Discover and read the best of Twitter Threads about #carecantwait

Most recents (20)

BREAKING: Congress JUST introduced a new bill that would mark a historic investment in aging and disability care to END waiting lists.

Here's why the new Home and Community-Based Services Access Act (HAA) is so important 👇🧵 A caregiver pushes an older woman in a wheelchair. Text read
Most older adults and disabled people prefer to receive care in their own homes and communities – but don’t always have the resources for it. And, for the 7 million people who qualify for it under Medicaid, ~1 million are stuck on years-long waiting lists. news.bloomberglaw.com/health-law-and…
This is where the HAA would come in.

It would expand access to home- and community-based care through Medicaid, allowing families to stay together while loved ones receive the care they need. HAA would also end waiting lists, offering relief for hundreds of thousands of people.
Read 6 tweets
.@POTUS famously said “Show me your budget and I’ll tell you what you value,” and President Biden made it so clear today – he values strong care infrastructure! This budget would be a huge win for the whole care economy 🧵 whitehouse.gov/briefing-room/… twitter.com/i/web/status/1…
.@POTUS recognizes the struggles people all over the country face balancing their care responsibilities. These historic investments in #ChildCare #PaidLeave and #AgingAnd DisabilityCare will lower costs for families and build the care infrastructure we desperately need.
The budget from @POTUS recognizes that in order to create an equitable economy, we must address the needs of paid and unpaid caregivers. Investments in child care and #HCBS care workers—who are mostly women and women of color—provide family sustaining wages.
Read 4 tweets
Here are some important caregiving facts to remember, not only during #BlackHistoryMonth but every single day...🧵
Home care workers are almost 90 percent women, childcare workers are 95 percent women, and care workers overall are disproportionately women of color.
Black caregivers represent 14% (~7.2 million) of the estimated 48 million unpaid caregivers in the U.S.
Read 6 tweets
Thank you @SenSchumer for speaking out on the importance of protecting Medicaid! As the Senator said, “We must work to protect and strengthen programs like Medicaid, not put them on the chopping block.”👇Here’s why 🧵
1 in 4 people in the U.S. are covered by Medicaid. That includes children, older adults, people with disabilities, pregnant women, and so many more. Stripping Medicaid could remove much-needed health care access for millions of people.
Medicaid keeps families together – keeping disabled children with their parents, older adults with their families, and millions of disabled people in their homes and communities. Most aging and disability care is paid for by Medicaid.
Read 7 tweets
Following today’s reintroduction of the Better Care Better Jobs Act from @SenBobCasey & @RepDebDingell, @aijenpoo shared the following statement:

“The Better Care Better Jobs Act represents a historic investment in a long undervalued and underfunded care industry… 1/8
…and will address waitlists and other barriers that disabled people, older adults and family caregivers face when trying to access the services they need in their homes and communities. 2/8
We cannot expand access to services without addressing the fact that the direct care workforce is in severe crisis with workers who aren’t paid fairly even though they do the vital work of caring for our loved ones. 3/8
Read 8 tweets
Today, @SenBobCasey & @RepDebDingell reintroduced the Better Care Better Jobs Act, a historic investment that addresses the direct care workforce crisis and invests in services for older adults and disabled people đź‘Ź

Here’s why this is important 🧵
The Better Care Better Jobs Act would strengthen and expand access to Home and Community Based Services by extending eligibility to more than 3 million additional people.
It would also create hundreds of thousands of new, high-quality jobs by increasing wages and benefits and protecting the right to organize.
Read 7 tweets
Today, on what would be the 50th Anniversary of #RoeVWade, @aijenpoo shared the following statement:

