Discover and read the best of Twitter Threads about #StillSickStillFighting
Most recents (5)
Hi, I'm Emily! I used to be a documentary filmmaker, teacher, environmental activist, artist, adventurer, wife, friend. Now I spend 22 hours a day in bed, too sick to interact w/ the world, too sick to watch films, much less make them.
#MillionsMissing
#MECFS
#LongCovid
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#MillionsMissing
#MECFS
#LongCovid
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Over the past 3 years of the pandemic, millions more have joined me in this abyss of illness. We’ve been swept under the rug by the government, doctors, & society. We need research funding, financial support, treatments, a cure. We need our lives back.
#StillSickStillFighting
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#StillSickStillFighting
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Thank you to @MEActNet & @itsbodypolitic for putting together this stunning protest on the National Mall today to help make the millions of us who have disappeared from our lives visible.
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The government's public health crisis may be officially ending, but for millions of people with ME/ Long Covid, we are #StillSickStillFighting.
#MillionsMissing 2023 is May 12th at the Washington Monument featuring an art installation & press conference. millionsmissing.org
#MillionsMissing 2023 is May 12th at the Washington Monument featuring an art installation & press conference. millionsmissing.org
ME/CFS is a neurological disease with symptoms in all body systems that affects people of all ages and backgrounds. Most cases of ME/CFS are triggered by infection, often a viral infection. Before the pandemic, there were millions of people in the US living with ME/CFS.
Now, half of the Long COVID community meets the diagnostic criteria for ME/CFS. This more than quadrupled the number of people living with ME/CFS in the US.
#MECFS #LongCovid
#MECFS #LongCovid
I have #MyalgicEncephalomyelitis. It’s been 9 days since @MEActNet’s #StillSickStillFighting action + I wanted y’all to have a glimpse of what #PEM is. Post-exertional malaise is the hallmark symptom for #pwME #MECFS, which half of #pwLC #LongCovid have
#NEISvoid (1/18)
#NEISvoid (1/18)
When we push ourselves beyond our energy envelope + don’t #StopRestPace, we end up with #PEM, where we “crash” and get much sicker. (I’m in the front here! We’re used to lying down, but getting up + down, lying on the hot pavement while chanting is really rough for us!) (2/18)
So for this action, we prepared. I got good rest Frid-Sun. I was good about using mobility devices + prioritizing comfort for transit + lodging. I took all my meds (even supplements!) when I was supposed to, put on sunscreen, drank water. Look how rested and ready! (3/18)
I created this reel to tell my story of viral-triggered #MECFS and why I fight for a national emergency declaration with @MEActNet for #MECFS and #LongCovid :
instagram.com/reel/Cisx1oeDG…
Here's a thread of each still photo telling my story, for accessibility purposes: 1/
instagram.com/reel/Cisx1oeDG…
Here's a thread of each still photo telling my story, for accessibility purposes: 1/
Years later, I was diagnosed with #MyalgicEncephalomyelitis / Chronic Fatigue Syndrome. At that time (pre-pandemic), it was estimated up to 2.5 million Americans had ME/CFS.
3/ #MECFS
3/ #MECFS
@Phil_Lewis_ For those looking to better themselves now that the ‘pandemic is over’ please take a look at Tollovid. Same 3CLpro inhibitor mechanism Pfizer’s Paxlovid, but natural dietary supplement. Data in acute and LongCOVID $TOMDF
researchgate.net/publication/36…
researchgate.net/publication/36…
