Discover and read the best of Twitter Threads about #ShareOurPain

Most recents (3)

1- I remember way back when advocacy for pain pts started merging with the addiction community's advocacy.
Pushed back on ADX community's mantra of opioid 'over prescribing' & stated that drugs don't cause ADX.
Maia Szalavitz chastised me, told me to basically stay in my lane.
2- In fact, many in the 'upper echelon' of advocacy still embrace the #PainParole status quo & the 'over prescribing' narrative.
Usually if one pushes back, we're blocked or put on the blacklist of CPPs, and now there's even a blacklist for 'rogue' addiction advocates. 🤔🤫
3-You see I was here advocating since the time when the first seeds were being planted on Twitter re: our E-advocacy. #ShareOurPain was a small ragtag group of CPPs who banned together for the cause. This was before there even was an 'upper echelon'.
Read 8 tweets
@OldHeadFighta @lakeparkcpl @JT_Berone @national_pain 1-The NPS focus is primarily a data mining study of CPPs and pain, states pain is a biopsychosocial experience, places emphasis on 'alternatives' & 'multi-modal' options while constantly equating opioids w/ OUD & addiction as 'risk'.
'Reduce new starts', a rule of thumb.
@OldHeadFighta @lakeparkcpl @JT_Berone @national_pain 2-While NPS professes to support 'patient centered care' we know that that is not possible when opiates are concerned as treating pain in that realm is overseen by non medical entities creating policies that involve DEA/DOJ/LE involvement.
@OldHeadFighta @lakeparkcpl @JT_Berone @national_pain 3-The NPS actually removes MD and PT autonomy in making medical decisions. It also professes not to discriminate but promotes screening people for recreational drug use, childhood trauma, domestic violence or rape as a 'risk management' tool in regard to prescribing practice.
Read 5 tweets
Doctors are no longer a driving part of the #OpioidHysteria. They never really were. Why why why are we still getting these stories instead of what’s really going on? Alt facts much? How very Trumpian. News media needs to take a good look in the mirror & start facing the truth.
Define “overprescribing” please. 91 ppl per day die from overdoses: from what exactly? Which meds? Multiple meds or just Opioids? God I’m fucking tired of this whole bs narrative still going on.
How about the painful stories of vulnerable ppl -disabled-Veterans-elderly- being cut off from #opioids & committing suicide b/c their pain is so bad?? #SuicideDue2Pain #PainKills
Read 18 tweets

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