Discover and read the best of Twitter Threads about #chronic

Most recents (24)

When are @SeneddWales going to debate about the #chronic #VaccineSideEffects that are impacting on our lives

@WelshGovernment are responsible for the rollout of the #CovidVaccines in #Wales, so where is the help & support that we need?
@WelshGovernment @PrifWeinidog @vaughangething @CMOCymru @Eluned_Morgan & more kept saying how safe & effective these #CovidVaccines were

Encouraging us to have them, especially with being ‘classed as vulnerable’

Protect yourselves , protect your loved ones
Why am I tagging you all

Ive tried desperately to get well again

Ive asked for help from so many

Some ignore, so well, haven’t helped

I emailed @Eluned_Morgan

Much more was known 2022 compared to the info I was given in 2021 when I had my #CovidVaccines ImageImageImage
Read 14 tweets
During the #Welsh #covid briefings @Eluned_Morgan talked about #mentalhealth

I remember her saying to reach out to others if you were struggling

A few months later I emailed her, asking for help with #VaccineInjuries

She didn’t care
@Eluned_Morgan had someone to reply on her behalf

The reply

You had the information prior to the #CovidVaccines , so patients can make an informed decision

#CanWeTalkAboutIt Image
With a link to the current side effects for @ASTRAZENECAUK Product

I call it a product, the same as my Neurologist called it a PRODUCT in my clinic letter Feb ‘22

Look at the link

Then LOOK at the LEAFLETS I’d received 2/3/21 & 18/5/21

eur01.safelinks.protection.outlook.com/?url=https%3A%… ImageImage
Read 9 tweets
1/5 As many of you here watch family, friends, associates and colleagues living their best lives out there, as #COVID19 surges, please know that many ARE NOT okay.

"Psychoanalyst Judith Alpert theorizes that our culture is terrified of death, illness, and vulnerability."
2/5 "Thus, “[t]hose who have contact with the #chronically #ill . . . do not want to be #reminded of #vulnerability and #ultimate #demise. In turn, the demand placed on the chronically ill is to #control, #hide, and #overcome the #chronic #illness.” (Alpert, 2012)."
3/5 Many of those who appear to be living their best lives are faking wellness to fit in.
psychologytoday.com/us/blog/chroni…
Read 5 tweets
Are there any changes in #brain #structure during the first year following #trauma #exposure? Is there a difference between individuals who develop #chronic #PTSD and those who #recover? A quick thread about our work published today in @molpsychiatry📜🧠🧵
nature.com/articles/s4138…
Reduced #hippocampus and #amygdala volumes have been repeatedly documented in #PTSD patients. But do they reflect a #pretrauma vulnerability trait or #postexposure stress-induced atrophy?
To answer this question, we examined the association between #longitudinal #volumetric #changes of the hippocampus and the amygdala, as well as their #key #subregions, and #PTSD #symptom #trajectories during the first #14months following #trauma exposure. Image
Read 10 tweets
In the very beginning of the pandemic, I created the hashtag #multiyearpandemic

2023 is approaching and we are seeing it span out in reality.

1) #COVID19 is nowhere near endemic status.

2) Mathematical modeling 👉 it’s going to take ~10 years to reach it.

#CovidIsNotOver
This highly contagious virus has all of the necessary ingredients to ensure long term staying power. Millions will be disabled for life.

#COVIDisAirborne #asymptomatic #chronic #chronicillness #disability #longcovid #LongCovidKids
Here are the equations, if interested.
Read 5 tweets
🧵 #LivingLongCovid

Some maybe already know me probably% and maybe my story.

I am a #HealthCareWorker and since before and at the beginning of #COVID19 I have worked in the #ICU saving lives and learning about #IntensiveCare

I've had #COVID19 3 times so far this pandemic.
I developed #LongCovid from my 2nd contagion that was serious at the time, I required hospitalization in #ICU and oxygen therapy.
Since Dec 2020 I have lived with #LongCovid since then and when I understood the Multi-organic gravity of #LongCovid
I SURVIVED!
And I still do it daily.

