Discover and read the best of Twitter Threads about #Longcovidkids

Most recents (24)

“The only other virus that attacks and kills T-cells is HIV, which causes AIDS, said Katzenback.”

Maybe repeatedly infecting our kids with SARSCoV2 wasn’t such a great idea?

Guess we’ll find out.

#Covid #LongCovid #LongCovidKids #Health #CovidIsntOver therecord.com/news/waterloo-

“With the loss of these T-cells, we are now more vulnerable to all of these other infections, other viruses, other bacteria,” said Katzenback.

#Covid #LongCovid #Health #Strep #StrepA #Flu #pneumonia
“Individuals who are infected with COVID have many fewer T-cells,” said Katzenback. “That’s a problem for us because T-cells are a really important part of our immune system that helps defend us against infection.”
Read 5 tweets
Das Alter hat keinen Einfluss auf die InfektiositÀt von #SARSCoV2 - Kinder aller Altersgruppen produzieren hohe Mengen an infektiösen Viren

„Die virale InfektiositĂ€t in pĂ€diatrischen klinischen SARS-CoV-2-Proben variiert nicht nach Alter. Um festzustellen,


#Corona #COVID19 Image
ob es einen Unterschied in der InfektiositÀt des Virus gibt, das von Kindern mit #COVID19 produziert wird, haben wir die virale RNA-Konzentration (klinische RT-qPCR CT) und die infektiösen Virustiter von 144 SARS-CoV-2-positiven klinischen Proben von Kindern im Alter Image
von 0 bis 18 Jahren verglichen. Wir fanden keine signifikanten Unterschiede in der Beziehung zwischen dem infektiösen SARS-CoV-2-Virustiter und der RNA-Viruslast bei Kindern im gesamten pÀdiatrischen Altersspektrum. Unsere Ergebnisse deuten darauf hin, dass die virale Image
Read 4 tweets
Professor Stephen Griffin accepts invitation to give @thackraymuseum #Insights lecture in memory of Monty Losowsky

Recorded 04.03.23

đŸ§” of lecture highlights

1 of 20

â–Ș What is a vaccine?
â–Ș How do vaccines work (1 of 2)

#SARSCoV2 #Vaccines #Children twitter.com/i/web/status/1

đŸ§”of lecture highlights. Professor Stephen Griffin

2 of 20

â–Ș What is a vaccine?
â–Ș How do vaccines work? (2 of 2)

#SARSCoV2 #Vaccines #Children
đŸ§” of lecture highlights. Professor Stephen Griffin

3 of 20

â–Ș What is a virus?
â–Ș What is SARS-CoV2?
Read 21 tweets
SARS-2 is not mild, I must say
It's not mild, no, not today!
It's not mild for a child, big or small
It's not mild, it affects them all! A vibrant whimsical waterco...
It's not mild for pilots in the sky
It's not mild, oh me, oh my!
It's not mild for teachers in the school
It's not mild, it's not cool A whimsical watercolor of a...
It's not mild for parents at home
It's not mild, wherever you roam
It's not mild for doctors, so wise
It's not mild, it takes them by surprise a whimsical watercolor of a...
Read 6 tweets
Even een samenvatting van wat er zoal in een Duitse #LongCovid kliniek voor kinderen gebeurt: 1) grote bloedafname (+/- 30 buisjes) om te kijken naar microstolsels, auto antilichamen en nog veeeel meer 2) lumbar punctie (analyse v hersenvloeistof) 3) analyse v POTS/dysautonomie
(iig Schellong), 4) 24 uur EKG van het hart , 5) 24 uur lang urine opvangen en testen, 6) analyse van de ontlasting 7) MRI scan van de hersenen, 8) CT scan van het hart, 9) long functie analyse en scans 10) EEG van de hersenen... kan zijn dat ik dingen vergeet...
In ieder geval beter dan in NL (ergo, physio of als je geluk hebt een revalidatie arts en als je pech hebt als ouder Veilig Thuis!?). Echt beste @MinVWS mensen, met bijv een hersenontsteking heb je niet veel aan fysio!?
Read 4 tweets
đŸ§” “We now need to explore whether the lack of implementation is due to a lack of commissioning of services, or whether it represents centres choosing not to follow the guidance & use alternative strategies without evidence base.” @DocStrain

#MECFS #NHS
thetimes.co.uk/article/thousa
 Image
“It is important that decisive action is taken to address these issues and ensure that #MECFS patients receive the appropriate care they deserve,
@SonyaChowdhury
@actionforme

#PostViralIllness #Disability #Health Image
With > 2 million people living with Long Covid, and > 50% said to meet the criteria for #MECFS and therefore @NICEComms guidelines communities must stand together to ensure safe rehabilitation & care.

