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.@canada_pain @NitaGhei & I direct @headsUPmigraine. I think your report is the most successful thing I've seen patient advocates do in response to rx limits. I would love to know more. I've been home w/ daily migraine for 15 yrs, so I work REALLY slowly. No rush in reply needed!
I've been a p/t Canadian since '03, but my advocacy is focused in the States. Nita & I are both academics & we're writing a paper to ground our advocacy in peer-reviewed research. I think we need stats to answer stats, since saying "This policy is killing people" hasn't worked.
What survey platform did you use? Did it cost you a lot of loonies? Did you use the same 1 for your Covid & CP surveys? If we did a US CP survey, could we use yours as a basis? We would credit you, of course, & direct any press or legislative attention we got to your work too.
