Discover and read the best of Twitter Threads about #belikelight
Most recents (2)
The privacy holes were never really plugged. A thread. #BeLikeLight
In 2018, we filed an @FTC complaint regarding privacy of groups.
We reported back then the $5 Billion Settlement had NO remedies / protections for health information. #BeLikeLight
statnews.com/2019/07/31/fac…
We reported back then the $5 Billion Settlement had NO remedies / protections for health information. #BeLikeLight
statnews.com/2019/07/31/fac…
Then a pandemic happened. The "privacy holes" got exploited by targeting vulnerable communities with disinformation.
Even FDA Commissioner Rob Califf has called out medical misinformation as a leading cause of death in the US. #BeLikeLight
healthjournalism.org/blog/2022/04/f…
Even FDA Commissioner Rob Califf has called out medical misinformation as a leading cause of death in the US. #BeLikeLight
healthjournalism.org/blog/2022/04/f…
@ePatientDave @HealthHats @DrDannySands @lizsalmi @tessajlrichards @BMJPatientEd So much truth - IMO this flip to consumerism WITHOUT full participation of both clinical experts and patient community leaders in creating health literacy resources for humans is root cause of much "I did my own research" nonsense now driving medical misinformation online.
@ePatientDave @HealthHats @DrDannySands @lizsalmi @tessajlrichards @BMJPatientEd What I mean by that is "the academy" (in this instance the @AmerMedicalAssn who I give fish-eye to on the regular over their K St lobbying in service of status quo in US healthcare spend, but I digress) has missed eleventy-million-and-five opportunities to ... /2
@ePatientDave @HealthHats @DrDannySands @lizsalmi @tessajlrichards @BMJPatientEd @AmerMedicalAssn Team up with patient community leaders savvy in comms, community organizing, and *science* to build health literacy resources that can be deployed all over ever'where to help humans be prepared to made decisions about their/their families' health. /3
