Discover and read the best of Twitter Threads about #StopGET
Most recents (3)
If you or someone else has been harmed by GET please share on here. This is from someone on FB.
"My daughter had GET and her health deteriorated. She needed to use a wheelchair. Didn’t manage school and was unable to complete her education."
#GETstories
#GETharms
#MECFS
"My daughter had GET and her health deteriorated. She needed to use a wheelchair. Didn’t manage school and was unable to complete her education."
#GETstories
#GETharms
#MECFS
Story above continues: "just also like to add that the physiotherapist stopped GET when she saw my daughter deteriorating and the paediatrician agreed with her decision.
#GETstories
#GETharms
#MECFS
#GETstories
#GETharms
#MECFS
We kept activity charts when doing GET and the physiotherapist could see from the charts the harmful impact exercise was having on my daughter. The charts showed a clear pattern which was much easier to visualise than if we had just talked about it"
#GETstories
#GETharms
#MECFS
#GETstories
#GETharms
#MECFS
We have been staunch opponents of graded exercise therapy (#GET) as a treatment for #pwME and are thrilled that our research played a role in removing this harmful treatment from #NICE guidelines. Below we highlight some of our efforts to #stopGET ➡️ thread 1/ 
@4Workwell collaborated with @DialoguesMECFS to develop videos explaining energy systems and why graded exercise therapy is damaging #pwME. Please see our latest pacing video - we caution against using heart rate formulas designed for healthy people. 2/ dialogues-mecfs.co.uk/films/pacing/
In 2018, @4Workwell wrote a letter for patients to share with their #healthcare providers explaining the harms of graded exercise therapy for #pwME - 3/ workwellfoundation.org/wp-content/upl…
Review protocols so 'robust' That Cochrane continues to endorse graded exercise therapy as a treatment for ME even though the decision is based on extremely poor quality research and flies in the face of the experience of millions ME sufferers. #pwME #MyalgicE #StopGET #MEcfs
Cochrane’s decision also ignores more and more research like this demonstrating the negative effect exercise has on ME. #pwME #MyalgicE #ScienceNotStigma #MedEd #MEcfs #health #GPnews
healthrising.org/blog/2019/10/1…
healthrising.org/blog/2019/10/1…
Are Cochrane’s editors unduly influenced by the authors of the flawed research? How else can their decision to defend research that's dismissed by academics around the world be explained? How can they ignore the mounting evidence that shows exercise harms people with ME?
