Discover and read the best of Twitter Threads about #cerebralpalsy
Most recents (3)
This! I was denied mobility aids well into my progression because of claims that I was “too young” to start “deconditioning.” PT and building muscle doesn’t replace my need for aids. They are worth fighting for. #DisabilityHasNoAgeRequirement #EDS #CerebralPalsy
2nd hand mobility aids is the best most can do when faced w doctors and insurance companies that don’t understand #EDS. As much as I’d like a wheelchair that truly fits, having any chair has saved my quality of life. New rollators with seats are about $80 self pay online at Drive
For me it is especially important to rely on mobility aids until I collect the right braces my #EDS joints need. Otherwise I push them out of socket for ADLs w lasting consequences. Because of aids and braces, I’m MORE able to do PT/exercise. It’s the opposite of deconditioning.
About to get into #RollWithIt with @TaraJean.
Follow the thread for thoughts from someone who has CP.
#CerebralPalsy #Reading #Books #DisabledTwitter #ActuallyDisabled #BookReviews
Follow the thread for thoughts from someone who has CP.
#CerebralPalsy #Reading #Books #DisabledTwitter #ActuallyDisabled #BookReviews
Honest first thought? The fact that the cover has praise from the author of Wonder pretty much is making me side-eye the book already.
Read more: toniasays.blogspot.com/2017/08/review…
But I'm going to give this one a chance...
Read more: toniasays.blogspot.com/2017/08/review…
But I'm going to give this one a chance...
The dedication, though... To all the "amazing" kids living with a disability?
So early...so much condescension.
So early...so much condescension.
This afternoon the inevitable happened. I had an accident in my wheelchair, whilst walking my dog, because a walker didn’t keep a safe distance. Lots of people offered to help - which I had to refuse - because social distancing. I haven’t felt so vulnerable for a long time. 1/8
We are both ok and not hurt, but we were in an unsafe position for 10 minutes or so whilst we waited for my husband to come and help. All because someone didn’t simply step out of the way. I tried to put as much distance between us as possible 2/8
And by doing so I misjudged the kerb (the joy of #CerebralPalsy and spatial awareness). I ended up with the front half of my wheelchair in the road, my dog in the road, and the back half of my wheelchair stuck on the kerb thanks to my anti-tip wheels 3/8
