Discover and read the best of Twitter Threads about #SCD

Most recents (14)

Gross incompetence on behalf of BBC?

Bad legal advice?

Surely it wasn't impossible to make full vaccination a condition of employment eg on H&S grounds?

"Strictly chaos as 'third professional dancer refuses vaccine'" metro.co.uk/2021/09/21/str… via @MetroUK
@MetroUK who are the three vaccine refuseniks?

If the BBC won't replace them now, the public should know, so we can vote them off ASAP.
@MetroUK is there anything that would prevent it being a condition of employment that Strictly Come Dancing #SCD competitors are fully vaccinated?
@AdamWagner1 @BarristerSecret @davidallengreen
Read 4 tweets
#ESCCongress #arrhythmia

Prediction of #suddencardiacdeath:

@BehrElijah on pathogenesis and risk stratification of #SCD in Brugada syndrome

1/
#ESCCongress #arrhythmia

Prediction of #suddencardiacdeath:

@BehrElijah on pathogenesis and risk stratification of #SCD in Brugada syndrome

2/
#ESCCongress #arrhythmia

Prediction of #suddencardiacdeath:

@BehrElijah on pathogenesis and risk stratification of #SCD in Brugada syndrome

3/
Read 4 tweets
#ESCCongress #arrhythmia

Prediction of #suddencardiacdeath:

K. Nakajima: Differential prediction of #SCD and HF death using machine learning and nuclear cardiology

2/
#ESCCongress #arrhythmia

Prediction of #suddencardiacdeath:

K. Nakajima: Differential prediction of #SCD and HF death using machine learning and nuclear cardiology

3/
Read 6 tweets
$SNY looks like they are ready for a Genomic Medicine Unity #GMU coming out year in C21. Many hires. Many open reqs. Building on Ablynx, Bioverativ and Kiadis M&A
#GeneTherapy
1/
$SNY #GMU head of Rare and Neurologic Disease Research is Christian Mueller. Video into is pretty good
Addl heads include Bruno Figueroa (CMC) and Cate O'Riordan (translational unit)

2/
$SNY #GMU Principal Scientist Robert Jackson profile says he is working on: Huntingtin's, MLD, PKU, Neurophathies, T1Diabetes Hypertension, Nephrophaty, vascular disease, Rheumatoid Arthritis and sensorineural hearing loss
3/
Read 14 tweets
When we chartered @theNASEM to provide a #SCD Strategic Plan & Blueprint for Action I hoped for a transformational doc for the next decade–and that is exactly what they provided. Good news– we have already started the journey but we still have a ways to go bit.ly/2FtAgdF
Today, @theNASEM released a new report: Addressing Sickle Cell Disease – A strategic Plan and Blueprint for Action.

This report outlines actionable strategies for addressing the care and treatment of people with #SCD.

Read now: bit.ly/2Fi1qVh Image
This @theNASEM report, charted by OASH & @MinorityHealth, makes recommendations on transitions from pediatric to adult #SCD care, research innovations, particularly gene-editing approaches, & the role of patient groups & community-based orgs.

