Discover and read the best of Twitter Threads about #PwCFS
Most recents (2)
Why I can’t just treat this “like a cold” and why I won’t “get a fucking grip”
A thread 🧵
A thread 🧵
Exactly 3yrs ago today I caught CV19 for the 1st time.
Initially it was like a bad cold. It did put me in bed for a day or so but within a week I was back up and about again. So far so good. On narrative.
However things didn’t feel right. I hadn’t quite reassembled properly.
Initially it was like a bad cold. It did put me in bed for a day or so but within a week I was back up and about again. So far so good. On narrative.
However things didn’t feel right. I hadn’t quite reassembled properly.
There was a niggling irritation in my throat, a mild pain in my stomach, a tightness in my chest, a mild headache that wouldn’t go, whining tinnitus and an odd fatigue that would just come on unannounced.
I didn’t think much to it. I’ll be fine in two weeks, right?
Wrong.
I didn’t think much to it. I’ll be fine in two weeks, right?
Wrong.
1/25 I would like to deconstruct one of the persistent myths about #MyalgicE, because I'm seeing a recurring theme where quite a few #pwme are making sweeping statements on Twitter, that have the unfortunate effect of invalidating the diagnoses of other #PwME and/or #PwCFS
2/25 The myth often comes in two parts: (1) that there is just one set of diagnostic criteria that we should all consider to be Holy Scripture, and (2) there is only one possible family of virus that can cause the particular disease described in the Hallowed Diagnostic Writings.
3/25 Here's one recent example to illustrate my point. "ME is based on Ramsay’s Definition and an Enteroviral trigger. … It’s not ME if something else causes it." (NB multiple #pwme have been saying this for years, so this is just one example, and not intended to be personal.)
