Discover and read the best of Twitter Threads about #NHSData

Most recents (4)

Finally, the #GoldacreReview is published! (During Parliamentary Easter holidays, mid-ping-pong on the #HealthAndCareBill...)

It's 221 pages - each PDF page is a double page spread - so this could be a lo-o-o-ong [Thread].

Here goes...
First point to note, in the Terms of Reference (p5), is that this is about "access to #NHSdata by #researchers, #commissioners, and #innovators" - i.e. #Planning and #CommercialReUse - so it is directly relevant to the operation of millions of people's #NationalDataOptOuts... Terms of reference for the review  1. How do we facilitate a
"185 wide-ranging recommendations for us to explore", says @sajidjavid (p6). Gulp! Time for some coffee...

"systems that ensure #underrepresented groups are well represented" may (partly) refer to this "landmark review", which got off to a slow start:

gov.uk/government/new… The far-reaching independent review into potential ethnic bi
Read 159 tweets
Yeah.. let's stop a while and look back at music legend 🙄Neil Young and the role of Laurel Canyon in the birth of the hippie movement .. what was really going on then? And what's he up to now?
Neil Young's longtime manager Elliot Roberts co-founded Asylum Records with David Geffen en.wikipedia.org/wiki/Elliot_Ro…

Blew my mind when I first learned about the military lab at Lookout Mountain , Laurel Canyon and its role in developing 60s and 70s culture...

Many of my heroes actually had other roles beneath the surface of what was/is served up to us..
slate.com/human-interest…
Read 21 tweets
There seemed to be some confusion about (the use of) words in @CommonsHealth Committee yesterday morning, so here's a [Thread] to try to clarify.

First "#commercial". It is of course the case that many parts of the #NHS use commercial providers, e.g. of software, whether that...
...is @Microsoft365 for word processing, spreadsheets & e-mail; or IT systems to handle patients' records in hospitals (e.g. @CernerUK) & General Practice (e.g. @TPP_SystmOne, @EMISHealth, @CegedimHS); or software to drive complicated equipment like #MRIscanners, etc.

This is...
..entirely normal use of #commercial software & software services, for which the #NHS body is the #DataController. Apart from when that software goes wrong, I don't believe many would have concerns about this.

Then there are #commercial providers of #NHS services, about which...
Read 13 tweets
DHSC's privacy notice for COVID testing has been updated to make it clear your result could be shared with police. gov.uk/government/pub… #covid19uk

Also PHE's #contacttracing privacy notice. contact-tracing.phe.gov.uk/help/privacy-n…

Recent regs. legislation.gov.uk/uksi/2020/1045…
HSJ says DHSC has agreed an MOU with police but I think that just tightens procedural compliance. hsj.co.uk/7028653.article #covid19uk #dataprotection

Sch 21 of the Coronavirus Act anticipated some sharing of results, even before new regs on self-isolation. legislation.gov.uk/ukpga/2020/7/s…
Apparently NHS Digital is the "national data guardian" now. Has anybody told the actual National Data Guardian? hsj.co.uk/7028653.article #covid19uk #NHSdata #datasharing
Read 4 tweets

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