Discover and read the best of Twitter Threads about #PROMs

Most recents (3)

“This orchestra represents the artistic voice and soul of Ukraine. We are determined to show Putin that he cannot erase Ukrainian culture. Art speaks more powerfully and louder than any human being. We will not be silenced” thetimes.co.uk/article/the-uk…
A 74-strong band of elite Ukrainian musicians have assembled in Poland for a world tour.

Before the group’s #Proms debut, Rebecca Franks (@Becca_JF21) meets them in Warsaw
This is the Ukrainian Freedom Orchestra (UFO) and this summer it will bring its message of hope to the West, drawing fresh attention to the devastating war in its players’ home country Image
Read 13 tweets
A long thread, incorporating my 6,000th tweet! Often asked, so here's my attempt to summarise what I have learned, and believe in the world of #PROMs

With so much use of, desire for and great work in the field why is it so hard and isn't working as it should/ could/ would...?
Firstly stop thinking of tools and focus on logistics, engagement, and embedding an organisation wide culture of collecting #PROMs and #PREMs
This was our starting point 7 years ago at @NorthumbriaOrth - using paper & Excel across 5 hospital sites. #Teamwork
Many parties are already collecting #PROMs - particularly in the world of #orthopaedics - but as highlighted by the @BritOrthopaedic article on @SWORDResearchUK @NetworkProms EMPROVE audit, there is no consensus on what, when or how.
Read 22 tweets
Measuring NEW #disability in ppl living w #LongCOVID 🧵
👉 Symptoms & Quality of life assessed by patient reported outcome measures #PROMs
👉 among 325 ppl in UK who survived hospital admission w #COVID19
👉 at least 3 month follow-up after discharge
assets.publishing.service.gov.uk/government/upl…
1️⃣ Primary outcome = self reported recovery at least 3 months after initial COVID-19 symptoms

2️⃣ Secondary outcomes =
👉persistent symptoms
👉breathlessness (MRC dyspnoea scale)
👉new disability (Washington Group Short Set)
👉Quality of life (EQ-5D-5L)
905 potential participants were approached, with a total of 325 (36%) consenting, replying, with symptoms >3months, and completed questionnaires

Median follow up time after onset of symptoms was 7 months (therefore meeting time criteria of >12 weeks to identify Long COVID)
Read 13 tweets

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