Discover and read the best of Twitter Threads about #LongCovidConference

Most recents (6)

Aaaand that’s a wrap for day 1 of our #LongCOVIDConference! Thank you to all speakers and attendees! We end the day with an excellent panel discussion with @MMcNarry, @ollieosul and @Breathe_to_win, chaired by @hugh_montgomery.
@hugh_montgomery “What's the relationship between asthma and #LongCovid?
@ollieosul – “It seems ppl with asthma in the military fared similar to those w/o asthma
@Breathe_to_win “we were preparing for a devastating effect on asthma patients, but that wasn’t borne out”
Q: “If you were to get #COVID, would you rest & wait or try to improve your outcome through exercise” @hugh_montgomery
A: @Breathe_to_win “Data into other infections suggests light exercise if able is beneficial. Rest for 48h and then if symptoms allow – light exercise.
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How can we resolve #LongCOVID symptoms? Patients ‘feel like they’ve aged 20-30 years overnight’ or ‘couldn’t make a cup of tea’ says @MMcNarry @SwanseaUni at #LongCOVIDConference. 1/6
Shortness of breath is one of the major symptoms. Traditional pulmonary rehabilitation is difficult to implement on scale. We require a ‘highly individualised approach to help those experiencing #LongCOVID’ says @MMcNarry #LongCOVIDConference 2/6
Respiratory muscle training helps to strengthen the breathing muscles, worked for other types of respiratory conditions. @MMcNarry carried out study, where participants used a small handheld breathing device. This tracked every breath & gave participants instant feedback 3/6
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In Brazil, response to chikungunya offers a comparable: "What made chikungunya crippling to the health system is that a small % of people who get it go on to have chronic symptoms which then have a huge impact on people and livelihood." - Prof @Daltmann10 1/4
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Awareness and knowledge are changing through the pandemic. We’re building better evidence as time has gone.
A #LongCOVID biosignature offers a diagnostic test to help us understand what’s gone wrong and where to go next. 2/4
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Omicron is significantly different form previous variants – we don’t know how it’ll affect #longCOVID and what the future holds. 3/4
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‘Long COVID is an uncharted pathophysiology’ We’re still none the wiser in decoding the unknowns. Is long COVID a story of months, years or lifetime?
Prof Danny Altmann @Daltmann10 speaking at the #LongCOVIDConference 1/5
If 10-20% COVID19 infections lead to #LongCOVID. We already face a legacy of 20-240 million long term cases to manage globally 2/5
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A lot of the research effort at the beginning was purely observational and not interventional. Now we need to manage patients well and offer therapeutics. 3/5
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Paul Edison of @ImperialBRC spoke about the neurological complications of #COVID19 and #LongCOVID and the wide range of tissues and systems it affects.
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#LongCOVID can trigger high level of inflammation and consequent cause damage in the brain and other organs, or blood clotting, leading to a "perpetual and viscous cycle" of chronic symptoms. 2/5
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There is no single impact either. Examples of patients scans show inflammation, ischemic lesions, haemorrhagic transformation, and microhemorrhages.
“So you can see any pattern of involvement in the brain”- says Dr Paul Edison @ImperialBRC 3/5
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"Long COVID is a patient made term, experienced by non-expectant risk groups. Approximately 1 in 10 experience #longCOVID not fully recovering"- @Dr2NisreenAlwan of @unisouthampton in the first session at our #LongCOVIDConference 🧵1/7
#CountLongCovid
In the initial reporting, there was a large focus on death and survival. But "LongCOVID does not paint a black and white picture," says @Dr2NisreenAlwan. The grey area of chronic post-viral illness is missing from the narrative. 2/7
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Even now, #LongCOVID is unacknowledged by UK policy makers and is missing from health policy discussions, despite 1.3 million people suffering from the condition. (data from ONS survey) 3/7
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Read 7 tweets

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