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So let’s talk about where things got up to with your #HealthData, before Rishi Sunak started talking about the need to generate trust in Government with “#integrity” and “#accountability”…
gov.uk/government/spe…
gov.uk/government/spe…
Earlier today we got a bunch of detail out of @NHSDigital’s Board papers and services performance pack - what of that will continue post-#merger?
N.B. The chair of NHS Digital announced today’s meeting would be the last public meeting of the Board...
N.B. The chair of NHS Digital announced today’s meeting would be the last public meeting of the Board...
With the news that the Government is rushing through @NHSEngland’s takeover of the statutory safe haven (@NHSDigital) with about the level of planning that went into the 'fiscal event', where exactly *are* things as the former/new Sec State starts work?
🧵1/ JUST PUBLISHED: Association of COVID-19 with major arterial and venous thrombotic diseases: a population-wide cohort study of 48 million adults in England and Wales. ahajournals.org/doi/10.1161/CI…. An amazing team effort.
3/ Using the @NHSDigital Trusted Research Environment for England (bit.ly/3RfV5J7), which was established by @BHFDataScience, we analysed linked electronic health record data on 48 million adults in #England (nearly the whole population).
I see #NHSEx has published the slides from its @HDR_UK “Data Access & Discovery” event, charmingly subtitled “A Forest Through the TREs” - on YouTube, if you want to listen:
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*I thought the phrase was “cannot see the forest for the TREs”, but hey...
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*I thought the phrase was “cannot see the forest for the TREs”, but hey...
Let’s take a look:
hdruk.ac.uk/wp-content/upl…
One reason we use the category term #TRE to refer to Trusted Research (or any other use) Environments that meet the #FiveSafes is that everyone wants to call their own TRE something different, so no-one really knows what they mean...
hdruk.ac.uk/wp-content/upl…
One reason we use the category term #TRE to refer to Trusted Research (or any other use) Environments that meet the #FiveSafes is that everyone wants to call their own TRE something different, so no-one really knows what they mean...
Call yours what you like (e.g. for @ONS it's their Secure Research Service) but if it only does four #Safes, or three Safes - and if it isn’t also #consensual and fully #transparent - then it's not a #trustworthy TRE...
Finally, the #GoldacreReview is published! (During Parliamentary Easter holidays, mid-ping-pong on the #HealthAndCareBill...)
It's 221 pages - each PDF page is a double page spread - so this could be a lo-o-o-ong [Thread].
Here goes...
It's 221 pages - each PDF page is a double page spread - so this could be a lo-o-o-ong [Thread].
Here goes...
First point to note, in the Terms of Reference (p5), is that this is about "access to #NHSdata by #researchers, #commissioners, and #innovators" - i.e. #Planning and #CommercialReUse - so it is directly relevant to the operation of millions of people's #NationalDataOptOuts...
"185 wide-ranging recommendations for us to explore", says @sajidjavid (p6). Gulp! Time for some coffee...
"systems that ensure #underrepresented groups are well represented" may (partly) refer to this "landmark review", which got off to a slow start:
gov.uk/government/new…
"systems that ensure #underrepresented groups are well represented" may (partly) refer to this "landmark review", which got off to a slow start:
gov.uk/government/new…
...which, despite fine words about "maintaining high standards", is plainly the intent of @DCMS's proposed #DataProtection 'reforms':
assets.publishing.service.gov.uk/government/upl…
...which include the intent to (re)define "#ScientificResearch" 🤔🤔🤔
assets.publishing.service.gov.uk/government/upl…
...which include the intent to (re)define "#ScientificResearch" 🤔🤔🤔
Of course, we understand #TIGRR's "enthusiasm for #digital", its eye on the value of "highly #profitable consumer data", and frustration with the pesky #protections and #safeguards of #UKGDPR...
assets.publishing.service.gov.uk/government/upl…
assets.publishing.service.gov.uk/government/upl…
There seemed to be some confusion about (the use of) words in @CommonsHealth Committee yesterday morning, so here's a [Thread] to try to clarify.
First "#commercial". It is of course the case that many parts of the #NHS use commercial providers, e.g. of software, whether that...
First "#commercial". It is of course the case that many parts of the #NHS use commercial providers, e.g. of software, whether that...
...is @Microsoft365 for word processing, spreadsheets & e-mail; or IT systems to handle patients' records in hospitals (e.g. @CernerUK) & General Practice (e.g. @TPP_SystmOne, @EMISHealth, @CegedimHS); or software to drive complicated equipment like #MRIscanners, etc.
This is...
This is...
..entirely normal use of #commercial software & software services, for which the #NHS body is the #DataController. Apart from when that software goes wrong, I don't believe many would have concerns about this.
Then there are #commercial providers of #NHS services, about which...
Then there are #commercial providers of #NHS services, about which...
The #GPDPR #GPdata upload will still be going ahead, but it will no longer be starting on 1 September 2021 - the programme will have to meet 3 (or 4) #tests first instead:
digital.nhs.uk/news-and-event…
digital.nhs.uk/news-and-event…
We'll let you do the diff between the "criteria" laid out in the announcement on @NHSDigital website and the "key areas of work" listed in the letter to GPs from @Jochurchill4 this afternoon:
file-eu.clickdimensions.com/hscicgovuk-amn…
file-eu.clickdimensions.com/hscicgovuk-amn…
Which will all make the oral evidence session in front of @CommonsHealth Committee tomorrow morning quite interesting...
committees.parliament.uk/event/5286/for…
See you there!
committees.parliament.uk/event/5286/for…
See you there!
Hi, @BHFDataScience! Please could you point me to a copy of your letter that is reported here:
theguardian.com/science/2021/j…
I've checked your website, but I can't seem to find a copy:
hdruk.ac.uk/helping-with-h…
theguardian.com/science/2021/j…
I've checked your website, but I can't seem to find a copy:
hdruk.ac.uk/helping-with-h…
Ah, no worries - I see it now. You tweeted a link to it, and I see it is on @HDR_UK's website:
hdruk.ac.uk/news/nhs-digit…
On reading your letter, @medConfidential would heartily agree with paragraphs 1, 3 and 5...
hdruk.ac.uk/news/nhs-digit…
On reading your letter, @medConfidential would heartily agree with paragraphs 1, 3 and 5...
On paragraph 3, we very much agree that #trustworthy use of patient data for #ethically-approved #research is good.
But not ALL intended uses of #GPDPR *are* trustworthy, as @NHSDigital's own data release registers confirm:
theysolditanyway.com
But not ALL intended uses of #GPDPR *are* trustworthy, as @NHSDigital's own data release registers confirm:
theysolditanyway.com
Está na pauta da sessão de amanhã do #Senado o projeto de lei #PL 5.029/2019, que altera a legislação #eleitoral. O PL gera retrocessos escandalosos nas leis eleitorais e estimula #corrupção, #lavagem de bens e outros #crimes com NOSSO dinheiro. Está aqui: is.gd/PL50292019
O #PL5029 altera a Lei dos #Partidos Políticos (Lei 9.096/1995). Um dos maiores problemas é a mudança dos arts. 30 e 31 da lei, para permitir que os partidos usem qualquer sistema de contabilidade do mercado para #prestaçãodecontas. Hoje precisam usar o sistema mantido pelo #TSE
Se cada #partido prestar contas em sistema próprio, será impossível à Justiça Eleitoral usar critérios homogêneos e cruzar informações. As #prestaçõesdecontas dos #partidos, que já não são controladas com eficiência, virarão de vez prestações de faz-de-contas
