Discover and read the best of Twitter Threads about #LongList

Most recents (4)

1/4 We are social beings. We need the conversation, other people, our work, experiences, love, affection, humor. Also walking around outside, being in the fresh air, smelling spring, walking in the park or in the woods, travelling, joy. And we need our memories. Image
2/4 But what should we remember if we have been seriously ill for years? What can we do that actually constitutes being human? #pwME can't do all that. None of that.

Not only are we tormented by myriad symptoms, but also by the isolation cut off from all that constitutes life.
3/4 Added to this is the fact of suffering from an illness that is ignored by the system. Basically one of the worst things that can happen to you.

We also have no chance of healing. Many think that #pwME are dramatizing or exaggerating.
Read 4 tweets
1/16 Es ist einer der „besten“ Artikel, die je über #LongCovid #MEcfs erschienen sind.

„Wortmann hat Long Covid. Er erträgt kaum Geräusche und Licht, hat Kopfschmerzen, Tinnitus, ein Brennen im ganzen Körper.

zeit.de/gesellschaft/2…
2/ Er kann sich schlecht konzentrieren und auch nachts nicht erholen. Seine Hände fühlen sich oft wie gelähmt an. Seine Energie reicht für ein paar Minuten Reden pro Tag, für zwei Schritte: von der Badezimmertür zur Toilette und zurück. Dort wartet seine Mutter mit dem Rollstuhl.
3/ Geht Wortmann über seine Grenzen hinaus, rächt sich das: Crash, alles noch schlimmer. Ein Dröhnen im Kopf, ein mehrstimmiger Tinnitus, eine Erschöpfung, die ihn sich manchmal den Tod wünschen lässt.“ (…)
Read 17 tweets
1/20 #LongThread/continuation but worth it! Again sorry for type-errors (I am glad that I survived it) Excerpt/Quote about Viral persistence & consequences to reactivation other pathogens! @microbeminded2 ♥️💐💙

“To me it is, yes (viral persistence as simplest explanation)…
2. because then it can start to explain so many of the other things that are measured. So we could explain some of the #autoantibody production by persistence of the virus, we can certainly explain how other pathogens may themselves be reactivated.
3. That’s definitely I think a trend that haven’t described as much … but all of us are seated with other organisms. Other pathogens that are #herpes viruses, Epstein-Barr, CytomegaloVirus but also sometimes for example #toxoplasma is a parasite that one third of the world …
Read 20 tweets
1/11 Excerpt/Quote @microbeminded2 ♥️💐💙 (Sorry for type-errors): „Certainly and one of the things that has made particularly interested in intestinal tissue is one of the researchers that I most respected in the #mecfs research community, a scientist named Dr. John Chia.
2. For a long time he has been collecting intestinal tissue samples from patients with #mecfs via endoscopy and he has stained hundreds of those samples for #enteroviruses which are single strained rna viruses that actually have a lot of similarity to SarsCov2.
3. They can also be acquired via respiratory infection often people who get an enterovirus infection only have mild or asymptomatic symptoms but can develop chronic symptoms, so he has found this #enterovirus reservoir in #mecfs intestinal tissue and published that in at least …
Read 12 tweets

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