Discover and read the best of Twitter Threads about #MyE
Most recents (7)
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Some extracts from “The politics underpinning the neglect of people with ME/#CFS” which summarises her paper “Towards a critical psychology of #chronicfatiguesyndrome: #biopsychosocial narratives & UK welfare reform” by @JoElizaHunt
mecentraal.wordpress.com/2022/06/19/the…
#MEcfs #PwME
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Some extracts from “The politics underpinning the neglect of people with ME/#CFS” which summarises her paper “Towards a critical psychology of #chronicfatiguesyndrome: #biopsychosocial narratives & UK welfare reform” by @JoElizaHunt
mecentraal.wordpress.com/2022/06/19/the…
#MEcfs #PwME
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“The [#biopsychosocial] model has been used as psychosocial model, to re-frame chronic health conditions (particularly those surrounded by medical controversy or uncertainty) into psychosocial entities, allegedly amenable to psychosocial healthcare interventions (contd)”
#BPS
“The [#biopsychosocial] model has been used as psychosocial model, to re-frame chronic health conditions (particularly those surrounded by medical controversy or uncertainty) into psychosocial entities, allegedly amenable to psychosocial healthcare interventions (contd)”
#BPS
[Thread]
It's 3rd anniversary of our paper
"Monitoring treatment harm in #MyalgicEncephalomyelitis / #CFS: A freedom-of-information study of NHS specialist centres in England"
journals.sagepub.com/doi/abs/10.117…
Hopefully it will influence, among other things, #LongCovid clinics
#MEcfs
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It's 3rd anniversary of our paper
"Monitoring treatment harm in #MyalgicEncephalomyelitis / #CFS: A freedom-of-information study of NHS specialist centres in England"
journals.sagepub.com/doi/abs/10.117…
Hopefully it will influence, among other things, #LongCovid clinics
#MEcfs
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Summary article for laypeople:
"Trial By Error: NHS ME/CFS Clinics Lax on Treatment Harms, Study Finds" (June 2019)
virology.ws/2019/07/16/tri…
#GradedExerciseTherapy #GET #cognitivebehaviouraltherapy #CBT #MEcfs #CFS #MyalgicE #MyalgicEncephalomyelitis #ChronicFatigueSyndrome
Summary article for laypeople:
"Trial By Error: NHS ME/CFS Clinics Lax on Treatment Harms, Study Finds" (June 2019)
virology.ws/2019/07/16/tri…
#GradedExerciseTherapy #GET #cognitivebehaviouraltherapy #CBT #MEcfs #CFS #MyalgicE #MyalgicEncephalomyelitis #ChronicFatigueSyndrome
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I searched but couldn't find a legal copy online of "Monitoring treatment harm in #MyalgicE/#ChronicFatigueSyndrome ..." that others can access so I uploaded here researchgate.net/publication/33… what we submitted to the journal which is something we own the copyright on.
#MEcfs #CFS
I searched but couldn't find a legal copy online of "Monitoring treatment harm in #MyalgicE/#ChronicFatigueSyndrome ..." that others can access so I uploaded here researchgate.net/publication/33… what we submitted to the journal which is something we own the copyright on.
#MEcfs #CFS
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New Zealand:
“Scientists studying potential link between [#ChronicFatigueSyndrome] & #longCovid struggle for funding”
stuff.co.nz/national/healt…
On Prof Tate & his research team. He seems like the sort of scientist we really want in field.
#MEcfs #PwME #MyalgicE #CFS #CFSME
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New Zealand:
“Scientists studying potential link between [#ChronicFatigueSyndrome] & #longCovid struggle for funding”
stuff.co.nz/national/healt…
On Prof Tate & his research team. He seems like the sort of scientist we really want in field.
#MEcfs #PwME #MyalgicE #CFS #CFSME
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“A small Dunedin-based team of researchers are critical to
understanding fatigue disease in New Zealand, but they might not be
around in another year.”
#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #PostViralSyndrome #PVFS #LongCovid #MEcfs #CFS #PwME #PwLC #MyalgicE
“A small Dunedin-based team of researchers are critical to
understanding fatigue disease in New Zealand, but they might not be
around in another year.”
#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #PostViralSyndrome #PVFS #LongCovid #MEcfs #CFS #PwME #PwLC #MyalgicE
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“Emeritus Professor Warren Tate says it took two decades for #chronicfatiguesyndrome research to be taken seriously, yet after a decade of good work it is still a mission to secure funding.
As of this week, they still didn’t have the funding to continue in 2023”
#MEcfs #CFS
“Emeritus Professor Warren Tate says it took two decades for #chronicfatiguesyndrome research to be taken seriously, yet after a decade of good work it is still a mission to secure funding.
