Discover and read the best of Twitter Threads about #Ostomy

Most recents (6)

@MondayNightIBD 1a.
Welcome to an extra spooky #MNIBD #Back2Basics
🎃👻🎃👻🎃👻🎃👻🎃👻🎃

@JosephHabibi_MD and I will be discussing common myths in #IBD and doing our best to debunk them. Topics include:

🎃 Diet and supplement myths
🎃 Pregnancy and fertility myths
🎃 More surprise myths🔮

@MondayNightIBD @JosephHabibi_MD @dunleavy_katie @RomyChamoun @SanjeevaniTomar @DSTEINGIMD @BeniwalPatelMD 1b.
Shout out 📣 to all of the amazing #IBD #PatientAdvocates who helped make this happen:

@aboutIBD @nataliesparacio @mustbthemusic @Empoweringpts9 @DrTiffTaft @GutlessGlamour @IBDPassport @ownyourcrohns @bottomlineibd @GIdietitian @snehadave98 @LoriPlung @Youcantmakethi4

@MondayNightIBD @JosephHabibi_MD @dunleavy_katie @RomyChamoun @SanjeevaniTomar @DSTEINGIMD @BeniwalPatelMD @aboutIBD @nataliesparacio @mustbthemusic @Empoweringpts9 @DrTiffTaft @GutlessGlamour @IBDPassport @ownyourcrohns @bottomlineibd @GIdietitian @snehadave98 @LoriPlung @Youcantmakethi4 @shaina_sekhri @LambergMorgan @goodmra1 @KrugCleveland @john_damianosMD @AustinChiangMD @DrsMeena 1c.
See if you can find all of the spooky #IBD words in our #MondayNightIBD word search 👇

🎃👻🎃👻🎃👻🎃👻🎃👻

Tina ✨ Own Your Crohn’s

@rebelliousgut @MondayNightIBD @southasianIBD @ibdesis @Empoweringpts9 @DCharabaty @crohnsbabble @LivingWithUmeed @vkckiranpullela @TheMaveilousGut @dunung_ruchita 1/ I'm Tina from 🇺🇸 co-founder of Team @ibdesis. We are proud to lead #PatientExperience on @MondayNightIBD to discuss specific aspects of #SouthAsianIBD experience. We hope to improve care & reduce disparities in our community around the 🌍 thru @southasianIBD. #MondayNightIBD

@rebelliousgut @MondayNightIBD @southasianIBD @ibdesis @Empoweringpts9 @DCharabaty @crohnsbabble @LivingWithUmeed @vkckiranpullela @TheMaveilousGut @dunung_ruchita 2/ Even though my dad suffered from #Crohns, when I presented with #IBS #constipation, #GERD, joint pains & eye issues as a child, no one made the connection or escalated it to a gastroenterologist. #MondayNightIBD #SouthAsianIBD

@rebelliousgut @MondayNightIBD @southasianIBD @ibdesis @Empoweringpts9 @DCharabaty @crohnsbabble @LivingWithUmeed @vkckiranpullela @TheMaveilousGut @dunung_ruchita 3/ When my dad passed from #CRC, my family went into poverty & couldn't afford health insurance. Though I was symptomatic as a child, I didn't have a #colonoscopy until 22 when I got my 1st job. That's when I received my very delayed #IBD diagnosis. #MondayNightIBD #SouthAsianIBD

Rameshwar Chaudhary

@LivingWithUmeed

@rebelliousgut @MondayNightIBD @southasianIBD @ibdesis @Empoweringpts9 @DCharabaty @ownyourcrohns @crohnsbabble @vkckiranpullela @TheMaveilousGut @dunung_ruchita Although I had the support of some friends & family, the taboo & lack of knowledge about #IBD meant not many knew how to support me. I found it difficult to educate loved ones & am thankful for more resources that are available now. #MondayNightIBD #SouthAsianIBD (1/ )

@rebelliousgut @MondayNightIBD @southasianIBD @ibdesis @Empoweringpts9 @DCharabaty @ownyourcrohns @crohnsbabble @vkckiranpullela @TheMaveilousGut @dunung_ruchita At the same time, I've also met people who couldn't understand how someone my age (17-23) could have such a #disability. The invisibility of #IBD added to this. As a result, my struggles with #IBD were downplayed, minimized & ignored. #MondayNightIBD #SouthAsianIBD (2/ )

@rebelliousgut @MondayNightIBD @southasianIBD @ibdesis @Empoweringpts9 @DCharabaty @ownyourcrohns @crohnsbabble @vkckiranpullela @TheMaveilousGut @dunung_ruchita Given the stigma around #digestive dx & #disability in #SouthAsian community, I felt like I had to make my condition as invisible as possible. These internalized social norms meant I also downplayed my UC to make others more comfortable. #MondayNightIBD #SouthAsianIBD (3/)

@rebelliousgut @MondayNightIBD @southasianIBD @ibdesis @Empoweringpts9 @DCharabaty @ownyourcrohns @LivingWithUmeed @vkckiranpullela @TheMaveilousGut @dunung_ruchita 1/ I'm Sharan from 🇬🇧, co-founder Team @ibdesis. We are proud to lead #PatientExperience on @mondaynightibd to discuss specific aspects of #SouthAsianIBD experience. We hope to improve care for our community around the 🌍. #MondayNightIBD

