Discover and read the best of Twitter Threads about #ShareOurPain

Most recents (6)

Here's my lastest update Twitter #Disability & #ChronicIllness Hashtags - previous update 10.17.18

Please share it.
I'll have a PDF version of this for download on my Ko-fi by this time tomorrow. Link at the end.
HASHTAGS FOR PERSONAL NARRATIVES

These hashtags are for sharing your stories & experiences. Also good for crowdsourcing solutions.

#InvisibleIllness
#MySpoons
#MyPainDay
#ShareOurPain
#ShareOurStories
#SpoonieStories
Read 29 tweets
Updating Twitter disability hashtag thread.

@AllisonR has educated me that I should use Sentence Case for #Accessibility. Graphic reads: # symbol followed by the word Hashtag in white lettering on a blue background.
I have #brainfog so I know I missed someone. Please add your favorite resources as a reply.
Do you want to share your disability experience with others? Try these hashtags.

Amplifying stories

#InvisibleIllness
#MySpoons
#MyPainDay
#ShareOurPain
#ShareOurStories
#SpoonieStories
Read 16 tweets
Still not recovered from going to the airport & the day before, the damn grocery store.

Shoulda stayed in bed. Here's why I'm happy I didn't.

#mypaindiary #SHAREOURPAIN
As I've probably mentioned. #myspoons seem to last longer when I'm in a good mood.

& I'm in one today because of the people I live with.
This morning I didn't have to lift a finger, because their Dad woke them up.
Read 16 tweets
So right now #myspoons are waiting. I spend half my time waiting now that I'm chronically ill.

Let's talk energy conservation.
So first, the best I have ever heard what it's like explained was

๐ŸŽฅ The Spoon Theory by Christine Miserandino - this is where the #Spoonies Community stems from online.
In short, when I was well I never had to wonder how much energy I had to allocate. It wasn't finite.
Read 26 tweets
I wonder who even listens or cares when I post about #ChronicPain outside the #spoinie and disabled community.

I really do.
Of course I know why I do it.

I'm trying to humanize people whose #ChronicDisease may not be apparent.

It's sad that humans don't naturally want to save an abstract life.
I know that hearing other people's story extends the life of #myspoons. So I share mine in hopes of doing the same for others.

And to be a part of #shareourpain & lots of other reasons.
Read 25 tweets
Doctors are no longer a driving part of the #OpioidHysteria. They never really were. Why why why are we still getting these stories instead of whatโ€™s really going on? Alt facts much? How very Trumpian. News media needs to take a good look in the mirror & start facing the truth.
Define โ€œoverprescribingโ€ please. 91 ppl per day die from overdoses: from what exactly? Which meds? Multiple meds or just Opioids? God Iโ€™m fucking tired of this whole bs narrative still going on.
How about the painful stories of vulnerable ppl -disabled-Veterans-elderly- being cut off from #opioids & committing suicide b/c their pain is so bad?? #SuicideDue2Pain #PainKills
Read 18 tweets

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