“Everyone should have the opportunity and means to care and make decisions for themselves, their families and futures. 1/8
No matter what it looks like or the role we play, family is at the heart of what we value most. The Supreme Court’s decision to overturn #RoeVWade has taken away one critical way people can manage their lives, health, and wellbeing. 2/8
Forcing someone to carry a pregnancy against their will can have devastating and lasting consequences for them and their family. 3/8
Read 8 tweets
For disabled and other #HighRiskCovid19 people, the CDC’s new guidance means more:
- Death
- Sickness & further disablement
- Isolation from family, friends, services, supports
- For those who cannot isolate but want to protect themselves & others, risk of public harassment 1/5
- For those of us who have to work or go to school in person, this new guidance will make it even harder to get accommodations related to COVID safety.
- For families who have kept their high risk children at home instead of sending them to school, this will have to continue 2/5
- For people living in congregate settings, group homes, nursing homes, jails, detention centers, this new CDC guidance will mean that COVID will continue to tear through these places, and people will have even less recourse to protect themselves. 3/5
Read 5 tweets
Interesting new guidelines from France.
Important to remember the context of France listed first place on WHO rating for overall performance metrics of a public provided healthcare system.

PCR walk-in service readily accessible, vaccination clinics same with soc security card.
OTOH they have lower adult vaccination rate and booster.
But started vaccinating <12 in December.
Widespread societal unrest + ill-feeling towards the unvaccinated.

Schools have remained open.
Strain on non Covid healthcare evident with delayed care a new experience for most.
If we wish to continue to deliver healthcare for ALL, high quality education for ALL we may need to follow a similar pathway.

The fact that this is such a high risk strategy in Ireland lies firmly with our inability to structure a healthcare system with adequate capacity….
Read 4 tweets
1/ YES!!! My statement on the historic passage of paid family and medical leave and other care priorities in the Build Back Better Act (linked & below).

#paidleave
#paidleaveforall
#BuildBackBetterAct
#Childcare
#HCBS
#CareCantWait

newamerica.org/better-life-la…
2/ “The United States is one step closer tonight to finally enacting a national paid family and medical leave program so that every working person can care for themselves, a new child or an ill loved one...
3/ Paid leave supports women’s full participation in the labor force. It boosts earnings, mitigates families’ costs, honors the caregiving that happens within our homes, promotes racial and economic justice, and shrinks health disparities....
Read 10 tweets
🧵

1/ Passing #paidleave in #BuildBackBetter is the only pathway to putting paid family and medical leave in reach of an estimated 18.5 million people who need to care for themselves or a loved one each year.

This is Plan A. There is no Plan B that will deliver like this.
2/ #BuildBackBetter #paidleave will set a four-week baseline of affordable access to paid leave. Want more details?
newamerica.org/better-life-la…
3/ Paid family & medical leave is one of the most popular policies in #BuildBackBetter.

#PaidLeave is one of couple policies supported by voters across party lines, even in this highly polarized climate. It's the only one that could touch any household.

newamerica.org/better-life-la…
Read 6 tweets
#CareCantWait: A rising movement for transformative change #NN21

@MomsRising, @domesticworkers,
@aijenpoo, @FGossGraves, @rowefinkbeiner, @dhuckelbridge, @PaidLeaveforAll & Nicole Jorwic
Make phone calls and remind your senators + house members that you expect them to not trade off families. -@FGossGraves @nwlc
Text MOMS to 747464 to receive text messages from @MomsRising
Read 5 tweets
LIVE NOW! Join us for this important discussion on Home- and Community-Based Services. fb.watch/v/2YnVisaC8/
I’ve been a caregiver and I’ve seen our broken long-term care system firsthand. I was lucky enough that I could keep John at home. More people should be able to do that without sitting on waiting lists or balancing being a family caregiver and keeping food on the table.
It’s simple: Seniors and people with disabilities deserve to live with dignity and in safety. And care workers deserve adequate benefits and pay for the work they do.

