Discover and read the best of Twitter Threads about #MedTraumaChat

Most recents (24)

Here’s my latest update to the list of Twitter #Disability & #ChronicIllness Hashtags.

- previous update 02.24.19 -

Please share it! Thank you. :-)

@ImageAltText Graffiti background. Foreground in white letters on a  red background to the left reads “Twitter Disability and Chronic Illness Hashtags”
There will be a PDF version up for download on my Ko-fi, likely tomorrow morning. The link is at the end.
Hashtags For Personal Narratives.

These hashtags are for sharing your stories & experiences. Also good for crowdsourcing solutions.

#InvisibleIllness
#MySpoons
#MyPainDay
#ShareOurPain
#ShareOurStories
#SpoonieStories
Read 58 tweets
Here's my latest update to my collection of active Twitter #Disability & #ChronicIllness Hashtags - previous update 12.13.18.

Please share it. Thank you! :-) Light blue sand background has the # drawn in the sand to the right. The left side is blank. <br />
<br />
At the bottom of the picture, text reads
Portable PDF version will appear on my Kofi in the next day or so.

Link: ko-fi.com/TinuWrites
HASHTAGS FOR PERSONAL NARRATIVES

These hashtags are for sharing your stories & experiences. Also helpful for crowdsourcing solutions.

#InvisibleIllness
#MySpoons
#MyPainDay
#ShareOurPain
#ShareOurStories
#SpoonieStories
Read 45 tweets
Here's my lastest update Twitter #Disability & #ChronicIllness Hashtags - previous update 10.17.18

Please share it.
I'll have a PDF version of this for download on my Ko-fi by this time tomorrow. Link at the end.
HASHTAGS FOR PERSONAL NARRATIVES

These hashtags are for sharing your stories & experiences. Also good for crowdsourcing solutions.

#InvisibleIllness
#MySpoons
#MyPainDay
#ShareOurPain
#ShareOurStories
#SpoonieStories
Read 29 tweets
A6. Twitter, despite some people's belief that #ChronicPain can be cured by ridiculous things, is a wonderful place to find and participate in community. #LupusChat
A6. Some favorite hashtags and Twitter chats, then I'll leave a link to the last time I updated my list.

Chats

#SpoonieChat
#MedTraumaChat
#LupusChat of course
#CripLit
#CripTheVote
Read 3 tweets
A4. Being overweight. It’s easy for doctors to blame everything on that instead of treat you.

#MedTraumaChat
A4. It’s easy for them to say you’re gaining weight because they think that’s what fat people do.

But if people gained weight indefinitely, forever, we’d all the several thousand pounds.

#MedTraumaChat
A4. Why can’t they understand that we know what can make us gain extra weight, or more weight than usual, and what won’t? #MedTraumaChat
Read 5 tweets
A3. I was living in Vegas when my back pain suddenly got worse after a high-stress event.

I’d been pushing myself for weeks & didn’t realize that the new pain was different.
#MedTraumaChat
A3. I went to the ER. They prescribed me Percocet and Flexiril over my objections. I was paying cash and had no real alternatives.
A3. Long story short, I was on this combo of drugs for a year. I was in kind of a stupor and gained 100 pounds.
#MedTraumaChat
Read 6 tweets
A2. Lately I haven’t had any outlandish reactions.

At my last doctor, the main issue has been they don’t believe me about Gabapentin causing weight gain. #MedTraumaChat
A2. Yet every time I wean off Gabapentin due to not being able to afford the copay for refills, I lose weight. #MedTraumaChat
A2. They say extra weight contributes to my pain - but the weight gain came after the pain.

And when something the prescribe makes it worse they won’t listen.

#MedTraumaChat
Read 3 tweets
A1. It’s weird because the place I’ve received the best pharmaceutical care (apart from the lines) is a clinic that has a program for people with low/no income.

#MedTraumaChat
A1 Only because my experience is that care via charitable/public health institutions is usually worse.
A1. Every new med I’ve been on, the doctor or nurse practitioner went over how often to take it and the side effects.

#MedTraumaChat
Read 7 tweets
A5. From decades of activism through my other identities & my cultural background, it’s easier for me to see how everything is related.

