Discover and read the best of Twitter Threads about #NIHRECOVER

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1st #NIHRECOVER adult cohort results are out today in @JAMA_current, proposing an expanded working definition of #LongCovid (aka post-acute sequelae of SARS-CoV-2 [PASC]). Led by @tthaweethai, this is a dense paper with a ton of results. Buckle up! 🧵
jamanetwork.com/journals/jama/…
#NIHRECOVER Adult is a cohort study of ~15k adults with/without #COVID, followed prospectively. They answer symptom surveys every 3 months and do additional tests yearly. 93% of cohort has been enrolled; this paper includes 9,764 participants. recovercovid.org
Main goal of this paper is to establish an expanded, working symptom-based definition of #LongCOVID for research purposes. Please note we do not propose this as a clinical definition right now pending further validation & refinement.
Read 24 tweets
My son Alex ran 18 miles today.

He had Long Covid in 2020, with severed POTS until he got an experimental stem cell transplant that fall. He had a headache for 7 straight months, a rhr of 125, couldn't walk half a mile.

Why isn't the #nihrecover trialing stem cells in LC?
He set a goal for himself of running the length of a marathon by age 22. He is almost there. He will not race in a marathon because of risk of reinvention around so many people.
I did not have the same treatment because we could not afford two. I chose him because he has his whole life ahead of him. I don't think it would work as well in older people due to the relative shortage of stem cells in the bone marrow.
Read 6 tweets

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