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A reminder for tonight’s #MEAwarenessHour (22 March, 8pm GMT):
We and @StripyLightCIC have done a guide for MPs, detailing how to advocate for severe ME patients who are hospitalised. The guide will be available online for anyone to share – link to follow #MPDoYourJob4ME 1/3
We and @StripyLightCIC have done a guide for MPs, detailing how to advocate for severe ME patients who are hospitalised. The guide will be available online for anyone to share – link to follow #MPDoYourJob4ME 1/3
2/3 We want as many people as possible during ME Awareness Hour to tweet the link to the guide, tagging their MP in it and using the hashtag #MPDoYourJob4ME. We need to tell MPs why it’s so important they read and use this.
3/3 With the APPG on ME’s meeting postponed, it’s even more important that we, the community, take action ourselves. So, please get involved if you have the spoons – or ask someone to, on your behalf #MPDoYourJob4ME
A thread for #MEAwarenessHour.
The Chronic Collaboration has been working with @StripyLightCIC and @arisonsned on a guide for MPs to advocate on behalf of #SevereME patients. We're pleased to say that this will be out next Wednesday. BUT - we want everyone to be involved 1/
The Chronic Collaboration has been working with @StripyLightCIC and @arisonsned on a guide for MPs to advocate on behalf of #SevereME patients. We're pleased to say that this will be out next Wednesday. BUT - we want everyone to be involved 1/
2/ Next Wednesday during #MEAwarenessHour we'll have a online version of the guide that everyone can see. We want people to tweet their MPs, sharing the guide with them & telling them why it's so important. We have a new hashtag for this: #MPDoYourJob4ME. But that's not all
3/ We'll be providing the APPG on ME with a copy of the #SevereME advocacy guide for it to present to it's AGM next Tuesday, 21 March. So - next week's #MEAwarenessHour will be big. Please get involved as Alice, Sami, Louise & so many more need us.
But that's still not all.
But that's still not all.
