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It's #WorldCerebralPalsyDay, so here is your reminder that adult services for folks with CP are non-existent, and very little research has been carried out into things like, say, how my CP will change as I age.
CP is oddly categorised as the most common childhood motor disability, yet those kids grow up to be adults, who find that there's no support, services or even any real information for adults with CP.
What does a lack of research, information and services look like in real terms? Well, a few years ago, I started to lose mobility. I asked my GP, what could I expect as I age? To their credit, the GP was honest and said they couldn't say, because the research isn't there.
