Discover and read the best of Twitter Threads about #LEMS
Most recents (1)
1/ During my Grand Rounds talk @MayoClinic on cost of drugs I had a question on #LEMS drug #Firdapse that was recently priced at a mindboggling price of $350,000 per year by @CatalystPharma - I answered it. What happened next was very very powerful and moving. Read on 👇
2/ Unknown to me, a patient with #LEMS was in the audience. She raised her hand and spoke up. She had received the drug almost for free from Jacobus Pharma for many years. But now because of @CatalystPharma this program was done. She had to buy Firdapse: at $3800/month co pay! 👇
3/ She had written to several Congressmen with no answers. She said she was on Medicare Part D and cannot afford the co pays. Her symptoms from this disease were well controlled for years. But not she must go without meds and suffer. There was no choice coz of @CatalystPharma 👇