Illnesses that are portrayed in media anywhere in the ballpark of properly get attention & research.
#MedTraumaChat
A5. There’s so much silence around #cancer that we only see one small sliver on tv.

And that one small sliver tends to correspond to the outsider view people have.
#MedTraumaChat
A5. Invisible disabilities have almost zero visibility. And when we tell the stories ourselves & via insiders like with @jenbrea in #Unrest we get accurate narratives that illuminate.

#MedTraumaChat
Read 7 tweets
Updating Twitter disability hashtag thread.

@AllisonR has educated me that I should use Sentence Case for #Accessibility. Graphic reads: # symbol followed by the word Hashtag in white lettering on a blue background.
I have #brainfog so I know I missed someone. Please add your favorite resources as a reply.
Do you want to share your disability experience with others? Try these hashtags.

Amplifying stories

#InvisibleIllness
#MySpoons
#MyPainDay
#ShareOurPain
#ShareOurStories
#SpoonieStories
Read 16 tweets
A6c. Yes, definitely there's a racial aspect. I've been profiled at hospitals as a drug addict too many times. Refused treatment. Given the wrong treatment. Mistreated before surgeries.

Not enough room to list the indignities.
#medtraumachat
A6c. Occasionally welath privilege or class privilege or the fact that I sound "respectable" or know who to harass has been a partial shield.

But the extra hoops I have to jump through are thefts if my time & energy. #medtraumachat
A6c. I mean if all things? A drug addict? Me. Who quits things like coffee or soda or meat or salt for years, just to see how I feel.

It makes my friends laugh because I wouldn't even try weed until I was 35. #medtraumachat
Read 7 tweets
A6a. Yes. Doctors think I can handle more pain because "women can undergo natural childbirth."

[insert Nah cat gif here!]
#medtraumachat
A6a. First, I haven't. B- Childbirth isn't endless #ChronicPain that has no predictable end. #medtraumachat
A6a. Yes, I think there is a physiological aspect.

The reason I declined spinal surgery in the 90s isn't that the odds were 50/40/10 that my pain would get better, stay the same or get worse. #medtraumachat
Read 4 tweets
A5. Yes I believe they are being conflated.

This is a 2005 narrative, shamelessly propped up in newspaper, TV & film media. #MedTraumaChat
A5. 15 years ago, sure ERs were more liberal with pain med scripts than they should have been.

Rich people who could pay off doctors too. But it's 2018. Most deaths are due to heroin and/ or pills ordered online laced with fentanyl. #MedTraumaChat
A5. But let's say they were correct. Why would restricting pills production and prescriptions still cause deaths from this so-called #opioidcrisis to rise? #MedTraumaChat
Read 7 tweets
A3. No. I even had to come up with the idea of Celebrex myself. #MedTraumaChat
A3. The pill I was taking let me work. It wasn't fully relieving my pain.

But it allowed me to get out of bed at 9 instead of noon. It took the pain down to a full roar.

I was on something stronger before that. But I couldn't think straight. #MedTraumaChat
A3. About a decade before they switched me to a mild not-truly-opioid, before the pain increased? I was on Celebrex. I reacted to it as a slight mood elevator. #MedTraumaChat
Read 4 tweets
A2.

I'm on Celebrex. It's killing my liver & with a ridiculous cocktail of other stuff it barely gives me 3 hours if wirk
#MedTraumaChat
A2. I don't go to the ER when I'm going crazy with pain. I can't afford my MMJ prescription anymore. I can't risk getting it another way. #MedTraumaChat
A2. Basically I lie in bed rubbing Biofreeze pro into my skin under an electric blanket and cry when it's bad. #MedTraumaChat
Read 5 tweets
A1. The #opioidcrisis has completely disrupted my life.

#MedTraumaChat
A1. I finally had a program that worked, taking one opioid cousin, a pill for my nerves & a muscle relaxer plus weekly therapy.

