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15 years ago today, my baby girl died in my arms at 5 1/2 months old after suffering excruciating pain from a rare metabolic syndrome. The gruesome details of the long ordeal I will not go into. After doing everything we could we signed a DNR and took her off life support... 1/
We had a meeting with the hospital pastor, the palliative care director, and specialists of various types who all tried to help us save Nicole. The consensus was that if she survived, she would have no quality of life but that it was unlikely she would pull through w/o. 2/
Life support. We were told we might be able to keep her alive longer with a tracheotomy (she already had a feeding tube). It was clear to us by this point that our little baby girl was dying. We chose not to go with a tracheotomy and decided that Nicole's 3/