A few days ago I had a 2nd #InfarctionSilent a year ago I had a multiorgan failure accompanied by #infarctionSilente

We know that #COVID19 can cause #myocarditis and that is possibly the case, I don't know yet.

I tell you now.
Read 19 tweets
SEMINAL ARTICLE re: #ICD11 Chapter 08 - Diseases of the #NervousSystem 🧠

Study Title: The #leptomeninges as a critical organ for normal #CNS development and function: first patient and public involved systematic review of #arachnoiditis (chronic #meningitis). @PLOSONE
LINK: journals.plos.org/plosone/articl… @PLOSONE

Abbreviations:
#CES- #CaudaEquina Syndrome
#DLM – Diseases of the #Leptomeninges
#ESI- #Epidural Steroid Injection
LM - #Leptomeninges
#LMF- #Leptomeningeal #Fibrosis
#NAA- #neuraxialanesthesia
PSR- PRISMA Systematic Review
#SAH- #Subarachnoid Hemorrhage
#SAS- #Subarachnoid Space

Key Findings:

1. A varyingly described, and poorly characterized #CNS disease called #arachnoiditis (aka #adhesivearachnoiditis) was exhaustively systematically-reviewed for the first time.
Read 27 tweets
To those spouting at #PWD’s on #ODSP to “get a job”, may I remind you that #ODSP is for ppl who are #DISABLED that either can’t work or can’t work F/T, & even if we attempt to try and find work #ODSP claws back 50% of every $ made above 200$ … 1/6
it is #legislatedpoverty, we only receive 1,169 a month to live on, can you live on that ? I dare you to come up with a budget on that amount rn, guess what, you can’t, no one on #ODSP is living high on the hog I can guarantee you that … 2/6
yes there are #benefits but it’s a #bureaucratic nightmare, everything needs to be approved, forms need to be filled out, these are often #discretionary and the caseworker can deny it if it doesn’t meet a certain #eligibility 3/6
Read 6 tweets
1) Welcome to a new #accredited #tweetorial, Prevention and Management of Heart Failure in T2 Diabetes: The Cardiologist’s Perspective! Our expert author is Giuseppe Galati MD, MMSc in Heart Failure, @GiuseppeGalati_ , Consultant #Cardiologist #HeartFailure & #Cardiomyopathies Image
2) @GiuseppeGalati_ is at San Raffaele Research Hospital, Milan 🇮🇹 @SanRaffaeleMI. This program is intended for #healthcare professionals & is accredited for 0.75h CE/#CME credit for #physicians #physicianassistants #nurses #nursepractitioners #pharmacists 🇺🇸🇨🇦🇬🇧🇪🇺.
3) @cardiomet_CE is supported by educational grants from AstraZeneca, Bayer, Boehringer Ingelheim Pharmaceuticals Inc. and Eli Lilly Company, & Chiesi. Earn credit from archived programs at cardiometabolic-ce.com. Disclosures at cardiometabolic-ce.com/disclosures/.🙏 FOLLOW US !
Read 56 tweets
1/🧵 I think Chris Rock wouldn't have made a joke about Jada's illness if more folks were educated about the high prevalence of autoimmune & other chronic disorders.

#chronicillness #Spoonies #autoimmune #Alopecia #women #health #ChronicPain #chronic #illness #SickNotWeak
2/ As a woman who lives with multiple immune-related disorders, when a comedian makes a joke about chronic illness, I feel unseen...not just for me, but for all my fellow #chronicfolks. Does Chris Rock have any idea what Jada goes through to live with alopecia? Probably not.
3/ As a country, we need to create more dialogue around chronic illness, and especially autoimmune diseases. They are so prevalent yet they are usually talked about in whispers....'Oh, she has Crohn's.' Cancer used to be spoken about in hushed words, too.
Read 5 tweets
@MondayNightIBD @southasianIBD @ibdesis @Empoweringpts9 @DCharabaty @ownyourcrohns @crohnsbabble @LivingWithUmeed @vkckiranpullela @TheMaveilousGut @dunung_ruchita 📣 #IBD patients & caregivers:

#IBDPoll 1️⃣

📊Thinking abt your IBD needs, what's been the biggest hurdle to your care?
📝 In the replies, elaborate. What’s helped your care?

