Discover and read the best of Twitter Threads about #RightToTry
Most recents (10)
Dear World,
Recently a man of much wealth and so undue power & influence, @elonmusk, made a bizarre, senseless attempt to malign a drug, #BUPROPION (aka Wellbutrin/Zyban), which continues to profoundly benefit the lives, the functioning, of myself & others.
1/📜
Recently a man of much wealth and so undue power & influence, @elonmusk, made a bizarre, senseless attempt to malign a drug, #BUPROPION (aka Wellbutrin/Zyban), which continues to profoundly benefit the lives, the functioning, of myself & others.
1/📜
The potential implications of this must be addressed.
Of all the drugs on the market — some easy to get as candy (alcohol, cigarettes, vaping), others blithely prescribed, often irresponsibly (opioids, broad-spectrum anti-biotics) &
 2/📜
Of all the drugs on the market — some easy to get as candy (alcohol, cigarettes, vaping), others blithely prescribed, often irresponsibly (opioids, broad-spectrum anti-biotics) &
 2/📜
in some cases even seemingly maliciously (opioids, anti-psychotics) — why would he pick one that´s been in use since the ´80s, never had any controversy, helps a lot of people lose weight, and helps a lot of us THINK, PERCEIVE, COMMUNICATE, LEARN, and MOVE ABOUT.
 3/📜
 3/📜
Day one today of @OversightDems #drugprices hearing at 10amET: $BMY & its Celgene unit & $TEVA.
oversight.house.gov/legislation/he…
Also, at 11:30amET, @EnergyCommerce #COVID19 #vaccines hearing: energycommerce.house.gov/committee-acti…
oversight.house.gov/legislation/he…
Also, at 11:30amET, @EnergyCommerce #COVID19 #vaccines hearing: energycommerce.house.gov/committee-acti…
.@RepMaloney notes that anyone in the @OversightDems room not wearing #masks will not be recognized at today's #drugpricing hearing.
#drugprices $BMY $TEVA
#drugprices $BMY $TEVA
.@RepMaloney starts out playing clip of @RepCummings, who died last year before he could convene today's #drugpricing hearing.
He notes #pharma one of most powerful/profitable industries in the world.
#DrugPrices #pharma #biotech
He notes #pharma one of most powerful/profitable industries in the world.
#DrugPrices #pharma #biotech
ICYMI this thread on Natalie Harp from last night.
@jeremycsnyder has followed Harp, who has repeatedly told her false/misleading #RightToTry story & did again last night #GOPConvention.
Her condition doesn't qualify for #RTT & neither does #FDA-approved drug she says she took.
@jeremycsnyder has followed Harp, who has repeatedly told her false/misleading #RightToTry story & did again last night #GOPConvention.
Her condition doesn't qualify for #RTT & neither does #FDA-approved drug she says she took.
Harp said she has essential thrombocytosis, which is not life-threatening. She also said she was prescribed an #FDA-approved immunotherapy off-label - a common practice & not #RightToTry.
#GOPConvention used Harp's false/misleading story rather than a real #RTT patient.
Why?
#GOPConvention used Harp's false/misleading story rather than a real #RTT patient.
Why?
Harp likes to describe her condition - essential thrombocytosis - as "bone cancer."
But essential thrombocytosis is not considered life-threatening, most patients do well/live normal lives & it doesn't meet #RightToTry criteria.
Period.
But essential thrombocytosis is not considered life-threatening, most patients do well/live normal lives & it doesn't meet #RightToTry criteria.
Period.
The fact #GOPConvention can't find a real patient to talk about #RightToTry says a lot about that 2018 law.
Why is GOP relying on someone who has repeatedly told the same false/misleading story? The condition she claims she has is not life-threatening. The drug is #FDA-approved.
Why is GOP relying on someone who has repeatedly told the same false/misleading story? The condition she claims she has is not life-threatening. The drug is #FDA-approved.
Reminder: Natalie Harp has repeatedly told a false #RightToTry story.
Condition she claims she has - essential thrombocytosis - isn't life-threatening & doesn't qualify for #RTT.
She also said used #FDA-approved immunotherapy off-label, a common practice, not RTT
#GOPConvention
Condition she claims she has - essential thrombocytosis - isn't life-threatening & doesn't qualify for #RTT.
She also said used #FDA-approved immunotherapy off-label, a common practice, not RTT
#GOPConvention
Why is #GOPConvention using someone who tells a false/misleading story to promote #RightToTry?
Apparently, they don't have any real #RTT patients to share their experiences.
Apparently, they don't have any real #RTT patients to share their experiences.
The story Harp has been telling & will tell tonight is false.
For #GOPConvention to be selling it as Trump "allowed her to have access to the #RightToTry legislation" & that it saved her life is false/misleading.
