Discover and read the best of Twitter Threads about #believesicklecellpatients
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I just want to scream as loud as I can, then cry into my pillow. I’m trying to find a new #SickleCell doctor, but the program I want to go to isn’t accepting new patients.
I don’t feel comfortable enough to go to a private practice so I’m doing the intake for the SCD program at the main campus of the same medical network. Hopefully the medical care will be just a good, but I’m not holding my breath.
I just hope that they’re willing to actually treat my pain instead of twisting it into something where I’m taking all of the blame. Since my current doctor thinks that my pain is somehow my fault like I’m purposefully causing pain crises.
I’ll say it AGAIN for the people in the back... I DON’T WANT A “CURE” FOR #SICKLECELLDISEASE! What I DO want is for our pain to be TREATED NOT IGNORED. I DON’T want to worry about the ER docs labelling me as a drug seeker out of IGNORANCE/BIGOTRY. 1/?
When I come to the ER, I want to be BELIEVED when I say I’m having crisis pain. Followed by PROMPT AND EMERGENT administration of the dose of pain medication I NEED! Sickle Cell crises are an #ActualEMERGENCY and require immediate treatment! More time in pain = MORE COMPLICATIONS
The longer someone is in pain without relief, the more likely they’ll need an admission into the hospital! Also, pain scales are garbage! Personally I measure my pain by my ability to function. If I’m in the ER, I’m not functioning!
