Discover and read the best of Twitter Threads about #PostViralIllness
Most recents (7)
𧾠âWe now need to explore whether the lack of implementation is due to a lack of commissioning of services, or whether it represents centres choosing not to follow the guidance & use alternative strategies without evidence base.â @DocStrain
#MECFS #NHS
thetimes.co.uk/article/thousaâŚ
#MECFS #NHS
thetimes.co.uk/article/thousaâŚ
âIt is important that decisive action is taken to address these issues and ensure that #MECFS patients receive the appropriate care they deserve,
@SonyaChowdhury
@actionforme
#PostViralIllness #Disability #Health
@SonyaChowdhury
@actionforme
#PostViralIllness #Disability #Health
With > 2 million people living with Long Covid, and > 50% said to meet the criteria for #MECFS and therefore @NICEComms guidelines communities must stand together to ensure safe rehabilitation & care.
The full article can be seen here.
Thanks @ABrokenBattery
#LongCovidKids
The full article can be seen here.
Thanks @ABrokenBattery
#LongCovidKids
đ§ľ
"What Primary Care Practitioners Need to Know about the New NICE Guideline for #MyalgicEncephalomyelitis/#ChronicFatigueSyndrome in Adults" (Dec 2022)
2 of 4 authors are MDs
Free
mdpi.com/2227-9032/10/1âŚ
I thought this was very good. Will post extracts.
#MEcfs #CFS #MedEd
1/
"What Primary Care Practitioners Need to Know about the New NICE Guideline for #MyalgicEncephalomyelitis/#ChronicFatigueSyndrome in Adults" (Dec 2022)
2 of 4 authors are MDs
Free
mdpi.com/2227-9032/10/1âŚ
I thought this was very good. Will post extracts.
#MEcfs #CFS #MedEd
1/
đ§ľ
âWhat Is #LongCOVIDâand How Are We Going to Solve It? This potentially life-altering post-viral syndrome may have affected as many as 23 million Americans (and counting)â
Contains quite a bit of discussion about #MEcfs
prevention.com/health/health-âŚ
#CFS #PwLC #PwME #CFSME
1/
âWhat Is #LongCOVIDâand How Are We Going to Solve It? This potentially life-altering post-viral syndrome may have affected as many as 23 million Americans (and counting)â
Contains quite a bit of discussion about #MEcfs
prevention.com/health/health-âŚ
#CFS #PwLC #PwME #CFSME
1/
2/
âWeâre starting to gain more understanding of whatâs driving #longCOVID & who is most at risk, & the more we understand, the more it will help us get a grip on similar chronic illnesses, like #MECFS, that have been largely ignored for far too longâ - @VirusesImmunity
#CFD
âWeâre starting to gain more understanding of whatâs driving #longCOVID & who is most at risk, & the more we understand, the more it will help us get a grip on similar chronic illnesses, like #MECFS, that have been largely ignored for far too longâ - @VirusesImmunity
#CFD
3/
âIn those who felt ill from #postCOVID19 syndrome for at least six months, the most common symptoms were fatigue, cognitive dysfunction, & post-exertional malaise (a triad that besets many people with #MECFS), according to the studyâ of 3762 patients by @patientled
#LongCovid
âIn those who felt ill from #postCOVID19 syndrome for at least six months, the most common symptoms were fatigue, cognitive dysfunction, & post-exertional malaise (a triad that besets many people with #MECFS), according to the studyâ of 3762 patients by @patientled
#LongCovid
đ§ľ
Press release for New Zealand paper:
âNew research provides insight into Long COVID and ME: Researchers have uncovered how post-viral fatigue syndromes, including #LongCOVID, become life-changing diseases & why patients suffer frequent relapsesâ
#MEcfs #CFS #PwME #PwLC
1/
Press release for New Zealand paper:
âNew research provides insight into Long COVID and ME: Researchers have uncovered how post-viral fatigue syndromes, including #LongCOVID, become life-changing diseases & why patients suffer frequent relapsesâ
#MEcfs #CFS #PwME #PwLC
1/
2/
âArising commonly from a viral infection, #MyalgicEncephalomyelitis/#ChronicFatigueSyndrome (#ME/#CFS), is known to cause brain-centered symptoms of neuroinflammation, loss of homeostasis, brain
fog, lack of refreshing sleep, & poor response to even small stressesâ
#MEcfs
âArising commonly from a viral infection, #MyalgicEncephalomyelitis/#ChronicFatigueSyndrome (#ME/#CFS), is known to cause brain-centered symptoms of neuroinflammation, loss of homeostasis, brain
fog, lack of refreshing sleep, & poor response to even small stressesâ
#MEcfs
3/
â#LongCOVID has similar effects on people and is believed to also be
caused by neuroinflammation.