Please share your #PatientExperience w #MondayNightIBD 👇🏽

👨‍👩‍👧‍👦=Family
👩🏼‍🤝‍👩🏽=Friends
🥼=Specialist
@MondayNightIBD @southasianIBD @ibdesis @Empoweringpts9 @DCharabaty @ownyourcrohns @crohnsbabble @LivingWithUmeed @vkckiranpullela @TheMaveilousGut @dunung_ruchita #MondayNightIBD #PatientExperience
#IBDPoll 2️⃣

🧐Thinking about your culture’s expectations

📊 Have you tried Complementary and Alternative (CAM) Therapies (ex: ayurveda, homeopathy)?

What drove you to try these therapies? Please share your experience.

SE=side effects
@MondayNightIBD @southasianIBD @ibdesis @Empoweringpts9 @DCharabaty @ownyourcrohns @crohnsbabble @LivingWithUmeed @vkckiranpullela @TheMaveilousGut @dunung_ruchita Thank you @MondayNightIBD for shining a spotlight on 🌏 #SouthAsianIBD pt experience!

I'm Madhura from 🇮🇳, co-founder Team @ibdesis. We are proud to lead #PatientExperience on #MondayNightIBD!

We hope to improve care for our community around the 🌍 through @SouthAsianIBD.
Read 22 tweets
I know that there are #patient advocates that take issue with @BethDarnall work but I find it critical. I know many individuals in my community that have wanted to decrease their opioids or get off all together for various reasons. Listening to their stories are frightening. 1/
What I don’t condone, is #physicians & #antiopioid proponents utilizing work done such as @BethDarnall or other psychologist that work in the area of #pain to be dismissive of those with #acute or #chronicpain. Sadly, this occurs all too often and has caused a distrust by 2/
those with #acute or #chronic pain. I believe that we need a wide variety of options. I believe that care should be individualized. That this is often not occurring is NOT the fault of those working to provide options. Those in the field that dismiss patients by saying #pain 3/
Read 5 tweets
THREAD
Während der Pandemie haben wir uns an die Vorstellung gewöhnt, dass die meisten #COVID-Fälle „#milde #Verläufe sind.
Zb die #CDC sagt, dass 80 % der symptomatischen #SARSCov2 Infektionen einen "milden Verlauf" haben.
Manche denken: dann #kein Grund zur Sorge. Zurecht?
1n
Im #allgemeinen #Sprachgebrauch beschreibt das Wort #mild idR etwas von #untergeordneter #Bedeutung.
Zum Beispiel wird #Erkältung oft als "#milde #Viruserkrankung" bezeichnet.
#Mild bedeutet also "durchaus evtl  unangenehm aber nicht weiter
von Bedeutung, keine große Sache"
2n
Betrachten wir das Attribut "#mild" im Zusammenhang mit #Covid zeigt sich : #Allgemeiner #Sprachgebrauch und die #medizinische #Definition unterscheiden sich hier #signifikant, werden aber @vermischt, was zu #Verwirrung in der Kommunikation über den wahren Sachverhalt führt.
3n
Read 29 tweets
We are delighted to announce the release of #PhageAI 0.10.0: extended repository and the new #phage #prediction tool: #chronic #lifecycle. 1/4
Each of the #phage genome has computed a new numerical vector representation by #Phage2Vec technology, re-classified #lifecycles and re-computed nearest neighborhood what introduced updated alignment-free top-10 similar #bacteriophages registry. 2/4
Furthermore, we released beta #bacteriophage #taxonomy #prediction tool.

