Discover and read the best of Twitter Threads about #SEID
Most recents (5)
đ§”
âWhat Is #LongCOVIDâand How Are We Going to Solve It? This potentially life-altering post-viral syndrome may have affected as many as 23 million Americans (and counting)â
Contains quite a bit of discussion about #MEcfs
prevention.com/health/health-âŠ
#CFS #PwLC #PwME #CFSME
1/
âWhat Is #LongCOVIDâand How Are We Going to Solve It? This potentially life-altering post-viral syndrome may have affected as many as 23 million Americans (and counting)â
Contains quite a bit of discussion about #MEcfs
prevention.com/health/health-âŠ
#CFS #PwLC #PwME #CFSME
1/
2/
âWeâre starting to gain more understanding of whatâs driving #longCOVID & who is most at risk, & the more we understand, the more it will help us get a grip on similar chronic illnesses, like #MECFS, that have been largely ignored for far too longâ - @VirusesImmunity
#CFD
âWeâre starting to gain more understanding of whatâs driving #longCOVID & who is most at risk, & the more we understand, the more it will help us get a grip on similar chronic illnesses, like #MECFS, that have been largely ignored for far too longâ - @VirusesImmunity
#CFD
3/
âIn those who felt ill from #postCOVID19 syndrome for at least six months, the most common symptoms were fatigue, cognitive dysfunction, & post-exertional malaise (a triad that besets many people with #MECFS), according to the studyâ of 3762 patients by @patientled
#LongCovid
âIn those who felt ill from #postCOVID19 syndrome for at least six months, the most common symptoms were fatigue, cognitive dysfunction, & post-exertional malaise (a triad that besets many people with #MECFS), according to the studyâ of 3762 patients by @patientled
#LongCovid
đ§”
Some extracts from âThe politics underpinning the neglect of people with ME/#CFSâ which summarises her paper âTowards a critical psychology of #chronicfatiguesyndrome: #biopsychosocial narratives & UK welfare reformâ by @JoElizaHunt
mecentraal.wordpress.com/2022/06/19/theâŠ
#MEcfs #PwME
1/
Some extracts from âThe politics underpinning the neglect of people with ME/#CFSâ which summarises her paper âTowards a critical psychology of #chronicfatiguesyndrome: #biopsychosocial narratives & UK welfare reformâ by @JoElizaHunt
mecentraal.wordpress.com/2022/06/19/theâŠ
#MEcfs #PwME
1/
2/
âThe [#biopsychosocial] model has been used as psychosocial model, to re-frame chronic health conditions (particularly those surrounded by medical controversy or uncertainty) into psychosocial entities, allegedly amenable to psychosocial healthcare interventions (contd)â
#BPS
âThe [#biopsychosocial] model has been used as psychosocial model, to re-frame chronic health conditions (particularly those surrounded by medical controversy or uncertainty) into psychosocial entities, allegedly amenable to psychosocial healthcare interventions (contd)â
#BPS
New from Japan
âClinical Characteristics of #MyalgicEncephalomyelitis/#ChronicFatigueSyndrome (#ME/#CFS) Diagnosed in Patients with #LongCOVIDâ
mdpi.com/1648-9144/58/7âŠ
âThe overall prevalence rate of ME/CFS [in #LongCovid] diagnosed by three sets of #MECFS criteriaâŠwas 16.8%â
1/
âClinical Characteristics of #MyalgicEncephalomyelitis/#ChronicFatigueSyndrome (#ME/#CFS) Diagnosed in Patients with #LongCOVIDâ
mdpi.com/1648-9144/58/7âŠ
âThe overall prevalence rate of ME/CFS [in #LongCovid] diagnosed by three sets of #MECFS criteriaâŠwas 16.8%â
1/
2/
âmost frequent symptoms in #ME/#CFS patients were general fatigue & post-exertional malaise (89.4% of patients), headache (34.0%), insomnia (23.4%), dysosmia (21.3%) & dysgeusia (19.1%). Dizziness, chest pain, insomnia & headache were characteristic symptoms related to #MECFSâ
âmost frequent symptoms in #ME/#CFS patients were general fatigue & post-exertional malaise (89.4% of patients), headache (34.0%), insomnia (23.4%), dysosmia (21.3%) & dysgeusia (19.1%). Dizziness, chest pain, insomnia & headache were characteristic symptoms related to #MECFSâ
3/
âThe male to female ratio in #ME/#CFS patients was equal in the present study [48.9% vs 51.1%] although #MECFS was generally more common in women in previous studiesâ
#MyalgicEncephalomyelitis #LongCovid #PwLC #ChronicFatigueSyndrome #PwME #CFSME #SEID #postviralillness
âThe male to female ratio in #ME/#CFS patients was equal in the present study [48.9% vs 51.1%] although #MECFS was generally more common in women in previous studiesâ
#MyalgicEncephalomyelitis #LongCovid #PwLC #ChronicFatigueSyndrome #PwME #CFSME #SEID #postviralillness
đ§”
New Zealand:
âScientists studying potential link between [#ChronicFatigueSyndrome] & #longCovid struggle for fundingâ
stuff.co.nz/national/healtâŠ
On Prof Tate & his research team. He seems like the sort of scientist we really want in field.
#MEcfs #PwME #MyalgicE #CFS #CFSME
1/
New Zealand:
âScientists studying potential link between [#ChronicFatigueSyndrome] & #longCovid struggle for fundingâ
stuff.co.nz/national/healtâŠ
On Prof Tate & his research team. He seems like the sort of scientist we really want in field.
#MEcfs #PwME #MyalgicE #CFS #CFSME
1/
2/
âA small Dunedin-based team of researchers are critical to
understanding fatigue disease in New Zealand, but they might not be
around in another year.â
#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #PostViralSyndrome #PVFS #LongCovid #MEcfs #CFS #PwME #PwLC #MyalgicE
âA small Dunedin-based team of researchers are critical to
understanding fatigue disease in New Zealand, but they might not be
around in another year.â
#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #PostViralSyndrome #PVFS #LongCovid #MEcfs #CFS #PwME #PwLC #MyalgicE
3/
âEmeritus Professor Warren Tate says it took two decades for #chronicfatiguesyndrome research to be taken seriously, yet after a decade of good work it is still a mission to secure funding.
As of this week, they still didnât have the funding to continue in 2023â
#MEcfs #CFS
âEmeritus Professor Warren Tate says it took two decades for #chronicfatiguesyndrome research to be taken seriously, yet after a decade of good work it is still a mission to secure funding.
As of this week, they still didnât have the funding to continue in 2023â
#MEcfs #CFS
Press Release from NICE about its new draft #MECFS guidelines that are out for consultation
meresearch.org.uk/nice-guidelineâŠ
âThe draft guideline also highlights the importance of ensuring that people remain in their âenergy envelopeâ when undertaking activity of any kindâ
#CFS
1/n
meresearch.org.uk/nice-guidelineâŠ
âThe draft guideline also highlights the importance of ensuring that people remain in their âenergy envelopeâ when undertaking activity of any kindâ
#CFS
1/n
2/n
Draft NICE guidance ârecognizes that #MECFS is a complex, multi-system, chronic medical condition where there is no âone size fits allâ approach to managing symptoms,particularly where there is the potential for an intervention to benefit some people but cause harm in othersâ
Draft NICE guidance ârecognizes that #MECFS is a complex, multi-system, chronic medical condition where there is no âone size fits allâ approach to managing symptoms,particularly where there is the potential for an intervention to benefit some people but cause harm in othersâ
