Discover and read the best of Twitter Threads about #Lymphoedema

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Today March 6, World #Lymphoedema Awareness Day. Whilst there's rightly growing support for care for cancer-caused lymphoedema; sepsis, infection & trauma-caused lymphoedema (mostly affecting Blak & Pasifika communities) is completely sidelined from Aust care pathways /1 of 10
Without taking away the necessary support cancer survivors get, @Mark_Butler_MP & @PictonChris can do so much more to provide @SAHealth & @MedicareGovAu benefits to support preventative care, for a disease that affects over 70% of Australians who survive physical trauma... /2
The denial of care for my own lymphoedema since 1998, resulted in massive ongoing health effects. 28 further sepsis/cellulitis episodes, including 20 high dependency hospitalisations. It has shut me out of the workforce, & robbed me of the best years of my work & life. /3
Read 11 tweets
@lymphsupport @Lymphwhatoedema @OxfordOLP and all my #Lymphie friends, to mark #LymphoedemaAwareness week, a question I’ve been meaning to ask for years...
SHORT THREAD
In the months prior to confirmation of my BC-related UL #Lymphoedema, I noticed on the inside ... 1/3
... of my wrist and up my forearm a white webby pattern raised up fm beneath the skin (not itchy or painful). Everyone seemed on lookout for oedematous swelling (which wasn’t apparent at that time, as it was only just starting to come and go), so those I showed it to... 2/3
... didn’t think it was anything to worry about. But with hindsight, since my UL #lymphoedema progressed and was confirmed, I’ve often wondered, was that raised white web the first sign of #lymph channels under strain? @lymphsupport Don’t suppose you could ask the Prof? 3/3
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