Feel free to extend your account role from basic to Expert user using "My Profile" view, to access it from the @PhageAI. 3/4
Read 4 tweets
Thanks @DrDavidACox for interviewing me for this article on #LongCovid. There’s also great info in the article on research showing #viral RNA in the brains of patients w/ post-SARS syndrome, and viral reservoirs in patients w/ post-Ebola Syndrome: bbc.com/future/article…
2/ The article reads: “Amy Proal, a microbiologist who runs the @polybioRF which studies the causes of chronic inflammatory diseases, believes that small amounts of #pathogens that linger beyond the reach of the immune system in remote pockets of the body...
3/ “...known as reservoirs or anatomical sanctuaries, are at least partially responsible for a whole range of post-infectious syndromes. This includes long #Covid, but also a number of mysterious illnesses which have puzzled scientists for decades, such as chronic Lyme disease..
Read 14 tweets
#idboardreview 20 M farmer consumes unpasteurized milk presents w/ several months of headache, fever & now ill with projectile vomiting, F 106F, myalgia, back pain, areflexia. Csf 100wbc 70%pmn, protein150, gluc20. Dx? #medEd #idmedEd #idtwitter
#brucellosis ddx chronic meningitis
Pic ref phil.cdc.gov/Details.aspx?p…
#Neurobrucellosis is the most serious form of the disease and affects between 5 and 7% of all brucellosis
Read 13 tweets
1/17 Taking forward the theme of #WorldKidneyDay let’s discuss what it means for “#WOMEN to live well with #kidney disease” 💃
🧵ahead is for anyone who cares about 💃!
@womeninnephro #womenempowerment #WomensDay #WomensHistoryMonth
Q-Do kidney diseases affect women differently?
2/17
Women have
⬆️Autoimmune diseases (SLE, RA, Systemic Scleroderma)
In #Women of Color that's 2- 3X commoner, early-onset with⬆️ complications

⬆️UTI due to short urethra
In #Pregnancy ⬆️risk of pyelonephritis and sepsis

karger.com/Article/FullTe…
3/17 Pregnancy poses a high risk of #kidney injury due to various etiologies (see pic) which can progress to CKD in the future.
#Preeclampsia is a definite risk factor for #CKD and #ESKD in mother and also for #cardiovascular disease
pubmed.ncbi.nlm.nih.gov/26342729/
Read 17 tweets
Was doing #Gochar #Transit analysis for a #Libra #Jaatak #Kundali when I stumbled upon a very powerful #Astro event taking place in ALL #Libra #Charts but also potentially quite damaging for the #Jaatak if their #Natal #Chart or #Lagnesh is weak...
#Mars would be around 25* in the 6th #Bhaav, looking into the #Lagan with 8th #Drishti where #Laganesh #Venus would also be placed with similar #Degrees. #Mars/#Venus are not just antiparties, they are also #Enemies to one another and hence this #Vedan is not the best
#Rahu, placed in the 8th #Bhaav of the #Chart would also be having similar 25*. In #Taurus, dispositor of #Rahu is #Venus. #Rahu and #Venus having similar strength, #Rahu becomes very powerful and #Malefic for the time being
Read 8 tweets
#DeepikaPadukone: #No_Hasty_Actions_Please