Learn more: bit.ly/3himvMq
Read 3 tweets
This #WorldSickleCellDay, let us renew our commitment to improving the lives of everyone living with #SickleCell disease around the world and celebrate the important progress we’re making against the disease. Join the movement to help raise awareness about #SCD!
#SickleCellDisease is a serious health condition which affects the body’s red blood cells and can cause intense episodes of pain. Learn more about #SCD from @CDC_NCBDDD and @CDCgov: cdc.gov/ncbddd/sicklec…
As a pediatric intensive specialist I have cared for hundreds of children w/#SickleCell. They are my inspiration to fight every day. My goal & passion is to create a future where we can provide individuals w/#SCD a long life free from pain & complications. The time is now #WSCD20 Image
Read 5 tweets
Our goal at @HHSGov is to lead Americans to healthier lives and to provide a road map to a healthier nation. As such, we are focused on health innovation, transformation, and addressing emerging diseases like #Coronavirus. #AllHealthLive Image
@HHSGov @cspan There is no silver bullet when it comes to addressing the #OpioidEpidemic. All programs and offices must continue to work together across the country, especially as we work to combat the 4th wave of America’s overdose epidemic—methamphetamines. #AllHealthLive Image
@HHSGov @cspan At @HHSGov, we are also committed to extending the lives of Americans with sickle cell disease by at least 10 years, within 10 years. We are dedicated to improving the quality of life of those living with #SCD. Visit @MinorityHealth to learn more: minorityhealth.hhs.gov/sicklecell
Read 3 tweets
With @NIH leadership this morning discussing the importance of charting a course to stop the spread of viral #hepatitis and save lives. Image
I made the commitment to settle for no less than a plan that aims to eliminate viral hepatitis in our nation. We have the diagnostic tests, several effective therapies, and vaccines. Let’s make viral #hepatitis something only to read about in history books!
Also discussed a topic very dear to me, Sickle Cell Disease in Sub-Saharan Africa. So much progress has been made but more work needs to be done. We need to partnerships and collaboration to ensure the needs are reflected and adapted at the continent level. #SCD Image
Read 3 tweets
Today I’m in Orlando with @ASH_hematology meeting with Ghana, Uganda and Tanzania on #SickleCell disease. #SCD Image
@ASH_hematology 300,000 children are born with #SCD each year in Africa; most will die unnecessarily before age 5 years. Today, we continue our work to save this children with our partners @ASH_hematology and several African delegations.
@ASH_hematology As we work to improve the care of children with #SCD in Africa, we must re-double our efforts to improve care for SCD patients in our nation. Far too few patients receive standard of care, or appropriate pain prevention and management.
Read 3 tweets
A 32-year-old man with HbS/βThalassemia presented to the ED with weakness in his left arm and slurred speech. His HbS is 71%. Take a look at his peripheral smear below, notice the drepanocytes, or sickle-shaped cells.
Since you are the #BloodBank resident on-call, Heme/Onc requests urgent erythrocytaphereisis, otherwise known as #RedCellExchange. 🗣️You reply?
⚠️Yes! You immediately confirm that the line is placed. According to the ASFA Guidelines, RBC exchange is a Category I Recommendation, first-line therapy, for the acute treatment of a stroke and should be started within 6 hours of admission.
Read 9 tweets
(1/4) September is #PainAwarenessMonth & #SickleCellAwarenessMonth. This #SundaySpotlight comes from a @washingtonpost article that details the complexities of chronic pain and shares the story of a young lady in #SCD remission. washingtonpost.com/national/healt…
@washingtonpost (2/4) Studies show that #chronicpain is interwoven with all kinds of psychological, emotional and spiritual dimensions, as well as the physical.
@washingtonpost (3/4) @NIH & others are re-examining chronic pain, hoping to develop new approaches to predicting and preventing this disease that impacts 50 M adults in the 🇺🇸. Just last wk they issued 375 awards in 41 states to accelerate scientific solutions - bit.ly/2nAhwAy
Read 4 tweets
⚡️ #YesCCT Coronary Plaque Assessment #Tweetorial ⚡️

By @CoronaryDoc + @AChoiHeart

✅ Why Plaque Assessment?
✅ High Risk Plaque Features
✅ Plaque Characterization/Quantification
✅ Supporting Clinical Data

#CardioTwitter #ACCImaging #SCCT2019 @heart_scct @journalCCT
1/14
2/14
As #SCD or #MI is 1st symptom of #atherosclerosis in 2/3 of pts, early ID of #CAD is of paramount importance

#YesCCT allows for
✅ ID of plaque
✅ Quant. of plaque
✅ Characterization of plaque
✅ Arterial remodeling

Lin, @LubbDup & @lesleejshaw: bit.ly/2x1b5Yz
3/14
Serial angiographic studies have demonstrated an accelerated & rapid plaque progression before most cases of ACS

Rapid plaque growth ➡️ plaque rupture ➡️ thrombus formation ➡️ MI

@LubbDup & @JonathonLeipsic et al: bit.ly/2WIt5Bj
Read 14 tweets
I’m very excited to spread the word that last night @POTUS signed a bipartisan bill aimed at fighting #SickleCell disease! whitehouse.gov/briefings-stat… Image
This bill reauthorizes @HHSGov’s current #SickleCell disease prevention and treatment program. Research is geared towards increasing the understanding of prevalence, distribution, outcomes & therapies associated with #SCD @NIH @HRSAgov @CDCgov
We can and we will find a cure! Watch videos and learn more at: minorityhealth.hhs.gov/sicklecell/ind…
Read 3 tweets
So although I’m watching the #scd final I find my mind wandering and worrying about #Brexit. That’s emblematic of how consuming and perinicious British politics is at the moment. I thought I would blurt out a quick thread on what happens after 29 March. 1/n
First, the one thing we can probably all agree on is that Remainers have spent a lot of time ‘fighting the last war’ so-to-peak. The passionate defence of the EU that should have come in 2016 (and in the decades before, for that matter) only manifested itself after #EUref 2/n
(Aside, one thing I bang on about a lot is that we need to be pre-emptively campaigning to save the UK sign up to the ECHR, before Theresa May or similarly minded PM takes us out of that too) 3/n
Read 18 tweets

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