Discover and read the best of Twitter Threads about #SickleCellCrisis
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Hey #CPP fam! Have any of you ever felt blackmailed or coerced into talking medication just to get your pain meds? Details will follow in the enclosed thread. 1/?
Iām currently #inpatient for a #SickleCellCrisis and the morning attending talked with me in front of the nurse that instead of getting pain meds every two hours, It would be every three hours, but I would get some breakthrough doses so my pain doesnāt spiral out of control.
However, every time I asked for a dose, the orders werenāt in the system. So Iāve been fighting for these extra doses ALL DAY LONG! I could tell that the nurse felt bad about it too. At shift change the orders STILL ARENāT IN THE COMPUTER! š”š¤¬š¤
Hey #CPP fam! Can someone please point me to the right direction? Iām currently inpatient due to a #SickleCellCrisis and I usually get IV Benadryl because Iām severely allergic to CHG and adhesive tapes. However the docs are only giving me oral meds which just isnāt working.
The allergic reaction I get is that my skin blisters with extremely intense itching to the point that it causes pain. The blisters are delicate and pop open with the slightest touch, even when rubbing against clothing and eventually everything scabs up.
I have photo documentation of the allergy, and the doctor is still refusing to give me IV Benadryl, citing protocol and hospital policy. My arms are scarred up from the last time this happened when I was admitted here. I called patient services and left a message.
Dear #MedTwitter, you need a be more aware of the after effects of #MedTrauma. Intense research or questioning/constant second opinions doesnāt always mean hypochondria. Maybe someone was misdiagnosed one too many times which led to too many life threatening situations.
Constant over-explaining doesnāt mean that theyāre trying to make up a story. Maybe they just want to make sure that you have all the details to avoid misdiagnosis. Maybe they just want to make sure that you BELIEVE THEM.
These are just a few examples, but PTSD due to #MedTrauma is real and it greatly impacts people with chronic illnesses. I know because I have it myself. My last few health crises I diagnosed myself because I was constantly being misdiagnosed which even put my life at risk.
Iāll say it AGAIN for the people in the back... I DONāT WANT A āCUREā FOR #SICKLECELLDISEASE! What I DO want is for our pain to be TREATED NOT IGNORED. I DONāT want to worry about the ER docs labelling me as a drug seeker out of IGNORANCE/BIGOTRY. 1/?
When I come to the ER, I want to be BELIEVED when I say Iām having crisis pain. Followed by PROMPT AND EMERGENT administration of the dose of pain medication I NEED! Sickle Cell crises are an #ActualEMERGENCY and require immediate treatment! More time in pain = MORE COMPLICATIONS
The longer someone is in pain without relief, the more likely theyāll need an admission into the hospital! Also, pain scales are garbage! Personally I measure my pain by my ability to function. If Iām in the ER, Iām not functioning!
MALARIA Vs GENOTYPE AA
Here's why people with #genotypeAA are more prone to malaria:
The commonest malaria parasite (Plasmodium falciparum) loves plenty of blood & oxygen. Since AA is the perfect one with plenty of blood & oxygen, the parasite prefers AA blood.
RT
Here's why people with #genotypeAA are more prone to malaria:
The commonest malaria parasite (Plasmodium falciparum) loves plenty of blood & oxygen. Since AA is the perfect one with plenty of blood & oxygen, the parasite prefers AA blood.
RT
Studies show the following malaria susceptibility ratios, among children with different genotypes:
AA: 92.3%
AS: 5.1%
SS: 2.6%
Can you see the difference?
AA: 92.3%
AS: 5.1%
SS: 2.6%
Can you see the difference?
But be warned. Malaria is more harmful in persons with Genotype SS coz it can cause life-threatening #SickleCellCrisis.
This crisis doesn't occur in people with Genotype AA.
This crisis doesn't occur in people with Genotype AA.
Someone asked, "Are people with #GenotypeAA more prone to #Malaria?"
Let's quickly answer this.
A thread š§µ
{Share to create awareness!}
Let's quickly answer this.
A thread š§µ
{Share to create awareness!}
Yes! People with #genotypeAA are more prone to malaria.
Reason:
The commonest parasite that causes #malaria (Plasmodium falciparum) loves plenty of #blood & #oxygen.
Since AA is the perfect #genotype with plenty of blood & oxygen, the parasite prefers AA blood.
Reason:
The commonest parasite that causes #malaria (Plasmodium falciparum) loves plenty of #blood & #oxygen.
Since AA is the perfect #genotype with plenty of blood & oxygen, the parasite prefers AA blood.
There's a substance in blood called #hemoglobin. It carries oxygen to your tissues.
People with #genotypeAA have the perfect hemoglobin & hence plenty of oxygen in it. That's why malaria parasite prefers infecting them instead of people with AS & SS.
(The parasite wise abi!)
People with #genotypeAA have the perfect hemoglobin & hence plenty of oxygen in it. That's why malaria parasite prefers infecting them instead of people with AS & SS.
(The parasite wise abi!)
