Discover and read the best of Twitter Threads about #SickNotWeak
Most recents (12)
1/🧵 I think Chris Rock wouldn't have made a joke about Jada's illness if more folks were educated about the high prevalence of autoimmune & other chronic disorders.
#chronicillness #Spoonies #autoimmune #Alopecia #women #health #ChronicPain #chronic #illness #SickNotWeak
#chronicillness #Spoonies #autoimmune #Alopecia #women #health #ChronicPain #chronic #illness #SickNotWeak
2/ As a woman who lives with multiple immune-related disorders, when a comedian makes a joke about chronic illness, I feel unseen...not just for me, but for all my fellow #chronicfolks. Does Chris Rock have any idea what Jada goes through to live with alopecia? Probably not.
3/ As a country, we need to create more dialogue around chronic illness, and especially autoimmune diseases. They are so prevalent yet they are usually talked about in whispers....'Oh, she has Crohn's.' Cancer used to be spoken about in hushed words, too.
Our daughter made us these 10 drawings when she was 13, to help us understand her anxiety better. Although she still struggles mightily with anxiety, she never gives up. She is our definition of a fighter. #BellLetsTalk #SickNotWeak #AnxietyMakesMe #fighter 
1/ The problem with Myalgic Encephalomyeltis/Chronic Fatigue Syndrome #MECFS is that it seems so ridiculous that exercise could actually make patients worse
How can exercise be so bad for #pwME but so good for almost every other serious illness?
THREAD
How can exercise be so bad for #pwME but so good for almost every other serious illness?
THREAD
2/ New study by @4WorkWell @sunsopeningband et al shows that #MECFS patients have metabolic defects that cannot be explained by exercise phobias, deconditioning or 'illness beliefs'
#pwME have reduced oxygen consumption during exercise tests
buff.ly/2CXH6Hj
#pwME have reduced oxygen consumption during exercise tests
buff.ly/2CXH6Hj
3/ #pwME have an impaired ability to increase their oxygen consumption during exercise
This is entirely different to every other disease we know including cardiovascular disease, lung disease, end-stage renal disease, hypertension & cystic fibrosis
…nslational-medicine.biomedcentral.com/articles/10.11…
This is entirely different to every other disease we know including cardiovascular disease, lung disease, end-stage renal disease, hypertension & cystic fibrosis
…nslational-medicine.biomedcentral.com/articles/10.11…
Today is #WorldSickleCellDay & we want you to know more about #SickleCellDisease.
It is an inherited blood disease, that causes the red blood cells to have sickle shape thereby, disrupting the free flow of blood & oxygen in the body. #KnowYourGenotype
It is an inherited blood disease, that causes the red blood cells to have sickle shape thereby, disrupting the free flow of blood & oxygen in the body. #KnowYourGenotype
People living with #SickleCellDisease, may often experience serious pains, weakness of the body, delayed growth & development.
They may also look pale due to shortage of blood
as a result of the sudden breakdown of red blood cells in the body .
#SickleCellWarriors
They may also look pale due to shortage of blood
as a result of the sudden breakdown of red blood cells in the body .
#SickleCellWarriors
Factors such as cold weather, too much exercise, tobacco smoke, lack of fluid, plane flights & high altitudes can contribute to the painful attacks (crisis), experienced by those living with #sicklecelldisease.
#SickNotWeak
#SickleCellAwareness
#SickleCellWarriors
#SickNotWeak
#SickleCellAwareness
#SickleCellWarriors
Thread:
12 reasons that <some> doctors disbelieve patients with Myalgic Encephalomyelitis/Chronic Fatigue Syndrome #MECFS
1. Doctors tended to see #pwME as having “certain personality traits"
#SickNotWeak #MedEd #MedicalTwitter
bmj.com/content/328/74…
12 reasons that <some> doctors disbelieve patients with Myalgic Encephalomyelitis/Chronic Fatigue Syndrome #MECFS
1. Doctors tended to see #pwME as having “certain personality traits"
#SickNotWeak #MedEd #MedicalTwitter
bmj.com/content/328/74…
2. Doctors felt that #MyalgicE lacks a plausible pathological mechanism and its symptoms couldn't be ascribed to a precise location
3. There has been variation in the diagnostic criteria for #MECFS which has delegitimised the disease
#SickNotTired
bmj.com/content/328/74…
3. There has been variation in the diagnostic criteria for #MECFS which has delegitimised the disease
#SickNotTired
bmj.com/content/328/74…
4. Doctors felt that #pwME had a poor work ethic
5. Doctors felt that #pwME had a poor attitude, they lacked stoicism and did not make every effort to get better as quickly as possible
#chronicillness #MedEd
bmj.com/content/328/74…
5. Doctors felt that #pwME had a poor attitude, they lacked stoicism and did not make every effort to get better as quickly as possible
#chronicillness #MedEd
bmj.com/content/328/74…
1/ Thread
Myalgic Encephalomyelitis/Chronic Fatigue Syndrome #MECFS
Is it really that bad?
