Discover and read the best of Twitter Threads about #SimonsLaw
Most recents (2)
With fair care, appropriate interventions, and the right treatment, amazing things can happen!
"Look at me now PCH! I guess I wasn't at the end of my rope after all, huh? I really wish I could show you guys how tough I am, and how well I'm doing now. How's this for
"Look at me now PCH! I guess I wasn't at the end of my rope after all, huh? I really wish I could show you guys how tough I am, and how well I'm doing now. How's this for
'QuAlItY oF LifE?' I don't know about you, but my life is filled with so much fun, and people that love me. I'm nearly walking all by my self. I'm starting to like food. And, guess what? I'm off ventilator almost all day!
Thank you to Boston for believing in me and valuing
Thank you to Boston for believing in me and valuing
my life enough to save it. 365 days ago I was discharged from the hospital, after being inpatient for 5 months, at 3 different hospitals, in 3 different states, including one 16-hour heart and airway surgery. Because of Boston Children’s, I am able to breathe so much better.
🧵 🪡 time again: Look at this sweet girl!!!
Read more for mom’s story of what’s been a truly miraculous life:
Read more for mom’s story of what’s been a truly miraculous life:
Hello Everyone-
I wrote this to the geneticist who gave our family no hope, in 2019, for our child Sajjona.
I find it important to share the response w/the world. Name is not disclosed…pictures for cuteness
To all trisomy families or families
I wrote this to the geneticist who gave our family no hope, in 2019, for our child Sajjona.
I find it important to share the response w/the world. Name is not disclosed…pictures for cuteness
To all trisomy families or families
who were told their child was incompatible with life or a vegetable- this is what our advocating accomplishes—
#change!!!!
Please read the response to my letter from unnamed doctor & you’ll see why we need to keep writing letters when our children were labeled & given no hope.
#change!!!!
Please read the response to my letter from unnamed doctor & you’ll see why we need to keep writing letters when our children were labeled & given no hope.