As of this week, they still didn’t have the funding to continue in 2023”
#MEcfs #CFS
[Thread]
"#MyalgicEncephalomyelitis/#ChronicFatigueSyndrome: Essentials of Diagnosis & Management" (from US ME/#CFS Clinician Coalition)
mayoclinicproceedings.org/article/S0025-…
"21 clinicians specializing in ME/CFS convened to discuss best clinical practices for adults affected by #MECFS"
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"#MyalgicEncephalomyelitis/#ChronicFatigueSyndrome: Essentials of Diagnosis & Management" (from US ME/#CFS Clinician Coalition)
mayoclinicproceedings.org/article/S0025-…
"21 clinicians specializing in ME/CFS convened to discuss best clinical practices for adults affected by #MECFS"
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"the United States and other governments as well as major health care organizations have recently withdrawn graded exercise and cognitive-behavioral therapy as the treatment of choice for patients with ME/#CFS
#ChronicFatigueSyndrome #MEcfs #MyalgicE #PwME #MyE #MEeps
"the United States and other governments as well as major health care organizations have recently withdrawn graded exercise and cognitive-behavioral therapy as the treatment of choice for patients with ME/#CFS
#ChronicFatigueSyndrome #MEcfs #MyalgicE #PwME #MyE #MEeps
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"There are many steps that clinicians can take to improve the health, function, & quality of life of those with ME/#CFS, including those in whom #MECFS develops after COVID-19"
#PostViralFatigueSyndrome #PostViralSyndrome #PVFS #LongCovid #Covidlonghaulers #PostCovidSyndrome
"There are many steps that clinicians can take to improve the health, function, & quality of life of those with ME/#CFS, including those in whom #MECFS develops after COVID-19"
#PostViralFatigueSyndrome #PostViralSyndrome #PVFS #LongCovid #Covidlonghaulers #PostCovidSyndrome
[Thread]
"No More Mr NICE Guy…" by Brian Hughes, a professor of psychology
thesciencebit.net/2020/11/21/no-…
An incisive blog that covers the NICE ME/#CFS guidelines, issues regarding trials of nonpharmacological interventions in general, appeals to authority, etc.
#MEcfs #MyalgicE
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"No More Mr NICE Guy…" by Brian Hughes, a professor of psychology
thesciencebit.net/2020/11/21/no-…
An incisive blog that covers the NICE ME/#CFS guidelines, issues regarding trials of nonpharmacological interventions in general, appeals to authority, etc.
#MEcfs #MyalgicE
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"The new [NICE] guidelines not only repudiate a heretofore favoured treatment approach for a particular illness, they also threaten to discredit an entire (albeit quirky) branch of medicine — and, for good measure, to cast clouds over significant swathes of psychology too"
"The new [NICE] guidelines not only repudiate a heretofore favoured treatment approach for a particular illness, they also threaten to discredit an entire (albeit quirky) branch of medicine — and, for good measure, to cast clouds over significant swathes of psychology too"
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"Here is an extract from expert testimony provided by Jonathan Edwards, professor emeritus of clinical medicine at University College London" [on the #PACETrial authors trying to justify their use of post-hoc criteria rather than their original criteria]
#MEcfs #CFS #CBT
"Here is an extract from expert testimony provided by Jonathan Edwards, professor emeritus of clinical medicine at University College London" [on the #PACETrial authors trying to justify their use of post-hoc criteria rather than their original criteria]
#MEcfs #CFS #CBT
Press Release from NICE about its new draft #MECFS guidelines that are out for consultation
meresearch.org.uk/nice-guideline…
“The draft guideline also highlights the importance of ensuring that people remain in their ‘energy envelope’ when undertaking activity of any kind”
#CFS
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meresearch.org.uk/nice-guideline…
“The draft guideline also highlights the importance of ensuring that people remain in their ‘energy envelope’ when undertaking activity of any kind”
#CFS
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Draft NICE guidance “recognizes that #MECFS is a complex, multi-system, chronic medical condition where there is no ‘one size fits all’ approach to managing symptoms,particularly where there is the potential for an intervention to benefit some people but cause harm in others”
Draft NICE guidance “recognizes that #MECFS is a complex, multi-system, chronic medical condition where there is no ‘one size fits all’ approach to managing symptoms,particularly where there is the potential for an intervention to benefit some people but cause harm in others”
Free full text:
"Differentiating Psychosomatic, Somatopsychic, Multisystem Illnesses and Medical Uncertainty" (Oct 2019)
mdpi.com/2227-9032/7/4/…
Includes discussion of ME/CFS
Summary from @MEAssociation
meassociation.org.uk/2019/10/mea-su…
#MUS #FND #MEcfs #CFS #MyalgicE #PwME #MyE
"Differentiating Psychosomatic, Somatopsychic, Multisystem Illnesses and Medical Uncertainty" (Oct 2019)
mdpi.com/2227-9032/7/4/…
Includes discussion of ME/CFS
Summary from @MEAssociation
meassociation.org.uk/2019/10/mea-su…
#MUS #FND #MEcfs #CFS #MyalgicE #PwME #MyE
