We can only conclude that anyone who continues to minimise #longcovid in
🧡🧡🧡🙏🏼🙏🏼🧡🧡🙏🏼🙏🏼🧡🧡
1) Can we ask for your help, please?
The @nhs says;
The main symptoms of COVID-19 are:
✅a high temperature
✅a new, continuous cough – this means coughing a lot, for more than an hour, or 3..
nhs.uk/conditions/cor…
1) Can we ask for your help, please?
The @nhs says;
The main symptoms of COVID-19 are:
✅a high temperature
✅a new, continuous cough – this means coughing a lot, for more than an hour, or 3..
nhs.uk/conditions/cor…
2) or more coughing episodes in 24 hours
✅a loss or change to a sense of smell or taste – this means they cannot smell or taste anything, or things smell or taste different to normal more coughing episodes in 24 hours
We have been asking the #NHS to update this list since
✅a loss or change to a sense of smell or taste – this means they cannot smell or taste anything, or things smell or taste different to normal more coughing episodes in 24 hours
We have been asking the #NHS to update this list since
3) LCK started.
The @CDCgov has a more comprehensive list of symptoms.
As #kids are going #BackToSchool without mitigation measures we can expect to see child cases increase and families need to know how to spot infection and when to get a #PCR #test. (Keep reading)
The @CDCgov has a more comprehensive list of symptoms.
As #kids are going #BackToSchool without mitigation measures we can expect to see child cases increase and families need to know how to spot infection and when to get a #PCR #test. (Keep reading)
1) #longcovidkids Group post.
16 mths of fighting to get a diagnosis.
“Finally had in writing confirmation today from my kids #neurologist to my #GP that they both have #PIMS / #MISC, along with #postcovid immune mediated neuropsychological syndrome/#PANS and #longcovid,
16 mths of fighting to get a diagnosis.
“Finally had in writing confirmation today from my kids #neurologist to my #GP that they both have #PIMS / #MISC, along with #postcovid immune mediated neuropsychological syndrome/#PANS and #longcovid,
2) Took 16 months of fighting for them to get heard!! How many of our children have some form of PIMS/MISC that has gone unacknowledged and untreated for so long!
I think there’s so many unrecognised by medics to greater or lesser degrees but it’s all the same
I think there’s so many unrecognised by medics to greater or lesser degrees but it’s all the same
3) - Inflammation & immune mediated response!
My children had a 40 + temp for 3 wks solid and dangerously low oxygen levels (85%) and struggled to breathe every day, blue lighted to hosp yet medics couldn’t wait to get us out and gave us virtually no help. I
My children had a 40 + temp for 3 wks solid and dangerously low oxygen levels (85%) and struggled to breathe every day, blue lighted to hosp yet medics couldn’t wait to get us out and gave us virtually no help. I
1) Welcome to all our new followers 🤗
#LongCovidKids runs on goodwill and support, so thank you for being here. #gratitude
What does LCK do though? If you are new, you might be wondering, so we thought we would a tweet thread might help!
We started ⬇️
bit.ly/3pU0oju
#LongCovidKids runs on goodwill and support, so thank you for being here. #gratitude
What does LCK do though? If you are new, you might be wondering, so we thought we would a tweet thread might help!
We started ⬇️
bit.ly/3pU0oju
2) This brought lots of #longcovidkids families to our door, so we set up a place to connect & now support over 2000 families all facing the same challenges. Since December we have been welcoming about 100 families, often with multiple #longcovid kids.
facebook.com/groups/longcov…
facebook.com/groups/longcov…
3) We realised #longcovidkids was different to #longcovid so we set up the #LongCovidKidsStudy with @PeopleWithApp to learn more & support researchers & Drs.
Download the app to get involved & select Long Covid Kids to be involved.
bit.ly/PeopleWithAndr…
bit.ly/PeopleWithiOS
Download the app to get involved & select Long Covid Kids to be involved.
bit.ly/PeopleWithAndr…
bit.ly/PeopleWithiOS
💈WOW 🤩
This school rocks!
We need to reduce #Covid_19 in transmission in schools.
Great to see this headteacher taking a proactive approach to #makeschoolssafe and going beyond the inadequate @educationgovuk guidelines.
@BBCSouthNews
#CO2monitors
@Dr2NisreenAlwan
This school rocks!
We need to reduce #Covid_19 in transmission in schools.
Great to see this headteacher taking a proactive approach to #makeschoolssafe and going beyond the inadequate @educationgovuk guidelines.
@BBCSouthNews
#CO2monitors
@Dr2NisreenAlwan
We don't want your kids to share our story.
The only way we know how to reduce #longcovid is to avoid #COVID
Download your school pack to understand more about #longcovidkids & how to reduce risk in your school.
longcovidkids.org
#LCKSchoolpack #LCKMaskHeros
The only way we know how to reduce #longcovid is to avoid #COVID
Download your school pack to understand more about #longcovidkids & how to reduce risk in your school.
longcovidkids.org
#LCKSchoolpack #LCKMaskHeros
💈One Year On. Our scrapbook.
Kids do get #COVID19
Kids can be #Asymptomatic or #Atypical.
Kids can have a mild infection, or get #PIMS
Kids can get #LongCovid
2000 kids NOT yet better.
Families disbelieved.
⚠️Contains graphic images.
longcovidkids.org #MothersDay
Kids do get #COVID19
Kids can be #Asymptomatic or #Atypical.
Kids can have a mild infection, or get #PIMS
Kids can get #LongCovid
2000 kids NOT yet better.
Families disbelieved.
⚠️Contains graphic images.
longcovidkids.org #MothersDay
The numbers of children with #LongCovid are rising with every #COVID19 infection.
⚠️1 in 8 primary age children will get Long Covid
⚠️1 in 7 secondary age children will get Long Covid.
It appears to makes no difference if a child has a pre-existing condition or not.
⚠️1 in 8 primary age children will get Long Covid
⚠️1 in 7 secondary age children will get Long Covid.
It appears to makes no difference if a child has a pre-existing condition or not.
Tragically children can die.
Thankfully the numbers are low compared with adults.
Every family that has lost a child will be devastated, the fact the numbers are low will have no bearing on their grief.
longcovidkids.org
#LongCovidKids #MakeSchoolsSafe
Thankfully the numbers are low compared with adults.
Every family that has lost a child will be devastated, the fact the numbers are low will have no bearing on their grief.
longcovidkids.org
#LongCovidKids #MakeSchoolsSafe
