Discover and read the best of Twitter Threads about #SickleCell

Most recents (7)

Here’s my latest update to the list of Twitter #Disability & #ChronicIllness Hashtags.

- previous update 02.24.19 -

Please share it! Thank you. :-)

@ImageAltText Graffiti background. Foreground in white letters on a  red background to the left reads “Twitter Disability and Chronic Illness Hashtags”
There will be a PDF version up for download on my Ko-fi, likely tomorrow morning. The link is at the end.
Hashtags For Personal Narratives.

These hashtags are for sharing your stories & experiences. Also good for crowdsourcing solutions.

#InvisibleIllness
#MySpoons
#MyPainDay
#ShareOurPain
#ShareOurStories
#SpoonieStories
Read 58 tweets
#TRIBECON begins #Pravara; felicitations to #AbhayBang @SearchGad & #sudarshan #VGKK for their inspiring work on #TribalHealth; @DrLahariya @whoindia among others felicitated
#abhayBang #healthsystem design for tribal communities need to be relooked for #UHC; strategies & schemes must adapt with local social & cultural context; recollects #Brainstorming with @DesirajuKeshav at @SearchGad leading to #ExpertCommittee #tribalhealth @TribalHealthIND
#TRIBECON #AbhayBang notes with happiness increasing interest in #tribalhealth research, yet this continues to be “off the beaten path”; congratulations to #pravara medical college in bringing this together; the proposed #Bandardhara declaration to improve #tribalhealth research
Read 81 tweets
Thread:

Excited to announce the first cohort of @Pozen @Commonwealthfnd fellows in Minority Health Leadership @YaleSOM. With these stars, the future is, indeed, very bright. som.yale.edu/programs/emba/… @YaleMed @ERIC_Yale @YaleSPH @Yale

1/
Dr. Cecelia ("Cece") Calhoun is a Pediatric Hematologist/Oncologist @WUSTLmed @WUSTL, focused on improving outcomes for patients with #SickleCell disease.
Kennetha Gaines is clinical leader and #NursePractitioner @YourMLKCH in LA, focused on maternal and newborn care. She is also a doctoral nursing candidate @YaleNursing !
Read 9 tweets
I have read through the comments on this thread and seen so many joking about this! Have seen people ask the thread owner to park well! What I say is simple, don't bring a child here to go through what I have gone through for 33 years! Am moved to tell my story a bit!
I don't like the life I have to live under rules, treat malaria every month, filter out certain meals, cant do certain sports, cant swim, the room you sleep in must not be too cold or too hot, drugs on daily basis, antibiotics every now and then to keep infections away, consume
over 6-8 litres of water daily, Pain killers every now and then, I cant even talk about the cost of bringing up such children. First quarter of 2019 alone, spent over 780k on drugs and that should be running out by June, this excludes frequent malaria treatment &healthy eating!
Read 13 tweets
🚨🚨🚨ATTENTION #Spoonies #ChronicPain community, people have been asking for the recent clarifications from the @CDCgov and the @US_FDA to take to their #Doctors, so I have created a pinned tweet with everything. #Opioids 🚨🚨🚨
👉👉👉The @CDCgov clarification appears in an article in @NEJM here nejm.org/doi/full/10.10…
👉👉👉with an accompanying press release: cdc.gov/media/releases…
👉👉👉A quick way to see most of the article, a separate letter issued by the CDC Director @CDCDirector and the @US_FDA warning is to go here: …lthprofessionalsforpatientsinpain.org
Read 14 tweets
Here's my latest update to my collection of active Twitter #Disability & #ChronicIllness Hashtags - previous update 12.13.18.

Please share it. Thank you! :-) Light blue sand background has the # drawn in the sand to the right. The left side is blank. <br />
<br />
At the bottom of the picture, text reads
Portable PDF version will appear on my Kofi in the next day or so.

Link: ko-fi.com/TinuWrites
HASHTAGS FOR PERSONAL NARRATIVES

These hashtags are for sharing your stories & experiences. Also helpful for crowdsourcing solutions.

#InvisibleIllness
#MySpoons
#MyPainDay
#ShareOurPain
#ShareOurStories
#SpoonieStories
Read 45 tweets
Hours of my work day and my very limited energy have been spent fighting with my health insurance company about my coverage.

As of January, my freaking premium now costs $1,978.10 PER MONTH.

This is what Trump did to sick people & everyone applauded last night at the #SOTU
1/
I have no idea who has this kind of money but it's more than I make.

The sicker you are, the more expensive your plan.And there's no option because the #GOP allowed health insurance companies (who just got a huge tax cut) to charge whatever they want for coverage.
2/
So The Wife, who is the same age as I am and who has the exact same plan, pays $239.00 a month for hers.

This is America right now for sick people. I would qualify for #Medicaid expansion if I lived in a different state, but I do not.

This is madness. Just madness.

3/
Read 12 tweets

Related hashtags

Did Thread Reader help you today?

Support us! We are indie developers!


This site is made by just three indie developers on a laptop doing marketing, support and development! Read more about the story.

Become a Premium Member ($3.00/month or $30.00/year) and get exclusive features!

Become Premium

Too expensive? Make a small donation by buying us coffee ($5) or help with server cost ($10)

Donate via Paypal Become our Patreon

Thank you for your support!