Lead author Emeritus Professor Warren Tate, of the University of Otago's Department of Biochemistry, says how these debilitating brain effects develop is poorly understoodâ
â#LongCOVID has similar effects on people and is believed to also be
caused by neuroinflammation.
Lead author Emeritus Professor Warren Tate, of the University of Otago's Department of Biochemistry, says how these debilitating brain effects develop is poorly understoodâ
New from Japan
âClinical Characteristics of #MyalgicEncephalomyelitis/#ChronicFatigueSyndrome (#ME/#CFS) Diagnosed in Patients with #LongCOVIDâ
mdpi.com/1648-9144/58/7âŚ
âThe overall prevalence rate of ME/CFS [in #LongCovid] diagnosed by three sets of #MECFS criteriaâŚwas 16.8%â
1/
âClinical Characteristics of #MyalgicEncephalomyelitis/#ChronicFatigueSyndrome (#ME/#CFS) Diagnosed in Patients with #LongCOVIDâ
mdpi.com/1648-9144/58/7âŚ
âThe overall prevalence rate of ME/CFS [in #LongCovid] diagnosed by three sets of #MECFS criteriaâŚwas 16.8%â
1/
2/
âmost frequent symptoms in #ME/#CFS patients were general fatigue & post-exertional malaise (89.4% of patients), headache (34.0%), insomnia (23.4%), dysosmia (21.3%) & dysgeusia (19.1%). Dizziness, chest pain, insomnia & headache were characteristic symptoms related to #MECFSâ
âmost frequent symptoms in #ME/#CFS patients were general fatigue & post-exertional malaise (89.4% of patients), headache (34.0%), insomnia (23.4%), dysosmia (21.3%) & dysgeusia (19.1%). Dizziness, chest pain, insomnia & headache were characteristic symptoms related to #MECFSâ
3/
âThe male to female ratio in #ME/#CFS patients was equal in the present study [48.9% vs 51.1%] although #MECFS was generally more common in women in previous studiesâ
#MyalgicEncephalomyelitis #LongCovid #PwLC #ChronicFatigueSyndrome #PwME #CFSME #SEID #postviralillness
âThe male to female ratio in #ME/#CFS patients was equal in the present study [48.9% vs 51.1%] although #MECFS was generally more common in women in previous studiesâ
#MyalgicEncephalomyelitis #LongCovid #PwLC #ChronicFatigueSyndrome #PwME #CFSME #SEID #postviralillness
đ§ľ
New Zealand:
âScientists studying potential link between [#ChronicFatigueSyndrome] & #longCovid struggle for fundingâ
stuff.co.nz/national/healtâŚ
On Prof Tate & his research team. He seems like the sort of scientist we really want in field.
#MEcfs #PwME #MyalgicE #CFS #CFSME
1/
New Zealand:
âScientists studying potential link between [#ChronicFatigueSyndrome] & #longCovid struggle for fundingâ
stuff.co.nz/national/healtâŚ
On Prof Tate & his research team. He seems like the sort of scientist we really want in field.
#MEcfs #PwME #MyalgicE #CFS #CFSME
1/
2/
âA small Dunedin-based team of researchers are critical to
understanding fatigue disease in New Zealand, but they might not be
around in another year.â
#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #PostViralSyndrome #PVFS #LongCovid #MEcfs #CFS #PwME #PwLC #MyalgicE
âA small Dunedin-based team of researchers are critical to
understanding fatigue disease in New Zealand, but they might not be
around in another year.â
#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #PostViralSyndrome #PVFS #LongCovid #MEcfs #CFS #PwME #PwLC #MyalgicE
3/
âEmeritus Professor Warren Tate says it took two decades for #chronicfatiguesyndrome research to be taken seriously, yet after a decade of good work it is still a mission to secure funding.
As of this week, they still didnât have the funding to continue in 2023â
#MEcfs #CFS
âEmeritus Professor Warren Tate says it took two decades for #chronicfatiguesyndrome research to be taken seriously, yet after a decade of good work it is still a mission to secure funding.
As of this week, they still didnât have the funding to continue in 2023â
#MEcfs #CFS
Many with #longCovid are finding it difficult to describe what they are feeling. Those of us in the #MECFS and #ChronicLymeDisease #EDS community have had longer to think about and put these experiences into wordsâŚ
Post-viral illness wreaks havoc on multiple systems within your body which of course are interconnected. The way I describe it is that you are losing your bodyâs life force â this is different from your soul. And itâs not just energy. Itâs your actual lifeâs force.
In the beginning when you first get sick, you can still feel the healthy parts of you versus the sick parts â kind of like layers of an onion.
But eventually the sick parts seep into the healthy parts and you can no longer distinguish between the two.
But eventually the sick parts seep into the healthy parts and you can no longer distinguish between the two.
