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I remember being a young kid, maybe 6-7 years old, and going on live TV in front of thousands of people. I remember by parents saying on TV that I was 'dying' - and I remember how painful that was because that was honestly news to me.

#EndTheTelethon #TurnOffPity
Of course, I wasn't dying. I was a child who had complex medical needs, and of course, this was used to shamelessly raise money from a public who pitied disabled people.

#EndTheTelethon #TurnOffPity
I remember how hard that was to carry. I had never felt so alone in my life. I had to carry that by myself, and to some extent, I still do carry that. When I see that MDA is doing another telethon, I think of that young girl. And how afraid she was.

#EndTheTelethon #TurnOffPity
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