#BetterCareBetterJobs #CareCantWait
Read 6 tweets
It’s ironic that @davidaxelrod chose Independence Day to write an op-Ed about why protecting the choices that his family has made is more important than independence for people with disabilities. Also he is just flat wrong about what is in the #BetterCareBetterJobsAct 1/5
It is unfortunate that families like the Axelrods use their power and influence to get in the way of what we actually need, to create choice for people with disabilities, a robust #HCBS system. Creating a system that serves everyone is not the same thing as one size fits all. 2/5
With 1 million people on wait lists for Medicaid HCBS this sort of twisting of truths to defend institutional care is dangerous. I’ve been to where his daughter lives, it’s where families are asked to fundraise tens of thousands of dollars for the spot on the “leafy campus” 3/5
Read 5 tweets
1/ Appointments are still being cancelled due to the cyber attack & parents of children with Down syndrome associated arthritis are very concerned. The public waiting list for Paediatric Rheumatology is 4 years long! It was 3 pre-Covid. There are only 2 Paediatric Rheumatologists
2/ We should have at the very minimum 6 for our population. A third Paediatric Rheumatologist has very recently been appointed but is not due to start until some time in 2022 due to personal commitments. So our waiting lists won’t ease. This cyber attack is increasing the lists!
3/ @HSELive need to give the resources to @CHIatCrumlin to ensure children are seen in a timely manner. 6-8 weeks is acceptable. How are we okay with 4 years? Have you heard of early intervention? It’s a shambles of a system. Many children time out while waiting on the list.
Read 5 tweets
Breaking News: Today, working people and voters gathered in Huntington, West Virginia, in support of the home care provisions of the American Jobs Plan. #Union #CareIsEssential #CareCantWait @JoeManchinWV @Sen_JoeManchin ImageImageImageImage
Investing in our care infrastructure will create 6,000 good paying jobs in West Virginia and benefit consumers who need home-based care. #CareIsEssential #CareCantWait
Thank you to Huntington Mayor Steve Williams @HuntingtonMayor and Delegate Chad Lovejoy @chadlovejoy for your solidarity today. #Union #CareIsEssential
Read 6 tweets
Since @POTUS revealed the #AmericanJobsPlan, there’s been discussion about whether or not care is infrastructure.

Infrastructure = basic structure needed for our society & economy to run. Caring for each other has always been the fulcrum of both. [THREAD] 1/9
Care is constant. We all receive care from the moment we’re born to when we die. So of course care is infrastructure...our human infrastructure includes things like schools & the full range of care: the supports & services that allow us to work, grow & thrive.

#CareCantWait 2/9
We need support systems in place to help us live full and dignified lives. Our families & communities are suffering because what exists is fragmented, and care work is undervalued, causing so many people to fall in between the cracks.

caringacross.org/blog-the-care-… 3/9
Read 9 tweets
Digging deeply into the first set of Biden-Harris economic recovery plans. A few critical pieces to know. I'm hopeful about our ability to do big things. THREAD #infrastructureplan #CareCantWait
2) The investment in jobs is the most significant in generations. And the jobs plan acknowledges the flaws in our economy well before the pandemic. That approach is spot on-we can't pretend that everything was sunshine and roses a year ago.
3) Up top the plan acknowledges that our care infrastructure crumbled and that our entire economy suffered as a result. It then backs that point up with a historic investment in home care workers. As my sis @aijenpoo says, care is the work that makes all work possible.
Read 9 tweets
Re-organisation of the health care system should not be a smokescreen for the government’s long-term neglect of ongoing problems within the system. It must be an overhaul of the system aggressively routing out waste, embracing technology, increasing patient involvement
in governance and risk management, and providing funding for enough staff. Inefficiencies within the system including recruitment red tape, and the outpatient appointment system must be fixed. Transparency & accountability should be cornerstones of this reorganisation.
The reorganisation plan needs to be publicised so patients understand what is going on and who is accountable for what. A sustained effort to retain physicians in Ireland and to recruit additional physicians must be made concurrently to address current and future shortages.
Read 5 tweets
The following thread is my personal reflection regarding the cancellation of the Edmonton Clinical Lab Hub project and what it means for Laboratory Services and more importantly, what it means for patient care in the region: [1/12]
[2/12] The infrastructure and space demands in Edmonton medical laboratories are real. Questions about space and capacity challenges were first raised in 2007, and continue to be raised with every accreditation visit we get. #TheStruggleIsReal
[3/12] What kind of challenges are we talking about? Well aside from pathologists and supervisors sharing offices (or at times not getting an office at all), we have equipment crammed into small spaces causing instruments to overheat #HotMess
Read 12 tweets

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