@rebelliousgut @MondayNightIBD @southasianIBD @ibdesis @Empoweringpts9 @DCharabaty @ownyourcrohns @LivingWithUmeed @vkckiranpullela @TheMaveilousGut @dunung_ruchita 2/ My initial diagnosis came after months of going back & forth w my GP who was reluctant to refer to a specialist because they were certain that my symptoms couldn't be due to #IBD. In their own words, "#SouthAsians don't get IBD" #MondayNightIBD #SouthAsianIBD

@rebelliousgut @MondayNightIBD @southasianIBD @ibdesis @Empoweringpts9 @DCharabaty @ownyourcrohns @LivingWithUmeed @vkckiranpullela @TheMaveilousGut @dunung_ruchita 3/ This delay led to extreme weight loss and worsening of symptoms to the point where I was unable to get myself out of bed. I was admitted into hospital with my weight down to 28kgs, from 38kgs just months before.
#MondayNightIBD #SouthAsianIBD

@IBDimmunology @DCharabaty @P_DeepakIBDMD @drvishal82 @MondayNightIBD @southasianIBD @nehagastrord @ibdesis @ownyourcrohns @FITWITMD @crohnsbabble @rebelliousgut @drsumitbhatia @DrAnjaliPandit @deepakjgastro @shivaramsingh @drroshanag @stevenbollipo @drkeithsiau @doctorboletoh @Rajatgastro @KailashKolhe @DrAnuraagJ @realTBpeople @anupam_gastro @UjjwalSonika @DrAshokGastro @vandana_midha @ashok_doctor @drakashmathur @Khanna_S @miNitinjagtap @jalpa_devi @DharJahnvi @SamirGadepalli @DrSamirAShah1 @SunandaKaneMD @UmaMahadevanIBD @BilalMohammadMD @AsadurRahman87 @ShimaghavimiMD @ibdmd_kaur @IBDMD @GKochharMD @KofiClarkeMD @JHashashMD @shanilkadir Safe ✈️ @IBDimmunology
08: 00 hrs 🇬🇧 🕰
A9/1
⭕️ Refractory Perianal #Fistula in #CD

A clear unmet need in #IBD as we set out in the #ECCO workshop pubmed.ncbi.nlm.nih.gov/26826183/

#MondayNightIBD

@IBDimmunology @DCharabaty @P_DeepakIBDMD @drvishal82 @MondayNightIBD @southasianIBD @nehagastrord @ibdesis @ownyourcrohns @FITWITMD @crohnsbabble @rebelliousgut @drsumitbhatia @DrAnjaliPandit @deepakjgastro @shivaramsingh @drroshanag @stevenbollipo @drkeithsiau @doctorboletoh @Rajatgastro @KailashKolhe @DrAnuraagJ @realTBpeople @anupam_gastro @UjjwalSonika @DrAshokGastro @vandana_midha @ashok_doctor @drakashmathur @Khanna_S @miNitinjagtap @jalpa_devi @DharJahnvi @SamirGadepalli @DrSamirAShah1 @SunandaKaneMD @UmaMahadevanIBD @BilalMohammadMD @AsadurRahman87 @ShimaghavimiMD @ibdmd_kaur @IBDMD @GKochharMD @KofiClarkeMD @JHashashMD @shanilkadir A 9/2
Also highlighted by @LindAlliance as one of the top 10 priorities
led in 🇬🇧 by the brilliant @DrAilsaHart
pubmed.ncbi.nlm.nih.gov/27506537/

#MondayNightIBD

@IBDimmunology @DCharabaty @P_DeepakIBDMD @drvishal82 @MondayNightIBD @southasianIBD @nehagastrord @ibdesis @ownyourcrohns @FITWITMD @crohnsbabble @rebelliousgut @drsumitbhatia @DrAnjaliPandit @deepakjgastro @shivaramsingh @drroshanag @stevenbollipo @drkeithsiau @doctorboletoh @Rajatgastro @KailashKolhe @DrAnuraagJ @realTBpeople @anupam_gastro @UjjwalSonika @DrAshokGastro @vandana_midha @ashok_doctor @drakashmathur @Khanna_S @miNitinjagtap @jalpa_devi @DharJahnvi @SamirGadepalli @DrSamirAShah1 @SunandaKaneMD @UmaMahadevanIBD @BilalMohammadMD @AsadurRahman87 @ShimaghavimiMD @ibdmd_kaur @IBDMD @GKochharMD @KofiClarkeMD @JHashashMD @shanilkadir @LindAlliance A 9/3
In 2022 are we addressing this unmet need in #CD #fistula
and help patients as in our vignette 🤔
@Jonathansegal85 @charlie_lees
pubmed.ncbi.nlm.nih.gov/34917313/
#MondayNightIBD

Empowering Patients,LLC • Alison

@Empoweringpts9

🗣Not having a colon doesn’t change immune suppression.

❌These ideas do not correlate until another ingredient is added. Stop spreading this myth!
#ostomy #jpouch #colectomy

https://twitter.com/PhilFleshnerMD/status/1239771322848165896

More info from @SchwartzbergMD expressing ❌connection (unless underlying conditions/meds) between *just* colectomy and immune suppression. 👇🏽

https://twitter.com/schwartzbergmd/status/1239943427124604929?s=21

Here’s more information about susceptibility & #ostomy/#Jpouch from @HolubarStefan. Ostomates (or jpouchers) don’t have a lower immune system *just* because they have an ostomy, BUT it’s imperative to keep strict hygiene. #IPAA

https://twitter.com/holubarstefan/status/1240015394674483200?s=21

https://t.co/bkeqMkcYRv