Trigger warnings: The studies below paint a very bleak picture
#MyalgicE #SickNotWeak #pwME #MyalgicEncephalomyelitis #ChronicIllness #MedEd #MedTwitter #SickNotWeak
Myalgic Encephalomyelitis/Chronic Fatigue Syndrome #MECFS
Is it really that bad?
Trigger warnings: The studies below paint a very bleak picture
#MyalgicE #SickNotWeak #pwME #MyalgicEncephalomyelitis #ChronicIllness #MedEd #MedTwitter #SickNotWeak
2/ Full recovery from #MECFS is rare
The median recovery rate from multiple published studies is 3-7%
(just 1 paper linked below)
#MyalgicE #SickNotWeak #pwME #MyalgicEncephalomyelitis #ChronicIllness #MedEd #MedTwitter
academic.oup.com/occmed/article…
The median recovery rate from multiple published studies is 3-7%
(just 1 paper linked below)
#MyalgicE #SickNotWeak #pwME #MyalgicEncephalomyelitis #ChronicIllness #MedEd #MedTwitter
academic.oup.com/occmed/article…
3/ ~25% of #MECFS patients are housebound or bedbound.....
....sometimes for decades!
That means no work, no vacations, no social life, lost time, lost goals, lost relationships.....
journals.sagepub.com/doi/abs/10.117…
....sometimes for decades!
That means no work, no vacations, no social life, lost time, lost goals, lost relationships.....
journals.sagepub.com/doi/abs/10.117…
#MECFS citizen science: What are the answers to these 6 important questions on Myalgic Encephalomyelitis???
The insightful questions below come from this nice @diagnostic_mdpi review
#mdpidiagnostics #pwME #chronicillness #SickNotWeak #MyalgicE
mdpi.com/2075-4418/9/3/…
The insightful questions below come from this nice @diagnostic_mdpi review
#mdpidiagnostics #pwME #chronicillness #SickNotWeak #MyalgicE
mdpi.com/2075-4418/9/3/…
1. Is there a genetic susceptibility which leaves some individuals vulnerable to #MECFS after exposure to a virus, bacteria or toxic chemical?
#pwME #chronicillness #SickNotWeak #MyalgicE @diagnostic_mdpi #medtwitter #genetic
#pwME #chronicillness #SickNotWeak #MyalgicE @diagnostic_mdpi #medtwitter #genetic
2. What is the key initial physiological trigger causing the dramatic downward spiral in health leading to #MECFS?
#pwME #chronicillness #SickNotWeak #MyalgicE @diagnostic_mdpi #medtwitter #immunity
#pwME #chronicillness #SickNotWeak #MyalgicE @diagnostic_mdpi #medtwitter #immunity
I am a #SocialScientist but I can 100% relate. The #OCD episode that led 2 my diagnosis was centred on ethics protocols 4 working w human subjects. Strict adherence is a necessary part of research but my OCD took "making sure everything is done right" next level in a bad way. 1/4
I became consumed with details and risk scenarios to an extent that was counter productive. Completing an ethics application was so triggering it was near impossible. That's when I took medical leave from my #PhD program. #OCD #MentalHealth #PhDLife #SickNotWeak #PhDChat 2/4
1. thread.
