Discover and read the best of Twitter Threads about #WeAreNotWaiting

Most recents (5)

After 36 years of type 1 diabetes (#T1D), the last year or 2 have been tougher than usual. Patterns shifting bit by bit, my old tricks not working so well anymore, hypo unawareness getting worse, lows coming out of nowhere, increasing fear of travel, fear of driving, less energy.
I started using versions of this slide at the start of my talks earlier this year. The unpredictability had started to bleed into my talks. (“Hey, this isn’t a pager, it’s a medical device. It might beep. I might need to check it. I’m not being rude. I can’t turn it off. Sorry.”) A slide with photos: a small girl colouring, a test tube urine testing book, a woman with a sensor in her arm, a meme with
I developed a new side effect of low blood sugar: deep despair that lingers for hours. It’s about as fun as it sounds, sweeping in for a leisurely stay on the heels of brutally disruptive out-of-nowhere lows. I already hated hypos enough.
Read 25 tweets
I don’t speak in hyperbole very often, and I want to make sure that you all understand what a big deal this is for the diabetes DIY community. Everything that we’ve worked for for the last 20 years, it all changes now. #WeAreNotWaiting
Every diabetic engineer every, the day after they were diagnosed, tries to solve their (or their loved one's) diabetes with open software and open hardware. Every one. I did it in the early 90s. Someone diagnosed today will do this tomorrow. Every time.
I tried to send my blood sugar to the cloud from a PalmPilot. Every #diabetes person ever does this. Has done this. Then @NightscoutProj happened and #WeAreNotWaiting happened and we shared code and now we sit on the shoulders of people who GAVE THEIR IDEAS TO USE FOR FREE
Read 14 tweets
@dmccallie @HealthPrivacy @rickybloomfield @CommonWell Oh, my dude. So "nope" on that. If provider-provider solutions were either (a) present or (b) possible as solutions, woulda happened by now. But we're still in the clutches of Capt. Click, were dropdown menus proliferate but actual data/work flows are frozen sludge /1
@dmccallie @HealthPrivacy @rickybloomfield @CommonWell Dirtiest of dirty secrets in this arena is that there's no money in interop. Duplicative processes, rabbit holes where handoffs should be, all in service of preserving ever'body's revenue flow. NO ONE wants to give up their slice of ... /2
@dmccallie @HealthPrivacy @rickybloomfield @CommonWell That almost-$4-trillion-with-a-T cash hose that continues to crush all sectors of the US economy. Outcomes suck, but shareholder value is LIT AF, FAM! It's head/desk all day long in patient-ville. And it's literally killing us. /3
Read 5 tweets
The Instant, Custom, Connected Future of Medical Devices nyti.ms/2E9WeiR <- catching up on recent (fabulous) #InventHealth examples
There's something in that @nytimes story for everyone: #wearenotwaiting for innovation in diabetes tech; "smart pills" and bottles; mobility aids -- even mention of the bogeyman of device innovation: Theranos
3-D printers can create patient-specific medical devices, like knee joints, in one-fifth to one-tenth of the time that traditional custom-made devices are made (!) nyti.ms/2E9WeiR
Read 4 tweets
A brief history of how the #WeAreNotWaiting hashtag came to be. (thread)
On November 15, 2013, @AmyDBMine @DiabetesMine @Tidepool_org Line co-hosted the first D-Data Exchange in a small room at @Stanford.
Line was @skrugman and @ianjorgensen's healthcare design studio - they were working with @Tidepool_org at the time and helped produce the event. That week, all of the Tidepoolers were having an offsite at my house.
Read 17 tweets

Related hashtags

Did Thread Reader help you today?

Support us! We are indie developers!


This site is made by just three indie developers on a laptop doing marketing, support and development! Read more about the story.

Become a Premium Member ($3.00/month or $30.00/year) and get exclusive features!

Become Premium

Too expensive? Make a small donation by buying us coffee ($5) or help with server cost ($10)

Donate via Paypal Become our Patreon

Thank you for your support!