Harp's condition & drug she said she used don't qualify for #RTT
For #GOPConvention to be selling it as Trump "allowed her to have access to the #RightToTry legislation" & that it saved her life is false/misleading.
Harp's condition & drug she said she used don't qualify for #RTT
Aside from Harp again repeating her false #RightToTry story, how will Republicans also sell Trump's #COVID19 response tonight at #GOPConvention as a positive when 177,000 Americans are dead from the virus & over 5.7 million in the U.S. have been infected?
gisanddata.maps.arcgis.com/apps/opsdashbo…
gisanddata.maps.arcgis.com/apps/opsdashbo…
.@AP-NORC poll: Trump faces pessimism as GOP convention opens apnews.com/a464966595a326… #GOPConvention
This is a strategy of the libertarian right that supports Trump. #RightToTry was never about speeding cures to the terminally ill. It was an first step in a long term plan to weaken the @US_FDA and lower the standards for drug approval. 1/
I've been predicting for weeks now that the #COVID19 pandemic would be used as a pretext for the next step in loosening drug approval standards under the guise of "speeding cures to the people" and "loosening red tape." Hydroxychloroquine and chloroquine were the first salvo. 2/
Unsurprisingly, @US_FDA caved and approved these drugs for #COVID19, even though there is a shocking paucity of evidence that they work in humans. One reason is simple: Set a precedent for lowering drug approval standards during a pandemic. 3/ sciencebasedmedicine.org/hydroxychloroq…
THREAD: today Trump & Hahn talked about the FDA's "compassionate use" pathway to get patients unapproved #Covid_19 treatments
In 2018 Trump supported a similar law, #RightToTry, but comments today on reporting/data needs highlight its pitfalls (1/6)
news.bloomberglaw.com/health-law-and…
In 2018 Trump supported a similar law, #RightToTry, but comments today on reporting/data needs highlight its pitfalls (1/6)
news.bloomberglaw.com/health-law-and…
Both FDA expanded access (or compassionate use) and Right to Try let patients access experimental drugs
But RTT has less robust reporting & cuts FDA completely out of the administration process (2/6)
But RTT has less robust reporting & cuts FDA completely out of the administration process (2/6)
Under FDA pathway, agency gets a 'written summary of the results of the expanded access use, including adverse effects' (per FDA)
Under RTT: an annual report of more general info & "serious adverse events" (per law)
Hahn wants that detailed data (3/6)
Under RTT: an annual report of more general info & "serious adverse events" (per law)
Hahn wants that detailed data (3/6)
#COVID19 #CDC #MAGA
Did anyone else note that with Trump's new health taskforce (shhh, putting the shovel under CDC prior 'practices') that only Roche was mentioned?
NOT Merck, NOT Phizer, who both have been primary 'partners' w/ CDC re vaccines!!!
Did anyone else note that with Trump's new health taskforce (shhh, putting the shovel under CDC prior 'practices') that only Roche was mentioned?
NOT Merck, NOT Phizer, who both have been primary 'partners' w/ CDC re vaccines!!!
#RightToTry
Roche is into lots of new promising individually targetted cancer treatments!!!!
Click on each box to read the basics for each:
roche.com/research_and_d…
Roche is into lots of new promising individually targetted cancer treatments!!!!
Click on each box to read the basics for each:
roche.com/research_and_d…
China using Roche arthritis treatment drug in trial against serious inflammatory lung condition, cytokine storm, caused by covid-19. Has proven helpful to 14 patients so far. Roche has now donated the drug to China.
fiercepharma.com/pharma-asia/ch…
fiercepharma.com/pharma-asia/ch…
Serious Question 🕶
Have you ever met anyone,
who has survived...
1. Colon Cancer/1999
2. Pancreatic Cancer/2009
3. Lung Cancer/2018
4. Pancreatic Cancer/2019
5. Many rounds chemo/radiation
...without ever losing a hair on their head?
#RightToTry #EliteTreatments?
cc @POTUS #KAG
Have you ever met anyone,
who has survived...
1. Colon Cancer/1999
2. Pancreatic Cancer/2009
3. Lung Cancer/2018
4. Pancreatic Cancer/2019
5. Many rounds chemo/radiation
...without ever losing a hair on their head?
#RightToTry #EliteTreatments?
cc @POTUS #KAG
Thrilled that @POTUS will soon be signing #RightToTry into law! Thank you @realDonaldTrump for your strong advocacy on this, helping provide freedom and hope for terminally ill patients.
Thank you @VP for your long term support and dedication to #RightToTry. From state law in Indiana and 39 other states, it will soon be the law of the land thanks to today's vote!
Many other people to thank. Grateful we were able to work across the aisle to give terminally ill patients the right to hope with #RightToTry. Thank you @senatemajldr @SenAlexander @SenDonnelly @PattyMurray...