I could work, had two businesses, employed people, hired freelancers, a social life, volunteered, travelled a lot. #MedTraumaChat
A1. Even before Obamacare when I had to pay cash, at least I had the option. It has gotten to the point now, after moving to TX, where I had to be drug tested every month for the mildest opioid-like pain pill. #MedTraumaChat
Read 4 tweets
A6.
✅ Legalize private consumption of marijuana for 21 and up, Nationwide.
✅ End opioid restrictions for #chronicpain, surgical & cancer patients

#MedTraumaChat
A6.
✅ Cover supplemental pain remedies - from heating pads to gels, it's expensive.
✅ Make disability approval automatic & move the bureaucracy to investigation of fraud instead of approval.

#MedTraumaChat
We subsidize corporate welfare with every paycheck.

The least big business can do is match the taxes going toward disability & food scarcity benefits.

#MedTraumaChat
Read 3 tweets
A5. A big one is that I'm in a legal grey area where MMJ is concerned. That I had a prescription in another state makes it technically legal for me to possess.

But not to use or buy. #MedTraumaChat
A5. Not much of a risk having it in my system - I've all but given up on ever getting the mild ass opioid cousin that allows me to work & I am physically unable to work a 9-to-5.
#MedTraumaChat
A5. The problem is buying my medication.

Especially anywhere locally.

Where my white friends & acquaintances have some level of protection, I would be taking a huge risk. To medicate myself.

#MedTraumaChat
Read 5 tweets
A3. Yes. If I ask not to be given pain meds (because I want to know a root cause) then no other option is presented.

If I ask for them I'm treated like an addict- by people who forget that addicts also need addiction treatment & so are ALSO patients. #MedTraumaChat
A3. People don't get how awful it is to be in pain 24 hours a day, every day. To not be able to sleep.

Or to be able to sleep but not get rest from sleep. Because pain.

#MedTraumaChat
A3. And to know that one little pill a day, or a joint is all that stands between you being in poverty & unable to earn a living? And a decent income.
#MedTraumaChat
Read 4 tweets
A2. Sometimes. My barrier is often cost.

But sometimes family comes through for me. #MedTraumaChat
A2. For example, my mother came home with this bottle of Biofreeze professional two weeks ago.
#MedTraumaChat Biofreeze professional
A2. I have tried so many things for the muscle pain, itching, and various other if my body being too hot and too cold at the same time.

With the exception of certain high CBD strains of MMJ, it's the best for all three of those. #MedTraumaChat
Read 4 tweets
Not being able to trust your doctor is it's own trauma, especially if you have to see them often.
Am I wrong #medtraumachat fam?!
*its! between brain fog and my autocorrect second-guessing me...
Read 3 tweets
#Disability twitter, #medtwitter , let us have a discussion about patients discussing #MedicalTrauma on here. A Thread:
#chronicillness #ChronicPain #Chroniclife #MedTraumaChat #Spoonie
2) Last night, a fellow advocate posted a very handy guide for HCPs & patients abt treating patients who are trauma survivors: Trauma Informed Care - Disclosures and Care Transitions healthasahumanright.wordpress.com/2018/08/23/tra… #medtwitter #Disability #chronicillness #medtraumachat #spoonie
3) It's a good resource for both #patients & HCPs, please read it if you have a moment.
This led to a helpful discussion about #MedicalTrauma between an HPC and the person who wrote this guide, who has had experiences with this,
#Disability #medtwitter #chronicillness #Spoonie
Read 13 tweets
A3. Just remembered another incident. A forced obgyn as a virgin, because they couldn't believe a black teenager with abdominal pain wouldn't be pregnant. #medtraumachat
A3. My father took me. And he didn't know about my childhood trauma. I couldn't tell him what happened. I was still in shock. I tried to go home straight after. #MedTraumaChat
A3. I later heard the doctor yelling at someone for ordering the exam cuz I was still ... intact. #medtraumachat
Read 3 tweets
A3. The last time it happened... I laughed at the absurdity and talked about it in a blog post.

It was a procedure where you get twilight meds, but I didn't... quite twilight?

#medtraumachat
A3. Weird thing is, I had to go back to the hospital for a related procedure, got the same folks. They messed up my twilight -again - but the 2nd time they gave me a Valium.
#medtraumachat
A3. They were much more polite & requested consent at each point. I wasn't handled roughly at all. #MedTraumaChat
Read 3 tweets

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