The full article can be seen here.
Thanks @ABrokenBattery

#LongCovidKids
Read 6 tweets
“I always have in back of my mind – how can these insights from #LongCovid help people with ME/CFS & other post-acute phases of infections.. I’m so excited about receiving this award because it shows long Covid & ME/CFS are diseases of global significance.”theguardian.com/society/2023/m

“What similarities have been found in the biology of these two illnesses?”


@VirusesImmunity: One you’ve probably heard of is #microclots, which appear to be happening in a large fraction of people from #LongCovid and potentially #MECFS”
“These are tiny little clots in the blood that may be impairing oxygen exchange & other important functions of the circulation. The way blood oxygen is being utilised by tissues also appears to be impaired, which could be due to microclots as well as mitochondrial dysfunction.”
Read 13 tweets
đŸ§” “researchers say they’ve come up with a list of 12 symptoms that can reliably classify someone as having Long Covid a working definition that should accelerate research into the disabling condition.”
#LongCovid @CNN
amp.cnn.com/cnn/2023/05/25

Postexertional malaise, or the worsening of health after mental or physical activity
‱ Fatigue
‱ Brain fog
‱ Dizziness Gastrointestinal symptoms
‱ Heart palpitations
‱ Changes in sexual desire or capacity
‱ Loss of or change in smell or taste
‱ Thirst
‱ Chronic cough
‱ Chest pain
‱ Abnormal movements

“although most people in the study who met the definition of #MECFS also met the definition of #LongCovid the converse wasn’t necessarily true.  Among people who met the definition of LC only about 10% to 20% would have also met the definition
Read 8 tweets
#Gedanken
Ich weiß nicht, wie da die aktuelle Situation bei euch so ist. Ob ihr angesprochen, angegangen oder gar angegriffen werdet, wenn ihr #Maske tragt! #TeamVorsicht ♄

Erst einmal DANKE das ihr ĂŒberhaupt noch beim Team #Maskebleibtauf seid!♄ Jede:r mit Maske hilft Infek-
tionen (jetzt mal allgemein gesprochen) einzudÀmmen.

Bei mir hier ists so, dass ich gar nicht darauf angesprochen werde. Insgesamt nur 2x nach Wegfall aller #Praeventionsmaßnahmen . Vielleicht liegt es am Ort, oder Gebiet? Keine Ahnung. Aber ich lese ja aufmerksam mit und weiß,
dass es anderen Ortes sehr anders sein kann.

Ich frage mich immer, was veranlasst Menschen, wildfremde Menschen, so ĂŒbergriffig zu sein? Was soll denn das? Es geht doch nun wirklich nicht jeden Hinz und Kunz an, 'warum' wir 'immer noch' #Maske tragen! Und dabei ist es erst Mal
Read 17 tweets
Day 3 of covid infection for my 6 year old. It’s been horrific. This evening has been torrential nose bleeds and this is what his skin now looks like. It NEVER looked like this before, he’s never suffered with nose bleeds. #LongCovidKids #LongCovid #MedTwitter Image
Thank you for all the replies. I called 111 and am waiting on a call now within the hour apparently. His nose bleeds have stopped. I am getting ready to take him in. Difficulty is I have Covid too. My husband has covid and is in bed unable to move. My 8yr old is still awake.
Update: saw a Dr. Said she wasn’t concerned as ‘Covid doesn’t affect chn’. But also said that loads of children are left with skin like this đŸ€·đŸœâ€â™€ïž plus bad nose bleeds as it ‘does something to the blood vessels’. We came home. She had a blue surgical worn mask under her nose đŸ€ŠđŸœâ€â™€ïžđŸ˜·đŸŠ 
Read 5 tweets
“Mr O’Connell said the Government statement that #LongCovid in kids is rare, and they tend to recover’ was very upsetting for their family.”

“It's not that rare and my kid hasn’t recovered”newstalk.com/news/long-covi

“He's gone from the first instance with mild symptoms – he recovered but wasn't 100% – to the second time he got it, his symptoms increased dramatically.” #LongCovid
Mr O’Connell said prior to Jake contracting COVID, he was a very energetic young boy.

