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Finally, the #GoldacreReview is published! (During Parliamentary Easter holidays, mid-ping-pong on the #HealthAndCareBill...)

It's 221 pages - each PDF page is a double page spread - so this could be a lo-o-o-ong [Thread].

Here goes...
First point to note, in the Terms of Reference (p5), is that this is about "access to #NHSdata by #researchers, #commissioners, and #innovators" - i.e. #Planning and #CommercialReUse - so it is directly relevant to the operation of millions of people's #NationalDataOptOuts... Terms of reference for the review  1. How do we facilitate a
"185 wide-ranging recommendations for us to explore", says @sajidjavid (p6). Gulp! Time for some coffee...

"systems that ensure #underrepresented groups are well represented" may (partly) refer to this "landmark review", which got off to a slow start:

gov.uk/government/new… The far-reaching independent review into potential ethnic bi
Read 159 tweets
Yawn.

Precision medicine, AI diagnostics & "global mining" of medical data; personalised education & AI tuition(!) when you could've had the world-class content online FOR FREE since the late 90s; 5G for digital inclusion - if you have a new smartphone... progress.substack.com/p/the-new-prog…
...and then channelling Dom et al. on "light-touch" regulation... in fact, fuck it! let's "simply start over". Plus ARPA(s) - though is "emphatically not a general model for running a country" really enough clear blue water?

The thing is, bits of this aren't wrong: certainly...
...the shift to net-zero, #sustainable energy; the need to (re)make #institutions fit for the 21st (and 22nd & 23rd...) century; also deciding, #democratically, what a good REALLY means for a '#DigitalWellbeingState'.

What really worries me, though, is the inherent glibness...
Read 5 tweets

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