Discover and read the best of Twitter Threads about #LinkAge

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I see #NHSEx has published the slides from its @HDR_UK “Data Access & Discovery” event, charmingly subtitled “A Forest Through the TREs” - on YouTube, if you want to listen:



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*I thought the phrase was “cannot see the forest for the TREs”, but hey...
Let’s take a look:

hdruk.ac.uk/wp-content/upl…

One reason we use the category term #TRE to refer to Trusted Research (or any other use) Environments that meet the #FiveSafes is that everyone wants to call their own TRE something different, so no-one really knows what they mean...
Call yours what you like (e.g. for @ONS it's their Secure Research Service) but if it only does four #Safes, or three Safes - and if it isn’t also #consensual and fully #transparent - then it's not a #trustworthy TRE...
Read 24 tweets
Finally, the #GoldacreReview is published! (During Parliamentary Easter holidays, mid-ping-pong on the #HealthAndCareBill...)

It's 221 pages - each PDF page is a double page spread - so this could be a lo-o-o-ong [Thread].

Here goes...
First point to note, in the Terms of Reference (p5), is that this is about "access to #NHSdata by #researchers, #commissioners, and #innovators" - i.e. #Planning and #CommercialReUse - so it is directly relevant to the operation of millions of people's #NationalDataOptOuts... Terms of reference for the review  1. How do we facilitate a
"185 wide-ranging recommendations for us to explore", says @sajidjavid (p6). Gulp! Time for some coffee...

"systems that ensure #underrepresented groups are well represented" may (partly) refer to this "landmark review", which got off to a slow start:

gov.uk/government/new… The far-reaching independent review into potential ethnic bi
Read 159 tweets
Powered exclusively by #VOLUNTEER efforts, @iamwillproject locally engages in promoting a #ContinuumOfCare spectrum, while advocating for #CommunityHEALTH.

@iawpfoundation #IAWP Image
Helping to #bridge the gaps between progressive #healthcare providers and those individuals seeking primary #medical services & professional #supportive healthcare #resource referrals, @iamwillproject creates #Testing & #LinkAge to #Care connection opportunities. #Outreach! #IAWP
A spark ignited in the #spring of 1972 & #trails have been ablaze ever since. #IAWP effectively expands consumer #HealthLiteracy by freely disseminating plain language #healthcare information & facilitating #complimentary skill building. #SelfCare #CommunityHEALTH @iawpfoundation
Read 6 tweets
@gauravbh @TimesNow @navikakumar #RoyalEstates #Linkage #Yasir Now that we are at it, please know that this goes back to Dawood Ibrahim. Asahi and the Khans are known to have worked on a project called Royal Estates in Dubai. 1/n
#BollywoodPakISILink
@gauravbh @TimesNow @navikakumar A leaked conversation between Dawood and his Pakistani frontman Yasir Iqbal revealed that D-Company has a stake in Royal Estates through a company called Linkage. Here is the transcript: newsmobile.in/articles/2014/…
#BollywoodPakISILink 2/n
@gauravbh @TimesNow @navikakumar Here is the leaked audio in which Dawood is scolding his frontman Yasir Iqbal in connection with a real estate deal (presumably Asahi- and SRK-linked Royal Estates):
#BollywoodPakISILink
Read 9 tweets

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