Discover and read the best of Twitter Threads about #PACEtrial

Most recents (2)

To @guardian,
You’ve got it very wrong this time. In publishing this tired, self-justifying defence of the #PACEtrial—and predictable attacks on patients and others who question this research—you are being used by the PACE authors in a last-ditch……
…attempt to prevent their reputations from being washed away by the rising tide of research showing the many flaws in theirs. Why are you giving a platform to a promoter of discredited and harmful treatments for some of the sickest people in the world? Are you unaware…
…that the #PACEtrial is now used in biostatistics courses as a case study in how not to design a medical trial? PACE is not a story about harassment of scientists. It’s a story about junk science and the replication crisis in psychology. PACE is eminence-based not…
Read 17 tweets
This video has had nearly 30K views 👍🏻
In it @JessicaOOTC describes her experience of being locked in a psych ward after being diagnosed with #MyalgicE by the Bristol centre

@MEActNetUK #MEAwarenessMonth #pwme #PACETrial #stopGET #MillionsMissing
Despite(/because) her ME diagnosis they interpreted her low weight as anorexia. The gut/digestive issues as a result of ME go ignored. She isn’t the only #pwme to have experienced this. It is particularly tricky as an advocacy issue if people are sectioned for ‘anorexia’ not ME
It is a high priority for Dr education and I wonder if for new #NICEguidelines we need gut issues included as core to ME, rather than the current wording of IBS as a comorbidity issue?
Locking people in psych wards for this has to stop!
@exceedhergrasp1 @jenbrea @keithgeraghty
Read 7 tweets

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