Discover and read the best of Twitter Threads about #Lupus

Most recents (11)

1. This is a very useful thread #MedTwitter because it tracks common reasoning errors that lead doctors to readily accept psychosomatic dx for #MEcfs and other contested conditions like #EhlersDanlos, #mito, #dysautonomia, #LymeDisease, etc.
2. Start with the duty that defines your profession @strauss_matt - to ensure that every patient with a need for med care (medical testing, treatment, or support) receives it when she seeks it from you. Mistaken psychosomatic dx violates that duty in every case where it occurs.
3. No doctor should have to be told to err on the side of medical caution. Your job requires (a) humility about the limits of dx science and (b) historical awareness of immense suffering caused by psychological explanations for #MS #epilepsy #PepticUlcer #Parkinsons #lupus etc.
Read 8 tweets
🚨🚨The lies about the Trump Administration wanting to #ProtectOurCare stop TODAY! The dismantling of the law of the land has been going on since day 1 of this Administration to remove protections for 130M w/#PreExistingConditions

(THREAD) 1/
After failing to repeal the #ACA in Congress in 2017, in 2/2018, 18 @GOP AG's & 2 GOP Governors Filed a Lawsuit to Repeal the #ACA in the U.S. Northern District of TX. 2/
.@GOP officials claim since #ACA’s individual mandate fine was repealed in 2017 tax law, the mandate can no longer be considered a “tax.” b/c of this change, they argue the mandate is now unconstitutional & the entire ACA must be struck down.

These are their names. 3/
Read 13 tweets
I think you've once heard of a disease by the name 'Lupus' This being #LupusAwarenessMonth, Here are some facts just to help you understand about #Lupus. Go through it and please Retweet,

THREAD!
#Lupus is a systemic autoimmune disease that can damage any part of the body. The body's immune system mistakes the healthy cells and tissues as foreign and starts to attack them. It is a chronic disease, meaning once you develop it, you'll have lupus for the rest of your life.
There are around 4 types of Lupus namely, Systemic Lupus Erythematosus(SLE)which affects all systems, Discoid L.E whose symptoms only affect the skin, Drug induced due to a reaction to some drugs and finally Neonatal Lupus(Born from a mother with it)

#Lupus #LupusAwarenessMonth
Read 14 tweets
There is so much to unpack about gender and #chronicillness, I barely know where to begin. But let's give it a go. Data THREAD first, personal experiences second. (1/9) #millionsmissingspeakout #pwME @MEActNet
Up until very recently, the majority of medical research has been performed on men. It used to be against the law to include most women in clinical trials. Even after that law was overturned, a second had to be enacted requiring we be included. #pwME (2/9) tinyurl.com/y35rtwzv
The difference in the way women present symptoms and the ignorance around this kills.
When women have heart attacks, for example, the typical symptoms veer sharply from what med students learned from their textbooks. (3/9) #millionsmissingspeakout #pwME psmag.com/social-justice…
Read 9 tweets
👋🏽It's May so *clears throat* lllllllleeet's get ready to #LupusAwarenessMonth

If all goes as planned (spoiler: there is no actual fucking plan) you're gonna learn something you didn't know April 30th about ✨the lupus life✨
For no reason other than I spent the day in this l'il space age container doing a pulmonary function test 🧐jealous? Let's kick it off with LUNGS:

