Discover and read the best of Twitter Threads about #PtExp

Most recents (8)

#MondayMorning 🧵

Repeat after me:

Patient burnout is an undocumented public health crisis. 🚨
2) #PatientAdministrativeBurden (PAB), or the work that individuals need to do to get the care they need, is of epic proportions, especially in the context of chronic illness, multiple co-morbidities, life-altering, and life-limiting conditions. 📈

#MissionImpossible #PtExp
3) Patients are buried in:
👉 piles of paperwork
👉 fragmented, manual, poorly coordinated workflows
👉 massive losses of time in waiting and navigating uncharted, unsupported care journeys
👉suffering

#PtExp #Healthcare #UnblockHealth
Read 12 tweets
1) Over the last 2 weeks, I've been jotting down words & statements from various conversations & interview questions I have been asked.

These words stick out like a sore thumb. What are these words, you ask?
2) Too helpless
Too timid
Not smart enough
Incapable
Too oblivious
Indifferent
Uneducated
Could care less
Too anxious
Too lost
Not committed enough
Wrong priorities
Lazy
Can’t handle it
Too weak
Too vulnerable
Difficult
Ignorant
Apathetic
Complicated
Rude
Too hysterical
Selfish
3) All of these words were used in the context of improving #PtEng, #PtExp, & #PatientAccess.

Do you know who the words above are describing?

All of these words were used in the context of describing patients.
Read 6 tweets
Over the next month I'll be sharing thoughts from the 32 articles in our new special issue of @PXJournal: Sustaining a Focus on #HumanExperience in the Face of #COVID19.

Generous contributions of action & hope from authors around the world. Stay tuned:
pxjournal.org/journal/ Image
Starting my review of @PXJournal special issue with our editorial "A Commitment to Hope" co-authored by our Assoc Editor Geoffrey Silvera of @AuburnU.

"In this moment, the humanity of healthcare continues to shine."

Read more:
pxjournal.org/journal/vol7/i…

#HumanExperience #COVID19 Image
Next in @PXJournal: #Leadership matters: A conversation w/ Dr. @JamesEKHildreth

Need to start having honest conversations. They're difficult to have about who we are, what motivates us, but the results could be really powerful.
pxjournal.org/journal/vol7/i…

#COVID19 #humanexperience Image
Read 35 tweets
Lots of thoughts & opinions on patient #DataAccess & data sharing, figured I'd jump in. Take a seat for a few. I'll make it worth your while.

THREAD 👇👇

#PatientAdvocacyProblems #UnblockHealth #hcldr #hitsm #medtwitter @S4PM #EHR #DataBlocking #pinksocks #PtExp
@S4PM 1) A patient with multiple comorbidities has been in & out of the hospital w/what now has been diagnosed as advanced congestive heart failure. At about 5 pm yesterday (Fri), patient & family were told to seek a 2nd opinion asap. Told patient being discharged today. #UnblockHealth
@S4PM 2) The urgent 2nd opinion is to see if the patient is a candidate for a particular procedure. If not, #hospice. Appt can’t be scheduled until ALL records & images on CD are received & reviewed by the 2nd opinion dr’s office (at another hospital, in another state.) #UnblockHealth
Read 19 tweets
1) So you get a copy of your medical records & dive in, reading line by line, trying to make sense of your new lung #cancer diagnosis.

“Wait a second, this doesn’t sound right. This is a mistake. I don’t have a history of a heart condition & I don’t smoke cigarettes.
#PtExp
2) You call your oncologist’s office to report the mistakes you found & ask to have it updated. You are told to write down the correction & fax it to the office. You do exactly that.
#PtExp #addendum #EHR
3) At your next follow up appt a month later, you ask the dr if your record was updated & the correction was made.

The dr looks at you like:

#PtExp #addendum #EHR
Read 16 tweets
Apple has a section of their website answering questions doctors may have regarding their latest #ECG technology. Where are the answers to the REAL questions #patients want to know about? For example, if I get an alert:

#AppleWatch #digitaltech #wearables #PatientAdvocacy
2) when do I confidently ignore, act upon, or wait to make actionable decisions about alerts I’ve received? #AppleWatch #digitaltech #digitalhealth #wearables #Innovation #PatientAdvocacy #healthcare #medtwitter
Read 7 tweets
Dear #hospitals:

Your discharge planning sets #patients up for failure. How? Let me explain (again, & again, & again). #PtExp #PtSafety #PtEng #EHR #interoperability #PatientAdvocacy #medtwitter #GMDD #hcldr

Photo Credit: Rob Potter (Unsplash)
1)Follow up appts, essential to a patient’s health & recovery, are listed as part of the discharge summary. These appts are recommended to be scheduled within 7-10 days. To be best prepared, patients need their records. #healthcare #PtExp #PtSafety #PtEng #EHR #GMDD #medtwitter
2)All records from a patient's hospital admission should be AUTOMATICALLY sent to every listed follow-up physician. Hospitals, you know which drs patients need to see; it’s listed in the discharge plans. This step needs to be embedded in the workflow #PtExp #EHR #interoperability
Read 14 tweets
.@Doug_Lind_Say shares being a late bloomer as a kid. He got sick a junior summer during college, he was told he had mono. His life got worse, not better. #WTFix
He realized he probably had the condition his mother had. He had long had a vision of being a man of destiny. He was in bed 22 hours a day. Walk about 50 ft. Exceeding that he would be worse. #WTFix
The medical community offered @Doug_Lind_Say no home. He looked ahead and knew he could not follow his mother’s health path. A mentor shared if you want to make whatever everyone else makes, then you can, if you want something different you have to do something different. #WTFix
Read 24 tweets

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