Discover and read the best of Twitter Threads about #RealPainStory

Most recents (3)

Read 4 tweets
I developed Adhesive Arachnoiditis during the course of two spinal surgeries & six failed epidural steroid injections. I went from being at the peak of my career to spending nearly every waking moment on my daybed in my family room overnight. #RealPainStory #PainAwarenessMonth 1/
2/ My daughters lost the active Mom who attended every school performance and recital, that one took them for hikes & travelled to a number of locations every year. Without treatment, I couldn’t take them shopping, go to the movies or even stand long enough to braid their hair.
3/ Without treatment, my husband lost his active wife, his date to countless funerals, weddings & family functions. Instead of taking care of my aging Mom & cooking her meals, she stepped in to play chauffeur & drive me to my appts. I had to use a scooter on good days to shop.
Read 10 tweets
Brief summation of my long #RealPainStory - I was born with Ehlers-Danlos Syndrome. Significant motor control issues were evident from the get go, and I’ve been in physical therapy pretty much constantly since I was two months old. Some of my earliest memories revolve around 1/13
the significant musculoskeletal pain that comes hand in hand with the disorder. Although I was always unable to be in sports or play around physically with other kids, I functioned well enough academically until about age 12. Then everything changed. I started experiencing 2/13
severe episodes of pain around my lower abdomen and down into my groin. On the level of the skin, it felt like someone had lit a chemical fire. On the level of the muscle, it felt like I was being stabbed. I had no idea what was going on, nor did others. Within a few months 3/13
Read 13 tweets

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