“Every weekend we were at parks we were [playing] football, we were [playing] Frisbees, we were out and about,” he said. #LongCovid
Read 8 tweets
#COVID19 hat zum Anstieg der schweren pÀdiatrischen RSV-FÀlle im Jahr 2022 beigetragen

Die Zahl der Infektionen mit dem Respiratorischen Synzytialvirus (RSV) und der Krankenhausaufenthalte bei Kleinkindern stieg im Jahr 2022 sprunghaft an. đŸ§”

#COVID19 #RSV #Corona #SARSCoV2 Image
Um festzustellen, ob #COVID19 zu diesem Anstieg beigetragen hat, wurde hier eine landesweite Echtzeit-Datenbank mit elektronischen Gesundheitsdaten (EHR) in den USA genutzt, die eine Zeitreihenanalyse vom 1. Januar 2010 bis zum 31. Januar 2023 und einen Vergleich der Kohorten von
Kindern im Alter von 0-5 Jahren mit oder ohne vorherige COVID-19-Infektion ermöglicht.
Die saisonalen Muster der medizinisch betreuten RSV-Infektionen waren wĂ€hrend der COVID-19-Pandemie erheblich gestört. Die monatliche Inzidenzrate fĂŒr erstmalige medizinisch betreute FĂ€lle,
Read 7 tweets
#LongCovid bei Kindern und Jugendlichen nach Infektion oder Reinfektion

12-16 % der mit #Omicron infizierten Kinder erfĂŒllten 3 und 6 Monate nach der Infektion die Forschungsdefinition von #LongCovid, wobei kein Unterschied zwischen Erst- und Reinfektionen festzustellen war. Image
In dieser Studie wurde #LongCovid bei Kindern und Jugendlichen (CYP) untersucht, die sich in der Zeit, in der #Omicron vorherrschend war, erstmals oder erneut mit #SARSCoV2 infiziert hatten, mit einer Nachbeobachtungszeit von 6 Monaten: 12,1 % der CYP, die sich erstmals infiziert Image
hatten, 16,1 % der Reinfizierten und 4,8 %, die immer negativ getestet wurden (durch PCR oder Selbstauskunft), erfĂŒllten die Forschungsdefinition fĂŒr Long COVID sowohl nach 3 als auch nach 6 Monaten.
Angesichts des Ausmasses der Infektion mit Omicron ist es klar, dass eine Image
Read 6 tweets
Something @WHO fail to acknowledge is the mental torture the CØVid aware have faced for years now.

Following the science,watching briefings/Q&As with @mvankerkhove @DrMikeRyan
Reading studies, tracking VOCs.
Caring.
Has led us to be vilified, ostracised & abused.
Martyrs💔
None of what @WHO comes out with makes it into the mainstream(Unless the word "Over" is involved)
Therefore it's null & void.

The more we know. The worse the ignorant will treat us. The further underground the vulnerable will be pushed.
Quite literally in far too many cases 💔
My message to @WHO is;
(Not that they care- this is cathartic)

You have the floor. Use it wisely.

Don't push SARS-CoV2 into the past,while adults & children die or become debilitated daily
#LongCovid

In the eyes of the grieving & vulnerable we are still in an emergency.
Read 4 tweets
So, lots about @WHO calling an end to the #PHEIC
First, this is a response, and it has a defined set of criteria. Whether or not these are met doesn't actually mean that #COVID isn't a pandemic, it's an interpretation of guidance and is pretty arbitrary, really.
Second, and this
really IS important...whether or not the WHO, mainstream/social media, or any other form of messaging put this across properly, national governments will have been briefed IN FULL, AHEAD of time, with the five pillars of the ongoing response in black and white, LARGE FONT etc...
Third, that certain Governments refuse to heed these recommendations, or even bother to review their own policies on how they're handling things is down to them, NOBODY else.
My opinion, fwiw, is that this is an abdication of public health responsibility that, as usual, affects
Read 11 tweets
Couldn't clip the whole thing, but anyone doubting the impact of #LongCovidKids just needs to listen to how brave Freya is, but also how sad 💔
Heartbreaking. We need to do so much more.
Thanks @jamiecoulsontv and @BBCLookNorth for highlighting this incredibly important issue 🙏
Read 4 tweets
Akiko Iwasaki @VirusesImmunity erhĂ€lt Else Kröner Fresenius Preis fĂŒr Medizinische Forschung 2023!

Die Yale-Professorin Akiko Iwasaki erhĂ€lt am 5. Juni 2023 im Frankfurter Palmengarten den diesjĂ€hrigen Else Kröner Fresenius Preis


#LongCovid #MECFS #COVID19 #MECFSAwarenessDay
fĂŒr Medizinische Forschung dotiert mit 2,5 Millionen Euro, einen der weltweit höchstdotierten Forschungspreise im Bereich Medizin. Damit wĂŒrdigt die Else Kröner-Fresenius-Stiftung (EKFS) Iwasakis Forschungsarbeiten zur Immunantwort bei viralen Infektionen. Der Preis fördert zudem
Iwasakis Erforschung von postakuten Infektionssyndromen wie Long COVID und Myalgische Enzephalomyelitis/Chronisches Fatigue-Syndrom (ME/CFS). Die EKFS zeichnet damit Iwasakis bahnbrechendene BeitrĂ€ge zum Thema „Krankheiten von weltweiter Bedeutung“ aus. Im Mittelpunkt stehen
Read 8 tweets
„Fatigue bei Kindern: Werden Tausende ihrem Schicksal ĂŒberlassen?“

„Tragödie in deutschen Kinderzimmern: #Corona lĂ€sst die FĂ€lle von #MECFS unter Heranwachsenden stark steigen. Viele werden zu PflegefĂ€llen. Die Politik zögert.