Nice @FrontPediatrics paper providing guidance for docs and #pwME in the diagnosis and management of Myalgic Encephalomyelitis/Chronic Fatigue Syndrome #MECFS
#MedEd #MedTwitter #chronicillness #chronicpain #SickNotTired
frontiersin.org/article/10.338…
Nice @FrontPediatrics paper providing guidance for docs and #pwME in the diagnosis and management of Myalgic Encephalomyelitis/Chronic Fatigue Syndrome #MECFS
#MedEd #MedTwitter #chronicillness #chronicpain #SickNotTired
frontiersin.org/article/10.338…
2. #MECFS is commonly misdiagnosed as a #somatic disorder
#pwME "..have been humiliated or dismissed by other providers, so [doctors] will need to be.. nonjudgmental.. & acknowledge that #MECFS is not a #psychological condition but a real illness"
frontiersin.org/article/10.338…
#pwME "..have been humiliated or dismissed by other providers, so [doctors] will need to be.. nonjudgmental.. & acknowledge that #MECFS is not a #psychological condition but a real illness"
frontiersin.org/article/10.338…
3. #MECFS symptoms can be diverse, complex, fluctuate and overlap with many other conditions making the diagnosis difficult
This @FrontPediatrics paper lists 33 (!) co-morbidities commonly associated with #MECFS
#MedEd #MedTwitter #pwME #SickNotTired
frontiersin.org/article/10.338…
This @FrontPediatrics paper lists 33 (!) co-morbidities commonly associated with #MECFS
#MedEd #MedTwitter #pwME #SickNotTired
frontiersin.org/article/10.338…
18 myths & misconceptions of Post-Exertional Malaise #PEM in Myalgic Encephalomyelitis/Chronic Fatigue Syndrome #MECFS
#PEM (aka PENE, "flare" or “crash”) is seriously debilitating symptom caused by exercise
#SickNotWeak #SickNotTired #pwME #chronicillness #medtwitter #MedEd
#PEM (aka PENE, "flare" or “crash”) is seriously debilitating symptom caused by exercise
#SickNotWeak #SickNotTired #pwME #chronicillness #medtwitter #MedEd
1. #PEM is just tiredness
No
#pwME experience <pathological> fatigue after #exercise which can be long-lasting and includes debilitating fatigue, flu-like symptoms, cognitive impairment, #sleep disturbance
@PNASNews #MECFS #MyalgicE #MedEd #medtwitter
pnas.org/content/114/6/…
No
#pwME experience <pathological> fatigue after #exercise which can be long-lasting and includes debilitating fatigue, flu-like symptoms, cognitive impairment, #sleep disturbance
@PNASNews #MECFS #MyalgicE #MedEd #medtwitter
pnas.org/content/114/6/…
thread
Remarkable @bmj_latest @BMJCaseReports report documenting the extreme lengths a bedbound patient went through to get a diagnosis of #POTS, #MCAS, #SIBO and #tachycardia
read her story here
#MedEd #MedTwitter @MayoClinic
casereports.bmj.com/content/2018/b…
Remarkable @bmj_latest @BMJCaseReports report documenting the extreme lengths a bedbound patient went through to get a diagnosis of #POTS, #MCAS, #SIBO and #tachycardia
read her story here
#MedEd #MedTwitter @MayoClinic
casereports.bmj.com/content/2018/b…
2. After suffering for 16 years, seeing 19 docs with repeated misdiagnosis:
Her cardiologist couldnt diagnose #POTS
Her gastroenterologist couldnt diagnose #SIBO
Her immunologist couldnt diagnose #MCAS
Her neurologist referred her to a #psychiatrist!
casereports.bmj.com/content/2018/b…
Her cardiologist couldnt diagnose #POTS
Her gastroenterologist couldnt diagnose #SIBO
Her immunologist couldnt diagnose #MCAS
Her neurologist referred her to a #psychiatrist!
casereports.bmj.com/content/2018/b…
3. Patient: the "neurologist was out of ideas and suggested I get a psych evaluation, which I declined"
the patient <referred herself> to @MayoClinic
#SickNotWeak #chronicillness #chronicpain #MedEd #medtwitter
casereports.bmj.com/content/2018/b…
the patient <referred herself> to @MayoClinic
#SickNotWeak #chronicillness #chronicpain #MedEd #medtwitter
casereports.bmj.com/content/2018/b…
Thread:
The 10 publications below provide scientific evidence that patients with #MECFS have #brain abnormalities in #neuroinflammation, #metabolism, #neurological connections and blood perfusion
#pwME suffer from #chronicillness
#pwME are #SickNotWeak
The 10 publications below provide scientific evidence that patients with #MECFS have #brain abnormalities in #neuroinflammation, #metabolism, #neurological connections and blood perfusion
#pwME suffer from #chronicillness
#pwME are #SickNotWeak
1. These studies “provide evidence of #neuroinflammation in #MECFS.. as well as evidence of the possible contribution of neuroinflammation to the pathophysiology of #MECFS”
#pwME
jnm.snmjournals.org/content/55/6/9…
#pwME
jnm.snmjournals.org/content/55/6/9…
2. This Australian study found abnormalities in the #brain MRIs and peripheral Blood Pressure and Heart Rate in #MECFS patients including the Vasomotor centre, midbrain and hypothalamus
#pwME
sciencedirect.com/science/articl…
#pwME
sciencedirect.com/science/articl…
