Discover and read the best of Twitter Threads about #LongCovidDiaries
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Some reflections on #longcovid 🧠cognitive dysfunction and it’s impact on social life.
I’ve been writing these slowly over the last 3 months. I hope it’s insightful- especially to those who do not have long covid and want to understand “brain fog”. 🧵/18
I’ve been writing these slowly over the last 3 months. I hope it’s insightful- especially to those who do not have long covid and want to understand “brain fog”. 🧵/18
Socialising is hard because of cognitive dysfunction & fatigue (the longer I use my brain, the more my brain doesn’t work). Complex tasks, like social interaction, are particularly draining because there are so many areas of my 🧠that need to work quickly & in tandem. 2/18
A passing encounter is usually ok e.g. small talk with someone I know, but aren’t close to. Questions (and answers) are usually familiar and short. Its easy to play along, mask my struggles, smile, make excuses and be on my way. I think I appear “normal”. 3/18
🧵Today marks 8mths since my 1st #longcovid symptoms and 12wks since a reinfection.
To give an idea of where I’m at, my short term goals are to brush my teeth x2pd, prepare and eat simple meals x3pd, shower every other day and wash my hair x1pw. I am not yet achieving this. 1/7
To give an idea of where I’m at, my short term goals are to brush my teeth x2pd, prepare and eat simple meals x3pd, shower every other day and wash my hair x1pw. I am not yet achieving this. 1/7
My long term goal is to return to uni and finish my physio degree. The next 15wks will determine whether I can do this or not. I’m waiting to hear back on options to go part time. Full time study is too ambitious right now. 2/7
If I can’t get back to uni, it means I lose my income; My partner and I will no longer afford our rent+bills. We’ve relied on savings and help from family so far. Our savings were meant to go towards our 1st mortgage once I graduated. 3/7
🧵 Got active yesterday. Compelled to move. Couldn't sleep afterwards. Too tired to write since. Can't sleep again tonight. Awake in bed for hours. Resting heart rate thumping into the 90s. Oxygen saturation dipping into the 80s.
#LongCovid #MECFS #LongCovidDiaries /1
#LongCovid #MECFS #LongCovidDiaries /1
In a system that forces us to fight for help, I fight for validation. Benefits assessors tell us we don't qualify. Medical professionals suggest it's in our heads. Governments are not interested. I am but one of many. /2
Come move with me. Keep up while I fire up my system and move like my life depends on it. Then live my nights with me. Feel the pain in my belly and the waste in my legs. Feel the heart beat that hammers in my head. /3
🧵 4 hour sleep. Awake with return of sensation like a mild and clunky AC current inside me, most prevalent in head and neck. Meditated a little but find it hard to be present in stillness with this symptom. It doesn’t let me sleep either. #LongCovid #LongCovidDiaries #MECFS /1
Staying in bed with Twitter, Facebook, music and writing. Pulse rate as low as 49. Oxygen saturation still low at 92%. Sweet message from dear old friend who lives in Australia. It’s good to reconnect with someone from the adventurous and wild days of my youth and early 20s. /2
We have crazy memories of mountains and climbing, motor bikes and mountain bikes, girls and women, bars and clubs, booze and fights, thrills and spills, breaks and crashes. A few scars and broken teeth aside, we felt quite invincible back then. We’ve both grown a lot since. /3