Unsichtbar fĂŒr die Augen


#COVID19 #LongCovid Image
der Öffentlichkeit spielt sich in deutschen Kinderzimmern tagtĂ€glich eine Tragödie ab. Bereits vor der #Corona-Pandemie litten rund 40.000 Heranwachsende an ME/CFS. „Durch die Pandemie dĂŒrften es mindestens doppelt so viele sein“, sagt Elena Lierck. Elena Lierck ist Mutter eines
13 Jahre alten MÀdchens, Kalea, es leidet an dieser Erkrankung, die durch Virusinfektionen ausgelöst werden kann. Manche SchÀtzungen gehen von bis zu 150.000 [an ME/CFS erkrankten] MinderjÀhrigen aus. Wie viele tatsÀchlich betroffen sind, ist statistisch nicht erfasst.
Read 4 tweets
If you do one thing today, listen to cardiologist Dr Rae Duncan on #COVID19 #LongCovid &what Covid could be doing to our children.
It is heartfelt and genuine from someone who has seen the devastating effects of long Covid.
Excerpts below.
via @YouTube
She details that prior to the pandemic the average age of referrals to her cardiology clinic was aged 55-80yrs.
Now it is 16-40yrs
Now at least 50% are long Covid with cardiovascular symptoms.
What she says about these patients is utterly heartbreaking.
It mirrors what I see.
Some cannot stand up due to severe #POTS
Some are in wheelchairs
Some are in bed 23 hours a day with only 15 minutes where they can speak
#LongCovid
Read 26 tweets
COVID leads to Long COVID. We know the more reinfections someone has, the higher the odds of long-term persistence & organ damage.

Why is the government still pursuing a pro-infection policy that exposes millions of children to repeat infections?

#LongCovidKids
#LongCovid
Research has proven that clean indoor air promotes good health and a better education.

We need updated standards that meet the demand COVID imposes. Protecting children in schools protects the entire community from the in-school transmission of many diseases, not just COVID. Image
Updating HVAC to monitor CO2 and automatically increase ventilation when CO2 level goes above 600 ppm and filtration that removes 99% of pathogens is the most important investment that we can make. Creating a society that thrives, extending quality of life years or decades.
Read 9 tweets
Es wird zunehmend ĂŒber #SARSCoV2-Omicron-Reinfektionen innerhalb kurzer ZeitrĂ€ume berichtet. Die Daten dieser Studie aus đŸ‡©đŸ‡Ș, bei der Speichel- und Plasma-Antikörperspiegel bei Kindern und Jugendlichen nach PrimĂ€rinfektion mit #Omicron-Varianten untersucht wurden,


#COVID19 #XBB Image
legen nahe, dass dies durch eine schwache humorale Immunantwort auf Omicron erklÀrt werden könnte. Im Gegensatz zu den PrÀ-Omicron-Varianten löste eine primÀre Omicron-Infektion nur eine schwache IgG-Antikörperreaktion aus, was möglicherweise zu einer unzureichenden Image
InfektionsprĂ€vention durch Speichel-IgG fĂŒhrte. Die beobachtete Neutralisierungsflucht von Omicron-Varianten ist möglicherweise eher auf das Fehlen von Antikörpern als auf eine geringere BindungsaffinitĂ€t zurĂŒckzufĂŒhren. Infolgedessen könnten SARS-CoV-2-Erstinfektionen mit der Image
Read 4 tweets
Going to ask the obvious question & there's an obvious answer.
Why aren't majority of public #LongCovid clinics in #Ireland prescribing medications to manage patient's symptoms & improve quality of life? Uncontroversial meds eg low dose amytryptyline for pain, melatonin etc đŸ€”đŸ€«
These meds have been used for a long time to manage these symptoms.GPs prescribe them every dy for these symptoms.Yet in a specialised clinic FOR LC, majority of ppl getting nothing
..could it be because some of those who'd be writing these scripts aren't convinced LCs physical?
Please RT.
There should be no tolerance for allowing ppl who have outdated biased views on post viral illnesses like ME to be treating very ill & often already medically traumatised #LongCovid patients. The evidence is there. LC is a physical condition. ME also. Not tolerance!
Read 5 tweets

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