Warning: #Hash_tags in this article are purely coincidental and aren't meant to be taken seriously. Do not Google their meanings. You will end up on same page.
(1/N)
While the whole Hindu Right Wing is baying for Deepika Padukone's blood, I have a different take. I cannot shun this responsibility to post my thoughts about Deepika. I advocate no #Hash_Tea actions against her. Let me elaborate.
(2/N)
We should never forget Deepika is a woman of #substance. She is made of sterner #stuff. She's managed to create her own identity away from her father's shadow and done her best to #weed out nepotism in cinema field.
(3/N)
Read 10 tweets
Our invited expert review on #Ayurvedic #herbals and #liver #toxicity. #herbal #medicine is NOT safe. Review on #herbs used in #Indian #traditional #medicine & adverse events is lacking in #published #Literature
We deep searched, compiled
Full paper: bit.ly/35WkCmr
1/4 Image
This #review is important for #ayush practitioners and those interested in opting for #alternative #therapies as #knowledge regarding potential #toxic components is the #right of every #patient and #moral #duty of the physician. This 👇 list show names of imp toxic herbs.
2/4 Image
We give #real #life #patient data supporting our review: such as this example which shows that #Ayurveda #drugs cause severe #chronic #liver #damage that can lead to #cirrhosis in the short term.
The implicated agent here is Holarrhena antidysenterica (Tellichery bark)
3/4 Image
Read 5 tweets
Still struggling with the wording of this invitation. ‘#COVID-19 has exacerbated the raging #opioid crisis driven by the nation’s more than 50 million #pain suffers......’. I have contacted both @RepJudyChu & @RepWalorski office to express my concern & to 1/ Image
attempt to understand why the blame for the #opioidepidemic seemed to be placed at the feet of those that have #chronicpain. In the past years the # of #opioid pain medication prescriptions have plummeted yet rates of overdose climbed. Many individuals with #chronicpain 2/
who benefitted from treatment from #opioids have been pulled off & abandoned; their #QoL decreasing & suffering increasing. My kids & my husband were/are part of the 50 million that experience/experienced #chronic pain due to #hereditarypancreatitis & #pancreascancer 3/
Read 5 tweets
Detroit. The history of my city is racially-charged and rooted in the effects of structural and individualized racism. #COVID19 exposed that. As a #SickleCell physician who cares for black patients with #chronicpain and #chronic disease, I have known that for a long time 1/n
#Detroit has the largest black community in the country (84.3%). In 1910 it was 98.7% white, but by 1930, due to the Great Migration the black community grew. The increase in diversity was perceived as a threat to the way of life and the isolation of black people began. 2/n
A terrible example of this comes from 1925, an African American physician #OssianSweet, found his home on surrounded by an angry mob; a neighborhood where he was the most affluent, the resentment from his neighbors that a black man had infiltrated, caused hate and violence. 3/n
Read 14 tweets
Not sure where to start the discussion on this article. I am very interested in multiple aspects of this paper. First, & this is just related to this paper but the overall current climate of the treatment & care of those with #Chronicpain
#HHS #Chou 1/ nam.edu/best-practices…
So much energy has gone into research looking to define optimal strategies for opioid tapering where is the energy being given to development of other medications that are as effective as opioids with less risk? I know this paper referenced that many #patients tapered 2/
experienced pain relief & increased functioning yet as an advocate I receive regular calls from inds where pain care has been reduced or cut off entirely w disasterous results. My kids benefit from #opioid #pain meds. I am nor are they opposed to the utilization of other meds 3/
Read 13 tweets
1/4
43yr chronic #alcohol user on Liv.52 #Herbal supplement for 1yr. Believes Liv52='hepatoprotective'. Consumes along with to cancel alcohol-toxicity. Diabetes uncontrolled on #Ayurveda. Comes with #jaundice, severe #headache, eyes 'bulged' 2 days, nasal discharge #livertwitter Image
2/4
At admission, #seizures, uncontrolled, put on #ventilator. Deep jaundice, comatose. Investigations=acute on #chronic liver failure #aclf
#MRI Brain Part 1👇
Extensive hemorrhagic infarcts, almost all of anterior and mid #brain.
#medicine #MedTwitter #radiology Image
3/4
MRI Brain Part 2👇
Both sides cortical venous thrombosis and anterior third of superior saggitsl sinus thrombus.
#imaging #stroke #NeuroTwitter #neurology #NeuroTwitterNetwork Image
Read 5 tweets

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