(💜 Also fact, purple is the color o' #Lupus)
(💜If you have had Lupus lung experience, please, tell the kids how it feels)
DYK 🌞&💡are pretty damn dangerous to about 1 million Americans who have Lupus? #ThisIsLupus #LupusAwarenessMonth #LupusChat #LupusLiving
(2)
Read 8 tweets
💥 Hydroxychloroquine - is an
Anti-malarial drug that also has immunomodulatory properties
⚡️It is used to Rx auto-immune conditions
⚡️The origin and history of this drug is as fascinating as it’s benefits
1/
@RenalFellowNtwk
#Lupus
#medtwitter
💥 Quinine was 1st found in the bark of the ‘Cinchona’ tree by the Inca in Peru to Rx ‘shivering’
⚡️It is believed that the tree got its name ‘Cinchona’ after it was used to treat the ‘Countess of Chinchon’ for a febrile illness in the 1630s
2/
💥 In the early days, the Cinchona bark tree powder was called the ‘Jesuits Powder’ (and not Quinine)
⚡️However, this 👆🏽is why side effects from quinine - such as tinnitus, headaches and poor vision are referred to as ‘Cinchonism’
3/
Read 19 tweets
Here's my latest update to my collection of active Twitter #Disability & #ChronicIllness Hashtags - previous update 12.13.18.

Please share it. Thank you! :-) Light blue sand background has the # drawn in the sand to the right. The left side is blank. <br />
<br />
At the bottom of the picture, text reads
Portable PDF version will appear on my Kofi in the next day or so.

Link: ko-fi.com/TinuWrites
HASHTAGS FOR PERSONAL NARRATIVES

These hashtags are for sharing your stories & experiences. Also helpful for crowdsourcing solutions.

#InvisibleIllness
#MySpoons
#MyPainDay
#ShareOurPain
#ShareOurStories
#SpoonieStories
Read 45 tweets
Here's my lastest update Twitter #Disability & #ChronicIllness Hashtags - previous update 10.17.18

Please share it.
I'll have a PDF version of this for download on my Ko-fi by this time tomorrow. Link at the end.
HASHTAGS FOR PERSONAL NARRATIVES

These hashtags are for sharing your stories & experiences. Also good for crowdsourcing solutions.

#InvisibleIllness
#MySpoons
#MyPainDay
#ShareOurPain
#ShareOurStories
#SpoonieStories
Read 29 tweets
Given food that had cheese in it on Thurs afternoon. Thought I noted the taste but told myself no, b/c restaurant made it clear no dairy. Late Friday night started having problems breathing. Now (Sat) intermittently gasping like a fish on dry land.
This is a delayed Type IV hypersensitivity reaction, say the interwebs. When you get a reaction about 48 hrs after the 'initial insult'. It's slow b/c it requires replication of T cells that have an antigen to one of that food's proteins on their surface.
This is similar to what happens in #celiac. It's also possible for the response to come from basophils or eosinophils. Sometimes it's IgE-based, sometimes it's not. It appears we know little, or I feel there'd be sub-classifications for the reaction types.
Read 12 tweets
.@SarahbaxterSTM's argues that #fibromyalgia, #mecfs, #lupus, #depression, self-harming and #anorexia are caused by female ambition and fragility.

What's c. 1880 is new again.

thetimes.co.uk/article/kirsty…
This is just so silly. In the 19th century, there was a panic in the medical profession (and among social commentators) about women becoming ill with neurological and "nervous" conditions because they were overworking their brains/nerves, which were naturally weaker than men's.
This “fact” was used to bolster the argument in favor of stopping women's formal education after age 16 and most certainly not letting them enroll in university.
Read 26 tweets
On 7/27/17, the day of the #SkinnyRepeal Vote-A-Rama, I went to DC to meet with any Senate office that would listen to my healthcare story. I was terrified of #ACA repeal.

I had 8 spontaneous meetings that day.

At 515pmET I met w/@SenJohnMcCain Legislative Assistant. 1/5
@SenJohnMcCain's LA began to cry when I told her I had #Lupus (turned out her friend has it). She apologized & explained her friend had to move from DC, to a climate more conducive to the disease. But now she didn't have the same care. So I provided resources to help. 2/5
I was grateful I could help. I asked her to please tell @SenJohnMcCain to vote no on repeal, enhancing #ACA would be more beneficial for everyone. She would pass along my message. I left his office, got on a train back home & felt I did everything I could to stop repeal. 3/5
Read 5 tweets

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