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Definitely has not yet properly sunk in that - if how I am right now is roughly what my baseline level of energy/PEM/ pain/other sx/digestion should be - then...basically I never properly recovered from that #crohns flare in 2014 that my now-former gastro said wasn’t a flare. 🥺
(I know it’s partly the #corticosteroids. I KNOW. But everyone at the hospital was keen to reassure me that it isn’t ONLY the steroids, & the difference in my previously-unnoticed levels of gut pain & the truly ridiculous levels of malabsorption alone is... kind of staggering.)
I am SO MUCH LESS #ActuallyAutistic-mode anxious & so much more functional than usual &I'm trying not to have an emotional explosion over it bc I'd been like ~that~ for sooo long by now I think I’d almost forgotten that I haven't actually been like that my entire adult life! 🤯😭
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