Discover and read the best of Twitter Threads about #TransHealthEthicsProject

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THREAD: Yesterday, we saw negative narratives from my #TransHealthEthicsProject interviews with #trans folks re: #healthcare. Most had a mix of both pos & neg. What does good care look like? And what are some tips/guidelines for delivering it? 1/n
#TransAwarenessWeek #bioethics
Let's start w/Simon, whose negative experiences we saw yesterday, including being misgendered and outed by front office staff, especially when he sought Gyn care. I asked all participants to say what would be better--or in fact was better sometimes--than negative experiences. 2/n
Simon said "I think better responses are just, if they’re asking if you’re a new patient starting with
basic things rather than starting with a birthdate, because that kind of breaks it down. It seems
weird but if you start with a birthdate then we can start somewhere..." 3/n
Read 36 tweets
THREAD: Sunday, I tweeted re: trans folks' feelings seeking healthcare: anxious, humiliated; when it works, good. Here are some narratives that help explain. We'll do negative narratives today, and positives Tuesday.
#TransHealthEthicsProject
#TransAwarenessWeek
#bioethics
Paul Farmer, public health advocate and a founder of Partners in Health (@PIH) says, “stories illustrate some of the mechanisms through which large-scale social forces crystallize into the sharp, hard surfaces of individual suffering.” #narrativematters #bioethics #meded
@PIH Of course, stories also remind us of the joy that folks can take in life even when suffering occurs. And trans joy is real.
But alas, today I'm going to tell you about how clinical encounters damage trans folks, how a source of help is too often a source of harm. 3/n
Read 37 tweets
THREAD: "What words or phrases come to mind when you think about seeking health care?" I asked #trans & #nonbinary folks in #TransHealthEthicsProject. This word cloud shows the overall sense of dismay. The individual responses are a gut punch. 1/n

#TransAwarenessWeek #bioethics
"Do I have to?
Will I die if I don't?
How much is this going to cost?"
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"Embarassing. Humiliating. Judgmental."
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"Anxiety. Being discovered. Not getting the care that I need. Not being believed. Becoming an experiment."
2/n
#TransHealthEthicsProject #TransAwarenessWeek
"Red fucking tape. Money I don't fucking have... difficulty paying for things, and always having to navigate a stupid sea of referrals and bureaucratic BS for getting a damn appointment."
3/n
#TransHealthEthicsProject #TransAwarenessWeek
Read 8 tweets
THREAD:#TransHealthEthicsProject interviews w/#trans folks are "thick" examples of barriers to care described generically in surveys. #doctors & #nurses often say "those patterns are terrible, but how can I know if I am doing it?" #narrativematters #bioethics #TransAwarenessWeek
I used a standardized array of interview questions across 15 hours of interviews with trans folks regarding their experiences seeking health care in the United States, both POSITIVE AND NEGATIVE, to give providers #narrative examples/guidelines on what not to do, AND what to do.
I did the interviews and my research assistants (@BreanneRBurton, Ren Czachor, Jake Richardson, and Harry Silvey) transcribed them so that no unknown persons would have access to the audio. While some participants gave permission to share audio, all permit sharing transcripts.
Read 7 tweets
THREAD: This summary of key findings from the "largest-ever study of transgender and gender non-conforming people in the United States" is essential reading for #medical and #nursing personnel. 1/n
#TransAwarenessWeek
#TransHealthEthicsProject
#bioethics
thetaskforce.org/new-report-rev…
“Finding doctors who will treat, will prescribe, & will even look at you like a human being rather than a thing has been problematic. Have been denied care by doctors & major hospitals so much that... I never reveal my gender history.” — Survey Respondent 2/n
Nearly 1 in 5 trans folks surveyed (19 percent) reported being refused health care care outright because they were transgender or gender non-conforming.

REIHELD NOTE: this is consistent across studies, & across US and Canada. Access to care is about bias, not just systems. 3/n
Read 9 tweets

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