Discover and read the best of Twitter Threads about #aprèsJ120

Most recents (6)

Update Day 150 (!!!!): This one's a bit of a mixed bag. Let me start with the good news. My husband and Kid 2 are asymptomatic and have been for a couple of weeks. Kid 2's energy is back and then some.
#COVID19 #CovidLonghaul #LongHauler #ApresJ120 #CovidandKids
Kid 1's only symptom is a swollen lymph node in her chest that has been stubbornly hanging on for weeks now. We took her to the osteo yesterday and by working on her neck and shoulder, the osteo managed to bring it down in size, but the bump still bothering Kid 1.
Kid 3 got a steroid inhaler four weeks ago. After a week of using it, she had 8 blissful cough-free days. Then the cough came back. We now seem to be in a holding pattern, with 2-3 days of coughing, followed by 2-3 days without. Still waiting on the respirologist.
Read 7 tweets
We got an email from the OCSB yesterday asking about our school plans for the fall. Honestly, we don't have any plans until we see their plans. But seeing what they're proposing so far, I have real concerns as a mom to three #Longhaulers.
Obviously, we want to prevent our kids from getting sick. That should be our first and foremost concern. But we can't eliminate all risk, which means that some kids are going to get sick. So what happens then?
How long do kids have to stay home if they get sick? When can they return? Can they go back to school if they still have symptoms as long as they had a negative test? Or do they have to stay home as long as they have symptoms?
Read 7 tweets
Update Day 120: Things are continuing to move in the right direction. My husband & I both had a relapse last weekend, but our progress is still evident. M. had one day of extreme fatigue and that was it. #Covid19 #CovidLonghaul #ApresJ120 #longhaul
I had a couple days of pleural pain, and even then it was relatively minor and only when walking or moving too much. I got a couple skin sores, but they have been tiny and did not get infected. And that was it; no full body aches, no hugely swollen glands. A bit more fatigue....
but still able to move every day and now up to an average of 5,000 steps a day. Kid 1 has had a blocked lymph node for 4 straight weeks and is a bit more sneezy than usual, but otherwise fine. Kid 2 has some days of real fatigue but mostly seems back to himself again.
Read 4 tweets
#aprèsJ20 #aprèsJ60 #aprèsJ90 #aprèsJ120

Comment minimiser les rechutes induites par les activités physiques et cognitives ?

Quelques conseils essentiels pour gérer vos activités selon votre énergie disponible (pacing) & sur le repos ⬇️

drive.google.com/file/d/17XY5dL… (2 pages)
Ces recommandations concernent l’encéphalomyélite myalgique (« syndrome de fatigue chronique »), qui est caractérisée par le malaise post-effort (MPE).

Elles peuvent aussi aider à récupérer de la fatigue post-virale, avec ou sans MPE.

Infos sur l’EM ⬇️
https://t.co/hr7ZmqbGG8
Merci à @EmergeAus pour ce guide. Version originelle en anglais : emerge.org.au/Handlers/Downl…
Read 3 tweets
Un lien entre vitamine D et #coronavirus ?
👉 Les causes de carence (surpoids, vieillesse, peau foncée, manque d'ensoleillement en hiver et confinement strict) augmentent les risques de développer les formes sévères du #COVID__19.
🔗theconversation.com/does-vitamin-d…
Les carences en vitamine D ne semblent pas pouvoir expliquer seules la surmortalité des personnes de couleur face au #COVID__19.
👉Sur les 119 décès de soignants au Royaume-Uni, 94% étaient noirs, asiatiques ou d'autres minorités.
🔗abcnews.go.com/Health/vitamin…
🌐Quand les Décodeurs défendent l'efficacité sanitaire du confinement aveugle et policier malgré les signes évidents de son échec.
Pour quelle autre raison les pays qui ont confiné sans séparer les infectés des autres observent la pire mortalité au monde ?
francesoir.fr/opinions-tribu…
Read 15 tweets
#aprèsJ20 @apresj20 #aprèsJ60 #aprèsJ90 #aprèsJ120

Le syndrome de fatigue chronique, ou encéphalomyélite myalgique (EM), séquelle possible du #COVID19 ?

⚠️ Beaucoup d'infos fausses & dangereuses circulent

Nous sommes une asso de patients d'EM. On vous explique ce que c'est 👇
➡️ Comment apparaît l'EM / SFC ?

Dans ~70% des cas, l'EM suit une infection virale. Elle débute d'abord par un syndrome de fatigue post-virale (SFPV).

Si le SFPV persiste *6+ mois*, un diagnostic d'EM s'envisage. Pas avant : parfois, il faut "juste" du temps pour s'en remettre.
➡️ Symptômes de l'EM (1)

Un épuisement post-infectieux invalidant ?

Oui, mais *pas que* : LE symptôme qui définit l'EM, c'est le malaise post-effort (MPE).

Il vient 12 à 48h, voire 72h, après une activité physique ou cognitive que vous pouviez faire sans problème auparavant.
Read 20 tweets

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